Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Living With Epilepsy - Adults

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

I Think I Need Some Emotional Support

02/2020 | 4 Comments

Hi, I'm Shira. I apologize for any spelling mistakes, I am not from an English speaking country. I am almost 29, and have had absence seizures for as...
Second Opinion

02/2020 | 4 Comments

Can anyone recommend a Dr. for a 2nd opinion? I am a 75 yr old male; episodes for 12 yrs but more intense the past 4 years. I am happy with my Dr....
Feeling Lost

02/2020 | 3 Comments

I had a seizure after just under a year. I know that I tend to feel down afterwards but it is so hard to snap out of it. My partner has been amazing...
Driving Privileges

02/2020 | 2 Comments

Hi, I live in South Carolina. I had my first seizure in Aug. 2018. At that point, I lost my ability to drive for six months. I had my second seizure...
business trips

02/2020 | 5 Comments

Hello, I would like to ask if it is possible to fly airplanes with epilepsy. in my work, it is necessary going abroad, but I'm afraid of negative...
clonezapam

02/2020 | 4 Comments

i'm sorry if this topic already was. but i want to ask if some of you take clonezapam for epilepsy. i want to quit it, or minimize, but it the only...
TLE and pituitary abnormalities

02/2020 | 2 Comments

I was diagnosed with temporal lobe epilepsy 7 years ago and it has been under control with Lamotrigine ever since. During my epilepsy diagnosis I had...
Night terrors

02/2020 | 2 Comments

Hi all im 23 years old. I've had night terrors where I would scream loudly and wake up suddenly during my sleep since I was maybe 13-14 years old. 2...
Help!

02/2020 | 5 Comments

I’ve been out on a medical leave since December for something not related to epilepsy, and I’m returning back to work on Tuesday. I forgot to take my...
AEDs and lifestyle

02/2020 | 6 Comments

Hi, I've had epilepsy for three years now, I'm 26 years old. It's been very difficult with the dealing process. However, I think the biggest problem...
What type of seizures is my wife having?

02/2020 | 3 Comments

About once every 3 weeks my wife has an episode. She says she feels funny, dizzy and tired. Her eye lids flicker, her hands cramp up. She is usually...
Dealing with the fear

02/2020 | 4 Comments

Hi. I've had epilepsy for 10+ years now but still haven't learned to deal with the fear of having a seizure which leads to a seizure and more fear etc...
Was This a Seizure or a Coincidence?

02/2020 | 3 Comments

When I have seizures, I wake up confused for about a minute and my muscles are pretty sore. Well I just woke up feeling this way, where I forgot...
R.E Right Temporal Lobectomy

02/2020 | 1 Comments

Hey all I had right temporal lobectomy for a cavernous malformation on my right temporal lobe. 10 yrs later I now can't handle stress and have...
absent seizures

02/2020 | 3 Comments

Hello, I am suffering from epilepsy from the last 8 years.have been operated twice .i am on regular mediation of Torleva, Clobazam, and Tegrital...

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