Seeking an Epilepsy Community

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Hello: I have a daughter (24). She has intractable epilepsy. We are looking for a thriving happy, community in which she can live safely. She is a regional center client and receives resources for care. I’m willing to invest some resources into her future, but I want her to be in a thriving community. Ideally: She will be around other epileptics that are motivated to move beyond their limitations. She will be in a city in California where she can experience some level of independence while she maintains resources to keep her safe: Seizure rescue and care if she has one She will find her niche’ in life with resources that will help her launch her individual and career goals. Do you know if such a thing exists anywhere in California? Any leads, referrals, or information would be most appreciated. Thanking you in advance. Sincerely, Vicki

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Hi, Thanks for posting.

Submitted by Anonymous on Mon, 2019-12-23 - 08:47

Hi, Thanks for posting. Michael has given you some great advice and suggestion. To learn more about public transportation resources, please visit: https://www.epilepsy.com/living-epilepsy/driving-and-transportation/transportation. One of the most important things to help your daughter live with epilepsy is to find a support network. Learn more about your community support resources, here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concerns In many communities, the local Epilepsy Foundation offers programs that help people with epilepsy to find jobs. Find your local Epilepsy Office, here: epilepsy.com/localsupport Explore the employment section of our website, to help manage the impact of epilepsy on work, learn more about legal rights and reasonable accommodations: https://www.epilepsy.com/living-epilepsy/independent-living/employment-help-what-you-need-knowFor additional information and resources regarding employment, please visit: https://www.ssa.gov/work/https://askjan.org/https://www.gettinghired.com/A key part of managing epilepsy is knowing how it can affect a person's independence and day-to-day needs. Visit our independent living pages here: https://www.epilepsy.com/living-epilepsy/independent-living to learn more about resources that are available & when help is needed. Create a seizure response or action plan, which is a helpful tool for those close to your daughter to understand what do if she has a seizure: https://www.epilepsy.com/living-epilepsy/toolbox/seizure-forms Track seizures, record medical history, set reminders, record side effects,moods, or other personal experiences, by using a diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryLearn how to live with seizures, potential risks and safety tips: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe Review our seizure alert device factsheet with her doctor’s, to see if a seizure alert device is an option for her https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfhttps://www.dannydid.org/It’s common for those who are in caregiver role to feel overwhelmed, but it is just as important to make sure you’re taking care of yourself as well.https://www.epilepsy.com/living-epilepsy/parents-and-caregivers It can be helpful to connect with other parents who may have similar experiences, to ask questions, find &give support to each other, by visiting: https://www.epilepsy.com/living-epilepsy/parents-and-caregivers/parents-helping-parents Or contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help,hope, support, guidance, and access to national and local resources. 1-800-332-1000, contactus@efa.org. epilepsy.com/helpline

Hi, Thanks for posting. Michael has given you some great advice and suggestion. To learn more about public transportation resources, please visit: https://www.epilepsy.com/living-epilepsy/driving-and-transportation/transportation. One of the most important things to help your daughter live with epilepsy is to find a support network. Learn more about your community support resources, here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concerns In many communities, the local Epilepsy Foundation offers programs that help people with epilepsy to find jobs. Find your local Epilepsy Office, here: epilepsy.com/localsupport Explore the employment section of our website, to help manage the impact of epilepsy on work, learn more about legal rights and reasonable accommodations: https://www.epilepsy.com/living-epilepsy/independent-living/employment-help-what-you-need-knowFor additional information and resources regarding employment, please visit: https://www.ssa.gov/work/https://askjan.org/https://www.gettinghired.com/A key part of managing epilepsy is knowing how it can affect a person's independence and day-to-day needs. Visit our independent living pages here: https://www.epilepsy.com/living-epilepsy/independent-living  to learn more about resources that are available & when help is needed. Create a seizure response or action plan, which is a helpful tool for those close to your daughter to understand what do if she has a seizure:  https://www.epilepsy.com/living-epilepsy/toolbox/seizure-forms Track seizures, record medical history, set reminders, record side effects,moods, or other personal experiences, by using a diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryLearn how to live with seizures, potential risks and safety tips: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe Review our seizure alert device factsheet with her doctor’s, to see if a seizure alert device is an option for her https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfhttps://www.dannydid.org/It’s common for those who are in caregiver role to feel overwhelmed, but it is just as important to make sure you’re taking care of yourself as well.https://www.epilepsy.com/living-epilepsy/parents-and-caregivers  It can be helpful to connect with other parents who may have similar experiences, to ask questions, find &give support to each other, by visiting:  https://www.epilepsy.com/living-epilepsy/parents-and-caregivers/parents-helping-parents  Or contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help,hope, support, guidance, and access to national and local resources. 1-800-332-1000, contactus@efa.org. epilepsy.com/helpline

Hi, Thanks for posting. Michael has given you some great advice and suggestion. To learn more about public transportation resources, please visit: https://www.epilepsy.com/living-epilepsy/driving-and-transportation/transportation. One of the most important things to help your daughter live with epilepsy is to find a support network. Learn more about your community support resources, here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concerns In many communities, the local Epilepsy Foundation offers programs that help people with epilepsy to find jobs. Find your local Epilepsy Office, here: epilepsy.com/localsupport Explore the employment section of our website, to help manage the impact of epilepsy on work, learn more about legal rights and reasonable accommodations: https://www.epilepsy.com/living-epilepsy/independent-living/employment-help-what-you-need-knowFor additional information and resources regarding employment, please visit: https://www.ssa.gov/work/https://askjan.org/https://www.gettinghired.com/A key part of managing epilepsy is knowing how it can affect a person's independence and day-to-day needs. Visit our independent living pages here: https://www.epilepsy.com/living-epilepsy/independent-living to learn more about resources that are available & when help is needed. Create a seizure response or action plan, which is a helpful tool for those close to your daughter to understand what do if she has a seizure: https://www.epilepsy.com/living-epilepsy/toolbox/seizure-forms Track seizures, record medical history, set reminders, record side effects,moods, or other personal experiences, by using a diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryLearn how to live with seizures, potential risks and safety tips: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe Review our seizure alert device factsheet with her doctor’s, to see if a seizure alert device is an option for her https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfhttps://www.dannydid.org/It’s common for those who are in caregiver role to feel overwhelmed, but it is just as important to make sure you’re taking care of yourself as well.https://www.epilepsy.com/living-epilepsy/parents-and-caregivers It can be helpful to connect with other parents who may have similar experiences, to ask questions, find &give support to each other, by visiting: https://www.epilepsy.com/living-epilepsy/parents-and-caregivers/parents-helping-parents Or contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help,hope, support, guidance, and access to national and local resources. 1-800-332-1000, contactus@efa.org. epilepsy.com/helpline

If your daughter is over the

Submitted by Misjoey101 on Fri, 2020-01-24 - 17:41

If your daughter is over the age of 18, the CA Department of Rehabilitation helps disabled individuals find desired locations or help them get transportation or jobs. There is at least one in every county(or around any major city).