Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Living With Epilepsy - Adults

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Fine line between two types of seizures

03/2005 | 1 Comments

I have read and been to many websites to figure this out yet it feels at times like a very tough thing to know.For a long time I use to have these...
Tonic Seizures (as in tonic/clonic)

03/2005 | 0 Comments

I have status seizures always referred to in my medical records as "tonic/clonic" seizures. But the way my family describes them, and the way the...
was it a seizure?

03/2005 | 1 Comments

I have had epilepsy my entire life and my last seizure was about a year ago. a couple of weeks ago though, i woke up in the middle of the night and my...
why is this happening w/ my Seizures

03/2005 | 0 Comments

I understand that I have intractable seizures and alot of meds do not do much. But why? When I was on Tegregtol and dilatin I had side affects but...
Sounds that trigger seizures???

03/2005 | 16 Comments

Hi I am new here and recently was diagnosed with having seizures. I dont have the Grandmal seizures, but I have the partial seizures. This is an...
Speech affected?

03/2005 | 17 Comments

I am curious to know if others experience that the first thing to happen for them in a seizure is to loose their speech? does this happen for most or...
Smelling smells that are not there?

03/2005 | 27 Comments

I have a question. I have not been on any meds for epilepsy for many years now. So I have never thought this might be connnected but have recently...
Alcohol and medication

03/2005 | 10 Comments

I am a 19 year old student. For about 2 years I was a pot head, smoking almost everyday. I had 3 seizures on different occasions almost immediately...
Sleeping

03/2005 | 28 Comments

I have Epilepsy,Had my Sleep Deprived EEG yesterday,I was wondering if anyone else was haveing this kinda thing happen. When I get ready to go to bed...
Need to share and support

03/2005 | 4 Comments

I am new here have posted a few times. I have had seizure for 36 years should be all stable and balanced right? Wrong. I feel like I am just learning...
Anybody?

03/2005 | 17 Comments

I am walking into my kichen when it feels like I am being pulled to the left. Like the room is tilted to the left and I am trying to walk to the front...
Night-time Seizures

03/2005 | 32 Comments

My question(s) is this. When I have seizures in my sleep I usually pull muscles in my arms, upper back and neck. It is very painful. How can I go...
Anyone else?

03/2005 | 1 Comments

I'm really curious if anyone else has noticed they have landed or injured one side of their body more during or due to a seizure than the other side...
jacksonian seizures

03/2005 | 3 Comments

hi i am looking for people who have jacksonian seizures.. i need to know what is experienced before, during and after these seizures.. thanks mell
how do you know what type you have

03/2005 | 6 Comments

I have had epilepsy since I was 3 and have no clues as to what type of epilepsy I have. I was told that I have petit mal seizures but they have since...
Hair loss

03/2005 | 16 Comments

Hi, I am new to this sight and wanted to know if anyone has experienced hair loss after having a video eeg done for SPS. I was in the hospital for 10...
Employment and Epilepsy

02/2005 | 0 Comments

"People with epilepsy face hurdles each day as they carve out paths towards fulfilling and productive lives. Bender and Silver remind us to live...

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