The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Provoked or not

Mon, 10/28/2019 - 11:16
Hello there! Last summer, almost 1.5 year ago I had a Tonic Clonic in my sleep at the age of 28. It is the only one I have had. My gf contacted an ambulance and I had to run CT scans and several other tests with no abnormal findings. A year after my final examination, I looked at my medical journal and fond they had written ¨A typical Unprovoked first time seizure of unknown source¨. It even says I had slept well, which says a lot about how much they rush through things. Even though I told the doctors all about the time that probably led to the seizure. For both legal and personal reasons I would like to gain some insight from you. I Have understand that having an unprovoked seizure in the medical history can lead to some restrictions. In chronological order, what probably lead up to my seizure where some what as follows: (Short version below) I had been long time stressed out about my economical situation, since I had been unemployed for about 8 months, only been working at my families company in a few days a month. For the same time i had been worried about my long distance relationship that I felt was not going to last much longer if nothing happened with my career and knowing what city to live in. (These were just small factors, but could have been affecting me) I had just started to take some allergy pills against hay fever, witch I after looked up can have a bad affect on people with seizure. I had an opportunity for a job, which required me to go a quite intense full day course in a different city and the 3-4 nights before i had gotten around 4-5h sleep per night since the really hot summer and bright light from missing curtains, while worrying about my current situation. The day of the course I had to get up before 6 am when I usually went up at 11 since lack of good sleep and I didnt have time or any hunger for any breakfast. I just bought a NOCCO energy drink on the way. I skipped lunch since it was still before my regular breakfast time. I met up with my GF and her friend when the course was finished at around 8 pm. They had dinner at a fancy restaurant, but since my economy, i just settled with the smallest basket of french fries I have ever seen. I was still to tired to think of food, but probably needed som energy from it. At 11 pm we decided to drive the 2 hour drive back home instead of staying in the city. I was so tired that when less than 30 min left home, I opened the NOCCO, which apparently had more caffeine then 2 red-bulls. I finished it just when parking and within 5 minutes I was in bed. I Remember the caffeine from the energy drink was fighting my tiredness and felt like my brain was att full speed and full break at the same time. Probably trying to process all information from the course. It was still so bright and warm, but to battle the energy drink I put a sweatshirt over my face to cover the bright light from the windows. I woke up after a few minutes, all soaked in sweat, but put the sweatshirt back on and fell asleep. Next I woak up with my girlfriend worried sick and told me I had som kind of seizure and had called an ambulance. So, short version: Long time stress - economical and relationship Allergy pills Lack of sleep- Never had been so tired in my life Low blood sugar - No breakfast, minor dinner and just a small dinner the night before. Mentally strained High caffeine during sleep Overheated, possible lack of oxygen from the sweatshirt It doesn't sound like a great combo, and I know any of these factor doesn't really count for as a provoked factor except from maybe the blood sugar if it was more extreme, but I have never read anything about several factors together would count as a provoked seizure. Would you say all this together would fit under the terms provoked? It would be nice to hear if i should except any seizure in the future or if this was just a bad combo of events that I probably never will be near of again. I have read that really low blood sugar can lead to something called hypoglycemic seizure. Even for people not diagnosed with diabetes. I probably had some blood sugar left since the french fries ¨dinner¨ but together with the caffeine (which can affect the bodys blood sugar regulation) can that have lead up to it? Some interesting read: Hypoglycemia is commonly linked to diabetes. This refers to lower than normal blood sugar levels. However, you can experience hypoglycemia without having diabetes, in which case it's called nondiabetic hypoglycemia. Balancing blood sugar is crucial regardless of whether you have diabetes, since glucose plays a major role in fueling your body. Caffeine, which is commonly consumed in a wide variety of beverages and other forms, can disrupt your natural blood glucose balance. Unfortunately it doesn't show any lack of bloodsugar in my bloodsample since I got glucose from the ambulance so Im just assuming here. Anyone have any experience of something similar? Thanks for your insight in this! /G


You can always request an

Submitted by Patriotrehab on Fri, 2019-11-01 - 22:16
You can always request an amendment to your medical records by submitting a formal  written request and provide your explanation, which you would simply state that you believe “over exertion” was the cause. However, I don’t know that it meets the standard to have it changed from “unprovoked” to “provoked”. You haven’t technically been diagnosed with epilepsy yet based on what you said the doctor diagnosed you with, so that’s in your favor. As far as scuba diving as an example goes, this website suggests that most diving doctors require that you be seizure free without medication before they will make a consideration because the risks increase substantially and are potentially fatal. After that the diver must ultimately decide if that risk is too much. Given that your blood sugar level was within normal limits when the blood sample was taken even though you had received an emergency glucose injection as a precaution in the ambulance (unless of course they checked you with a finger stick and determined it was necessary to treat low blood sugar) ... I don’t think you have a chance at getting it amended based on a low blood sugar. Doctors are reluctant to amend records anyway and when they do, there is usually a note that the record has been amended and so there is a usually a record of the old diagnosis or original record, which may still present you with the same problems especially if the record was amended at your request. Diagnosis is usually only changed if something shows up on a medical test to justify the change or if there is new and convincing evidence to state otherwise. Sleep deprivation and over exertion are considered triggers for many people who have epilepsy, but unlike photosensitive seizures or metabolic seizures or other nonepileptic seizures...they do not qualify as being “provoked”

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.