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R.E Right Temporal Lobectomy

Wed, 02/05/2020 - 06:20
Hey all I had right temporal lobectomy for a cavernous malformation on my right temporal lobe. 10 yrs later I now can't handle stress and have explosive attacks of rage, my short memory is horrible, I am having panic attack type symptoms which I would feel like I'm falling and dizzy like a seizure. I have told the doctors it's brain related but they don't seem to listen and I went to a neurologist who I couldn't even understand his language when trying to speak English so I was a bit hesitant to take what he prescribed me. Has anyone experienced this panic attack feeling at all and what medication helps them please or any advice??? I currently am on 200mgs Dilatin and 400mgs sodium vaproate and not effective.... Please help me as this is taking a major effect on my life


Hi, Thank you for posting, it

Submitted by Anonymous on Wed, 2020-02-05 - 09:42
Hi, Thank you for posting, it sounds like you’ve been through lot. We understand this must be very upsetting and frustrating for you to experience, especially if you feel like your doctors are not listening to your concerns. It's best that you follow-up with your healthcare team, (that you’re comfortable with) to address your difficulties in regulating your mood and behavior, increase in stress and issues with your short term memory, to determine what individual treatment plan is best for you. To learn more about the challenges with epilepsy and things to review with your doctors, please visit: can be challenging to find a healthcare team that you're comfortable working with. if you feel you cannot talk openly with your doctors or that you aren’t working towards the same goals, it may be time to get a second opinion. For information regarding second opinions, or assistance finding an epileptologist (epilepsy specialist) near you, please visit: and how the body may react to certain medications varies for each individual. The goal of treatment with medicines should be –No Seizures and No Side Effects. However, we know that some individuals may experience too many side effects, that are very bothersome or cause other health problems.To learn more about medications you take and things to look for: We know that living with epilepsy is more than seizures, it also means learning how to handle the way epilepsy affects your life including your physical well-being, social and emotional health. key part of managing seizures and epilepsy is knowing how it can affect a person's independence and day-to-day needs.You may want to consider participating in treatment, seizure and lifestyle management programs, which can help people with epilepsy learn skills to better manage their epilepsy and its effects on daily life: how you’re feeling in detail (like you’ve done in your post), will be very helpful to review with your doctors. My Seizure Diary: a great tool for identifying & tracking seizures, setting reminders,managing medications & side effects, recording medical history, moods, behaviors, triggers,and other therapies or personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team. Additionally, it's important to remember that you are not alone, and we are here to help support you. If you ever need to speak with someone please contact our Epilepsy and Seizures 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, connect you to resources, provide referrals and additional support. 1-800-332-1000, or 

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