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Support Group for Supporters
Sun, 01/26/2020 - 11:37Hi. My husband was diagnosed with epilepsy a several years ago; general and localized epilepsy. He started having seizures very shortly before we met, so we are basically learning about epilepsy together. We've been to some support groups. Sometimes supporters of people with epilepsy will attend the groups, which has been great for me and them. It feels good to be able to connect with others that know the specific position I am in: worrying about my husband, exhaustion and frustration when dealing with his memory issues, guilt for feeling frustrated about his lack of memory, etc. I have since kept in contact with a wife I met at a support group.
In meeting other supporters of people with epilepsy, we realized that we could use our own support group. I am considering starting a group for supporters of people with epilepsy and wanted to know if anyone has started one, or if they already exist.
Comments
Thank you for the information
Submitted by gaspatio on Mon, 2020-01-27 - 15:03
Thank you for the information. Also, I realized that I posted this is in the wrong forum. I will respot in the appropriates forum.
Hi,Thank you for posting.
Submitted by Anonymous on Mon, 2020-01-27 - 08:39
Hi,Thank you for posting. Caring for someone with a chronic condition such as epilepsy can be overwhelming and stressful. It’s important to remember that you are not alone, and that you’re making your health and overall well-being a priority too. https://www.epilepsy.com/sites/core/files/atoms/files/Caregivers%20and%20epilepsy%20factsheet.pdf We are glad to hear that you have connected with others who care for individuals living with epilepsy,to better help support you and your important role. The Epilepsy Foundation has many resources available that can help you find and build your support network. Contact your local Epilepsy Foundation, here: https://www.epilepsy.com/affiliates , to find support groups, events, and programs in your community, or contact our 24//7 Helpline: 1-800-332-1000, contactus@efa.org, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources, epilepsy.com/helpline Check with the nearest epilepsy center, for additional support groups, educational sessions and helpconnecting you with other families: https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist/find-epilepsy-centerConnect with others in our online community via the forms and chat room: https://www.epilepsy.com/connectAdditionally, the WellnessInstitute: epilepsy.com/wellness ,provides tools and strategies to better assist your loved one and support you. For practical & effective strategies to enhance your well-being while also caring for someone else, please visit: https://www.epilepsy.com/living-epilepsy/toolbox/wellness-support-tools