Community Forum Archive

Topic: Living With Epilepsy - Adults

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Neuropathy Connection

04/2020 | 2 Comments

Has anyone noticed a connection between Dilantin levels and neuropathy reactions? I recently retired and am wondering if upping my Dilantin from 250mg...
Temporal Lobe Epilepsy & Hallucinations

03/2020 | 6 Comments

Hi all, I have refractory temporal lobe epilepsy (left temporal lobe) with focal seizures. I have been on a number of meds, I'm currently on...
Seizures and memory loss

03/2020 | 2 Comments

Hi i have a form of epilpesy to where i have severe seizure activity on both haves of my brain. I also have petite mal seizures and forget what im...
Keppra & extreme exhaustion

03/2020 | 9 Comments

Hi guys! I've been dating my boyfriend for almost two years now and he is epileptic; I'm here to find more info on how you all go about dealing with...
Waking up in the trees

03/2020 | 2 Comments

It happened again. I was driving to Houston and somewhere between Woodville and the Indian Reservation, I opened my eyes to see the tree line covering...
Surviving with Epilepsy on Lamictal

03/2020 | 9 Comments

Hey all, I'm in a tough situation. I recently got out of a 5 year relationship with a girl who I thought was the one. The reason behind that is she...
New experience, seizure?

03/2020 | 2 Comments

Trying to do some research on what I'm experiencing but not sure if I'm coming up with the right results online. Recently at night I will experience...
ER Tech with Epilepsy

03/2020 | 2 Comments

I am an ER Tech, I have a dual role so I am also a secretary, I do everything but give shots. I am usually the only tech/secretary working on my shift...
Need advice

03/2020 | 4 Comments

Hi everyone! I am new here. I was diagnosed with epilepsy at 16 years old I am 28 .Thankfully the medicines I am taking levetiracetam 1000mg and...
Tonic Clonic changed to Status Elipticus

03/2020 | 1 Comments

Apologize for the long read, I just need to put this out there. I'm taking lamotregene to "control" my seizures. The hardest part has always been the...
Epilepsy Mental health- help

03/2020 | 4 Comments

Hi guys. This is a very long story so brace yourselves... 13 years ago I suffered my first seizure, I had 3 more all during pregnancy and then I was...

03/2020 | 4 Comments

Hi all, I got diagnosed with epilepsy once I was 18 and tried different medications and dosages and didn’t really have any luck for a while but now I...
What is Epilepsy?

03/2020 | 11 Comments

Hello, I just want to know what people have compared their experience of epilepsy with. Most people, especially those who don't know what it is, have...
EEG worries

03/2020 | 3 Comments

Hi everyone, I was dxed with epilepsy at 7 (petit mal). I stopped having seizures at 13 but at 14-16 I started getting myoclonics, and tingling in my...

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