Will I ever be me again

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Hello Everyone, I recently joined this foundation, am from Nigeria. I had my first seizure in May 2018 (29yr) ever since then it’s been on and off depression for me. Am presently on 600mg tegretol daily and yet the seizures still occurs. I have had 3 seizures since the beginning of this year 2020 (Jan, March, April) I am confused, tired and depressed. I can’t just work into my doctors office without appointment and my next appointment is in June 2020. I think I am not on the right dosage of tegretol or maybe tegretol isn’t for me, I don’t know. Can constant intake of drug stop seizures reoccurrence? Will I still achieve my dreams and life back? Will I ever be me? The girl that always wanted to own a restaurant

Comments

Hi, Thank you for posting and

Submitted by Anonymous on Thu, 2020-04-30 - 07:56

Hi, Thank you for posting and we understand your concerns. It’s important to remember that you are not alone, and we are here to help support you. We know that living with epilepsy is more than seizures, it also means learning how to handle the way epilepsy affects your life including your physical well-being, social and emotional health. https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health . One of the most important things to help you live with epilepsy is to find a support network. The Epilepsy Foundation has many resources available that can help you find and build upon your support network. Contact your local Epilepsy Foundation, here: https://www.epilepsy.com/affiliates , or contact our 24/7 Helpline:1-800-332-1000, contactus@efa.org, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources, epilepsy.com/helpline . Treatment and how the body may react to certain medications varies for each individual. The goal of treatment with medicines should be –No Seizures and No Side Effects. However, we know that some individuals may experience too many side effects, that are very bothersome or cause other health problems. Be open and honest about how you’re feeling, and how this is affecting your health and daily life.To learn more about the medications you take and things to look for, visit: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/side-effect . We cannot determine if these symptoms you’re experiencing are related to your medication or a separate issue. It is common for some people living with epilepsy to report experiencing feelings of depression. It’s important that you’re continuing to address these challenges with your healthcare team who can work with you to help determine what individual treatment plan is best for you. It’s also important to address any changes in seizure types/frequency, side effects, moods or behaviors Many clinics and offices are now offering telemedicine options for non-emergencies if you’re unable to see your doctor in person currently. Ask your doctor’s if you can schedule a time to talk via phone/ other telemedicine resources you all can utilize, or if they can make any additional recommendations for you, prior to your scheduled appointment in June.You may also want to consider keeping a journal or a diary, to document how you are feeling and the symptoms you describe experiencing in detail, (like you've done in your post), which will be very helpful to review with your doctors. My Seizure Diary, can be used to organize health issues, track seizures, manage medications, develop seizure response plans, and more, which can be share with your healthcare team: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure diary

Hi, Thank you for posting and we understand your concerns. It’s important to remember that you are not alone, and we are here to help support you. We know that living with epilepsy is more than seizures, it also means learning how to handle the way epilepsy affects your life including your physical well-being, social and emotional health. https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health . One of the most important things to help you live with epilepsy is to find a support network. The Epilepsy Foundation has many resources available that can help you find and build upon your support network. Contact your local Epilepsy Foundation, here: https://www.epilepsy.com/affiliates , or contact our 24/7 Helpline:1-800-332-1000, contactus@efa.org, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources, epilepsy.com/helpline . Treatment and how the body may react to certain medications varies for each individual. The goal of treatment with medicines should be –No Seizures and No Side Effects. However, we know that some individuals may experience too many side effects, that are very bothersome or cause other health problems. Be open and honest about how you’re feeling, and how this is affecting your health and daily life.To learn more about the medications you take and things to look for, visit: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/side-effect . We cannot determine if these symptoms you’re experiencing are related to your medication or a separate issue. It is common for some people living with epilepsy to report experiencing feelings of depression. It’s important that you’re continuing to address these challenges with your healthcare team who can work with you to help determine what individual treatment plan is best for you. It’s also important to address any changes in seizure types/frequency, side effects, moods or behaviors Many clinics and offices are now offering telemedicine options for non-emergencies if you’re unable to see your doctor in person currently. Ask your doctor’s if you can schedule a time to talk via phone/ other telemedicine resources you all can utilize, or if they can make any additional recommendations for you, prior to your scheduled appointment in June.You may also want to consider keeping a journal or a diary, to document how you are feeling and the symptoms you describe experiencing in detail, (like you've done in your post), which will be very helpful to review with your doctors. My Seizure Diary, can be used to organize health issues, track seizures, manage medications, develop seizure response plans, and more, which can be share with your healthcare team: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure diary

Hi, Thank you for posting and we understand your concerns. It’s important to remember that you are not alone, and we are here to help support you. We know that living with epilepsy is more than seizures, it also means learning how to handle the way epilepsy affects your life including your physical well-being, social and emotional health. https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health . One of the most important things to help you live with epilepsy is to find a support network. The Epilepsy Foundation has many resources available that can help you find and build upon your support network. Contact your local Epilepsy Foundation, here: https://www.epilepsy.com/affiliates , or contact our 24/7 Helpline:1-800-332-1000, contactus@efa.org, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources, epilepsy.com/helpline . Treatment and how the body may react to certain medications varies for each individual. The goal of treatment with medicines should be –No Seizures and No Side Effects. However, we know that some individuals may experience too many side effects, that are very bothersome or cause other health problems. Be open and honest about how you’re feeling, and how this is affecting your health and daily life.To learn more about the medications you take and things to look for, visit: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/side-effect . We cannot determine if these symptoms you’re experiencing are related to your medication or a separate issue. It is common for some people living with epilepsy to report experiencing feelings of depression. It’s important that you’re continuing to address these challenges with your healthcare team who can work with you to help determine what individual treatment plan is best for you. It’s also important to address any changes in seizure types/frequency, side effects, moods or behaviors Many clinics and offices are now offering telemedicine options for non-emergencies if you’re unable to see your doctor in person currently. Ask your doctor’s if you can schedule a time to talk via phone/ other telemedicine resources you all can utilize, or if they can make any additional recommendations for you, prior to your scheduled appointment in June.You may also want to consider keeping a journal or a diary, to document how you are feeling and the symptoms you describe experiencing in detail, (like you've done in your post), which will be very helpful to review with your doctors. My Seizure Diary, can be used to organize health issues, track seizures, manage medications, develop seizure response plans, and more, which can be share with your healthcare team: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure diary

It's a rocky time period of

Submitted by Shalei on Wed, 2020-05-06 - 01:59

It's a rocky time period of trial and error with medications unfortunately. It's extremely frustrating. it took about 5 years for my doctor to finally find something. Don't get discouraged though, everyone is different! It's very normal to feel all kinds of fear and emotions with it all being so new especially. I've had it since I was 9 and I literally turned 32 yesterday so I'm pretty well versed in all the stress it brings to challenging your future and goals but honestly, you don't have to look at it as a catalyst but as a challenge that you CAN and WILL still achieve your goals!! It'll just take some extra work but you got this!!!! That's the important part is ruling it vs letting it rule you. Weirdly enough I have the same dream of owning a restaurant and life has thrown me some crazy hurdles but I'm working as a server and have been a bartender the last 10 years because that's what works for me and I'm still in the hospitality field where I'd like to be. have faith in yourself and learn to adapt to what life has thrown you. I promise it's not as terrible as it seems as much as it's a lot to deal with mentally processing it. You'll do great things if you put your mind to it :)