Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Living With Epilepsy - Adults

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Need information..

05/2020 | 1 Comments

Can anyone point me in the direction of a detailed article on how seizures work.. I find so many saying g what the are but none on how the actually...
Exercise induced seizures?

05/2020 | 6 Comments

Hello, I'm wondering if there's anyone else with epilipesy who has experienced the same thing as me. I was diagnosed with idiopathic epilipesy 6...
Guilt

05/2020 | 3 Comments

I've had epilepsy for 23 years and I STILL struggle with guilt. My family and friends are beyond amazing with working around my limitations even...
JME strugling for 1st time

05/2020 | 1 Comments

Hi all, I was diagnosed with JME when I had violent twitches every morning from 18yo (2008) but wasn't under meds until I have a tonic-clonic seizure...
ALS risk and epilepsy

05/2020 | 0 Comments

Hi! So I just watched a documentary about ALS (Lou Gehrig’s) and have a question. Do epileptics have a higher risk of getting this disease than the...
When is it good enough?

04/2020 | 3 Comments

I'm only having nocturnal seizures. About two a month. Sometimes I'm extra tired the next day or two. Other times I wouldn't know if my wife didn't...
Will I ever be me again

04/2020 | 2 Comments

Hello Everyone, I recently joined this foundation, am from Nigeria. I had my first seizure in May 2018 (29yr) ever since then it’s been on and off...
Epilepsy Surgery (Veterans)

04/2020 | 1 Comments

Have any vets had epilepsy surgery and seen an increase in VA compensation as a result? Last year I saw a significant change in my epilepsy, which led...
Epilepsy destroyed my life

04/2020 | 2 Comments

When i was 10 years old in 1990 i started getting a feeling like twitchy tingly electricity was shooting through my mouth. It was a seizure aura. The...
Keppra and side effects?

04/2020 | 3 Comments

hi i have been an epileptic since i was 9 and I am now 25. I have switched and altered my medicine many times growing up. Currently I am on Onfi 10mg...
Side effects of medications

04/2020 | 5 Comments

Hi everyone! My name's Jess and I'm new here. I was diagnosed with epilepsy this past month after my second grand mal seizure while at work. They...
A Quick Question About Sleep Apnea

04/2020 | 1 Comments

So yesterday I went on a difficult hike and reality overdid it. When I got back home I spent time next to my bed on my knees doing my best to ward off...
A warning about Onfi/Clobazam

04/2020 | 8 Comments

I want to scream this from the rooftops because my experience was so awful. Of course, everyone is different and their bodies react differently...
My child has epilepsy for about 11 years

04/2020 | 2 Comments

Hii everyone, I belong to to India. This story belongs about my own son who has been suffering from epilepsy for about at the age of 2.5 years. When...
Epilepsy and Depression

04/2020 | 5 Comments

I have been having grand-mal seizures for about 15 years now. Recently I have been suffering from depression and have been seeking treatment from a...
Diet Triggers - Peanut Butter

04/2020 | 6 Comments

Hi everyone. I have complex partial seizures centered in the temporal and parietal lobes. I know all of my dietary triggers: caffeine (even chocolate...
Conscious through Grand mal

04/2020 | 2 Comments

Hi everyone. I’m new here. I’ve had epilepsy for almost 25 years now and I’ve never talked to anyone who has been awake for a grand mal seizure before...
Engineering and epilepsy

04/2020 | 2 Comments

Hi, I'm a junior majoring in Aerospace Engineering. I was diagnosed with epilepsy when I was 16 (I'm 23 now). Since then I've been on different...
Dizziness in morning

04/2020 | 7 Comments

Hi, I’ve had complex partial onset seizures for the last 10 years. Out of nowhere, the last few months about an hour or two after I wake up I start...

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