Community Forum Archive
Topic: Living With Epilepsy - Adults
A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.
05/2020 | 1 Comments
Can anyone point me in the direction of a detailed article on how seizures work.. I find so many saying g what the are but none on how the actually...
05/2020 | 6 Comments
Hello, I'm wondering if there's anyone else with epilipesy who has experienced the same thing as me. I was diagnosed with idiopathic epilipesy 6...
05/2020 | 3 Comments
I've had epilepsy for 23 years and I STILL struggle with guilt. My family and friends are beyond amazing with working around my limitations even...
05/2020 | 1 Comments
Hi all, I was diagnosed with JME when I had violent twitches every morning from 18yo (2008) but wasn't under meds until I have a tonic-clonic seizure...
05/2020 | 0 Comments
Hi! So I just watched a documentary about ALS (Lou Gehrig’s) and have a question. Do epileptics have a higher risk of getting this disease than the...
04/2020 | 3 Comments
I'm only having nocturnal seizures. About two a month. Sometimes I'm extra tired the next day or two. Other times I wouldn't know if my wife didn't...
04/2020 | 2 Comments
Hello Everyone, I recently joined this foundation, am from Nigeria. I had my first seizure in May 2018 (29yr) ever since then it’s been on and off...
04/2020 | 1 Comments
Have any vets had epilepsy surgery and seen an increase in VA compensation as a result? Last year I saw a significant change in my epilepsy, which led...
04/2020 | 2 Comments
When i was 10 years old in 1990 i started getting a feeling like twitchy tingly electricity was shooting through my mouth. It was a seizure aura. The...
04/2020 | 5 Comments
Im 44 now and for the last few years when i stretch -usually after waking so thankfully still laying down, often during or after yawning i drop into a...
04/2020 | 3 Comments
hi i have been an epileptic since i was 9 and I am now 25. I have switched and altered my medicine many times growing up. Currently I am on Onfi 10mg...
04/2020 | 5 Comments
Hi everyone! My name's Jess and I'm new here. I was diagnosed with epilepsy this past month after my second grand mal seizure while at work. They...
04/2020 | 1 Comments
So yesterday I went on a difficult hike and reality overdid it. When I got back home I spent time next to my bed on my knees doing my best to ward off...
04/2020 | 8 Comments
I want to scream this from the rooftops because my experience was so awful. Of course, everyone is different and their bodies react differently...
04/2020 | 2 Comments
Hii everyone, I belong to to India. This story belongs about my own son who has been suffering from epilepsy for about at the age of 2.5 years. When...
04/2020 | 5 Comments
I have been having grand-mal seizures for about 15 years now. Recently I have been suffering from depression and have been seeking treatment from a...
04/2020 | 6 Comments
Hi everyone. I have complex partial seizures centered in the temporal and parietal lobes. I know all of my dietary triggers: caffeine (even chocolate...
04/2020 | 2 Comments
Hi everyone. I’m new here. I’ve had epilepsy for almost 25 years now and I’ve never talked to anyone who has been awake for a grand mal seizure before...
04/2020 | 2 Comments
Hi, I'm a junior majoring in Aerospace Engineering. I was diagnosed with epilepsy when I was 16 (I'm 23 now). Since then I've been on different...
04/2020 | 7 Comments
Hi, I’ve had complex partial onset seizures for the last 10 years. Out of nowhere, the last few months about an hour or two after I wake up I start...