Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Living With Epilepsy - Adults

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

really feeling not bothering anymore

04/2005 | 16 Comments

my mom is a medical assistant...she tells me well you aren't having any grand mals so i shouldn't worry about all the other stuff that is happening...
I do not understand what is happening...

04/2005 | 1 Comments

29 Male, got epilepsy at 14 from severe head traume (ok i was blown up..opps) I have always had big seivures 2 min and then left side of body is...
Trouble with words

04/2005 | 19 Comments

I find myself substituting words (for example, I was looking at a potato chip and called it a paper clip instead) or having trouble finding the right...
Fear of Seizure.

04/2005 | 5 Comments

i am 34, i had to face first Seizure on Dec 2002 then second one on May 2003.... I had EEG, CT Scan, MRI But all are normal. Doctor diagnoses me...
needing assistance

04/2005 | 0 Comments

now i don't believe my doc saying my events are non-epileptic at all, my question is about this. a few weeks ago, i was sitting around watching a...
I'm a nurse, and I'm scared

04/2005 | 4 Comments

I've been having T.L. seizures for 4 years. I'm positive that's what it is, but I've never been diagnosed. I've talked to doctors about it, many times...
arm jerking

04/2005 | 8 Comments

I have a question, does anyone know what it is when just your arms do violent jerks, they are sharp and uncontrollable, but that is the only thing...
Adult Myoclonic Epilepsy

04/2005 | 11 Comments

HI guys~~ Just wanted to waht kind of talks I could get going with this one. In August of last year I was diagnosed with a relatively new syndrome for...
New boyfriend doesn't seem to want to deal

04/2005 | 11 Comments

Okay, backstory - I'm 35 (36 in a few months). Was diagnosed with epilepsy at age 10 after having my 1st seizure. Went on phenobarb. At 20, had my 2nd...
Sleep Pattern Controls Me

04/2005 | 8 Comments

There isn't any way to put into words the frustration and aggravation I go through to achieve an 'acceptable' sleep routine. I need to sleep at night...
Exactly how important is sleep?

04/2005 | 10 Comments

I have had epilepsy for four years now. It just started out of the blue when I was 19, and they still don't know what is wrong. I have had the right...
Seizure increase & fusturated

04/2005 | 3 Comments

Hi everyone, I am feeling kinda down . I have simple and complex seizures and have for 36 years, now in my 40's . Had to get off old meds a year ago...
kind of an odd question...

03/2005 | 5 Comments

I really did a number on my tongue when I had my seizure on monday. i can't talk (at least not so anyone can understand me) and can't eat. i've been...
relapse :(

03/2005 | 5 Comments

So after being seizure free for five years and 10 months I had a grand mal at work yesterday. i bit my tongue pretty bad and i have contusions on my...

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