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Todd's Palsy/focal seizures
Thu, 10/10/2019 - 11:08When I have a seizure coming on I notice my thinking is slow, vision is hazzy/ aura, my left arm and leg sometimes becomes very weak and at times becomes limp meaning I can't move them. I get the far off starring face drawn look. U can holler at me and I don't respond its like you aren't even there. In a nut shell I'm some where over the rainbow until I come back to reality. I get a headache ,feel real tired, even real moody at times. I get needle feeling tingling on my top of head around to the back side and left side of head and left side of face. Sometimes I have tingling and numbness in left hand and fingers. My neurologist is treating it with keppra. I started using 500mg 2x daily, then went to 750mg 2 x daily, still have seizure spells so neurologist has just recently raised keppra to 1000mg 2x daily. I have done EEG test but they have been unable to catch it on the tests but when I was in hospital I had spell and that's when they gave me keppra to see for sure if it was a seizure and bingo 3hrs later I could move my arm but it was still weak and left leg moved but I staged it. When seizure finally ended I then could move leg normally but arm still was lazy and weak. Now 1 yr ago I had 2 strokes which is what has triggered the seizures from what my neurologist has determined. So currently I can not work or drive due to seizures and other health issues. Was wondering if anyone here suffers from this also or similar issues.
Hi bretruss, Thanks so much
Submitted by Anonymous on Fri, 2019-10-11 - 10:18
Hi bretruss, Thanks so much for posting, it sounds like you've been through a lot. Treatment varies for each individual, so it’s important that you continue to follow-up with your healthcare team and to determine what individual treatment plan is best for you and if you experience changes in seizure types, frequency, moods, behaviors, sides effects & symptoms. Seizures can take on many different forms and affect different people in different ways. Learn more about seizures,here: https://www.epilepsy.com/learn/about-epilepsy-basics/what-happens-during-seizureA key part of managing epilepsy is knowing how it can affect a person's independence and day-to-day needs. Visit our independent living pages and explore our employment section, to learn more about your legal rights, disability, reasonable accommodations and resources that are available to help: https://www.epilepsy.com/living-epilepsy/independent-living My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for not only tracking seizures, but recording your medical history, setting reminders, managing medications, side effects, moods, behaviors & triggers, which can be shared with your healthcare team. Creating a Seizure Response Plan or Action Plan: https://www.epilepsy.com/living-epilepsy/toolbox/seizure-forms to share with your family, friends and healthcare team, which is a helpful tool for those who are close to you to understand what do if you have seizure. Additionally, you may want to review our seizure alert device factsheet with your doctor, to see if a seizure alert device is an option for you: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdf One of the most important things to help you live with epilepsy is to find a support network. Learn more about your community support, here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concernsThe Wellness Institute: epilepsy.com/wellness ,has many helpful and easy-to-use tips &resources for maintaining a healthy lifestyle and maximizing the quality of life for you & your family. For practical & effective strategies to enhance your well-being, learn morehere: https://www.epilepsy.com/living-epilepsy/toolbox/wellness-support-toolsAdditionally, you may also contact our Epilepsy and Seizures 24/7 Helpline:1-800-332-1000 contactus@efa.org , where a trained information specialist can connect you to resources, provide referrals and additional support. epilepsy.com/helpline