Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Living With Epilepsy - Adults

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Seizures only when falling asleep

05/2019 | 8 Comments

Hi everyone. Thought I would reach out to the online community and share in the hopes that someone may have a cure or better alternative for me and my...
DBS for epilepsy

05/2019 | 2 Comments

My son has uncontrolled seizures, on 5 AED’s and had VNS. His neurologist suggested DBS surgery in the hope of decreased seizures and a reduction of...
Living alone and nocturnal seizures

05/2019 | 6 Comments

I got my officially diagnosis about six years ago. I live alone, don`t have any family and have had many nocturnal seizures. This the way it went and...
Keppra, Topamax, and Voice Loss

05/2019 | 4 Comments

Hello, everyone. About 9 months ago I began to loss my voice. I've been taking the generic of Keppra for years (about 5 or 6) and generic of Topamax...
What happened to me

05/2019 | 5 Comments

Hi, my name is Scot, I was born in 1969, I live in Canada and I have epilepsy. I've had it my entire life but didn't know it and didn't get my...
epilepsy and engagement

05/2019 | 1 Comments

I have been with my boyfriend for going on 2years he has had epilepsy since he was 2. He has had device that uses a magnet to control them but it didn...
epilepsy and marriage

05/2019 | 1 Comments

I have been with my boyfriend for going on 2years he has had epilepsy since he was 2. He has had device that uses a magnet to control them but it didn...
Giving Up Disability Starting To Work

05/2019 | 2 Comments

Hello, I haven't posted in awhile I have had seizures almost all my life since I was 8 years old I am almost 38 I have had 2 brain surgeries to...
Cannabis with Epilepsy

05/2019 | 3 Comments

Hi everyone, I’ve been having grand mal seizures for the past 4 years (I’m 22) and I was wondering if any of you had any issues with cannabis. My...
Parenting with uncontrolled Epilepsy

04/2019 | 2 Comments

I have Epilepsy that is not controlled fully, though I take a lot of medicine. I have an anxiety disorder, too. My husband has Bipolar. Does anyone...
Running Out of Time

04/2019 | 6 Comments

A month ago I had a seizure in my sleep. Since I live alone, I was unaware of what happened until I went to a doctor and was diagnosed with very mild...
VNS questions

04/2019 | 3 Comments

Hi I'm almost 21 and have been living with epilepsy since I was 9. I've been an extremely active human being ever since I can remember, I had a VNS...
VNS questions

04/2019 | 0 Comments

I am in search of a solution! Does anyone have ideas or know of any devices for attaching the magnet to my VNS in my chest while I exercise? The...
IVIG - Epilepsy

04/2019 | 0 Comments

Hello, I would like to ask if someone had undergone IVIG treatment for seizures after AEDs failed? Is it effective and any side effects? Please share...
Laser Ablation Surgery

04/2019 | 5 Comments

Hello everyone. Here is a little bit about my situation. I am 40 years old and have suffered from refractory epilepsy for over 5 years. Because I have...

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