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Recently I've had a strange part of me where I just want to be alone in my home. I don't want to go anywhere outside of the house. I'm not afraid of it. But from what I'm feeling to myself is to just to relax and to get something I need when the stores are almost closed. I get my meds in a drive through window. And I take a 3mg melatonin to help me sleep. Tonight I slept from 10:30 to 12. And it's happened before that I'll be awake till the sun comes up. This is flippin' crazy. Is this is a repetitive behavior I need to learn how to live? My wife and two children live in another place. And I'm so glad I live by myself. Nobody else can fathem about what I battle through. Well, except my neurologist.

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Hi, Thank you for posting.

Submitted by Anonymous on Tue, 2019-11-26 - 09:24

Hi, Thank you for posting. Practicing good sleep habits is important for both physical and mental health. https://www.epilepsy.com/sites/core/files/atoms/files/Sleep%20factsheet.pdf Not enough, or poor quality of sleep is a common trigger for some individuals living with epilepsy. It's important that you discuss your difficulties with sleep and address any additional concerns you may have with your healthcare team, or if you experience changes in seizures types/frequency, moods, behaviors, sides effects & symptoms. This will help to determine what individual treatment plan is best for you. To learn more about the importance of sleep & seizure control, please visit: https://www.epilepsy.com/learn/triggers-seizures/lack-sleep-and-epilepsyTreatment and how your body may react to certain medications, including supplements like melatonin, varies for each individual. When discussing your concerns with your neurologist, it’s important that you also review all medications or supplements you take to make sure they’re not interfering with each other. To learn more about the medications & supplements you’re taking, please visit: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-medication-listhttps://www.epilepsy.com/learn/treating-seizures-and-epilepsy/other-treatment-approaches/herbal-therapy A key part of managing epilepsy is knowing how it can affect a person's independence and day-to-day needs. Visit our independent living pages here: https://www.epilepsy.com/living-epilepsy/independent-living to learn more about things to consider for independent living , resources that are available & when help is needed. There are many different devices that can help detect seizures and notify someone to help respond. Review our seizure alert device factsheet with your doctor to see if a seizure alert device is an option you: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdf Consider keeping a journal or a seizure diary. My Seizure Diary can help identify & track seizures, record medical history, set reminders, manage medications, side effects, moods, behaviors, recognizing triggers and health events that may affect seizures and wellness, which can be shared with your healthcare teamhttps://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryAdditionally, you may always contact our Epilepsy and Seizures 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources.1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline

Hi, Thank you for posting. Practicing good sleep habits is important for both physical and mental health. https://www.epilepsy.com/sites/core/files/atoms/files/Sleep%20factsheet.pdf Not enough, or poor quality of sleep is a common trigger for some individuals living with epilepsy. It's important that you discuss your difficulties with sleep and address any additional concerns you may have with your healthcare team, or if you experience changes in seizures types/frequency, moods, behaviors, sides effects & symptoms. This will help to determine what individual treatment plan is best for you. To learn more about the importance of sleep & seizure control, please visit: https://www.epilepsy.com/learn/triggers-seizures/lack-sleep-and-epilepsyTreatment and how your body may react to certain medications, including supplements like melatonin, varies for each individual. When discussing your concerns with your neurologist, it’s important that you also review all medications or supplements you take to make sure they’re not interfering with each other. To learn more about the medications & supplements you’re taking, please visit: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-medication-listhttps://www.epilepsy.com/learn/treating-seizures-and-epilepsy/other-treatment-approaches/herbal-therapy A key part of managing epilepsy is knowing how it can affect a person's independence and day-to-day needs. Visit our independent living pages here: https://www.epilepsy.com/living-epilepsy/independent-living  to learn more about things to consider for independent living , resources that are available & when help is needed. There are many different devices that can help detect seizures and notify someone to help respond. Review our seizure alert device factsheet with your doctor to see if a seizure alert device is an option you: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdf    Consider keeping a journal or a seizure diary. My Seizure Diary can help identify & track seizures, record medical history, set reminders, manage medications, side effects, moods, behaviors, recognizing triggers and health events that may affect seizures and wellness, which can be shared with your healthcare teamhttps://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryAdditionally, you may always contact our Epilepsy and Seizures 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources.1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline   

Hi, Thank you for posting. Practicing good sleep habits is important for both physical and mental health. https://www.epilepsy.com/sites/core/files/atoms/files/Sleep%20factsheet.pdf Not enough, or poor quality of sleep is a common trigger for some individuals living with epilepsy. It's important that you discuss your difficulties with sleep and address any additional concerns you may have with your healthcare team, or if you experience changes in seizures types/frequency, moods, behaviors, sides effects & symptoms. This will help to determine what individual treatment plan is best for you. To learn more about the importance of sleep & seizure control, please visit: https://www.epilepsy.com/learn/triggers-seizures/lack-sleep-and-epilepsyTreatment and how your body may react to certain medications, including supplements like melatonin, varies for each individual. When discussing your concerns with your neurologist, it’s important that you also review all medications or supplements you take to make sure they’re not interfering with each other. To learn more about the medications & supplements you’re taking, please visit: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-medication-listhttps://www.epilepsy.com/learn/treating-seizures-and-epilepsy/other-treatment-approaches/herbal-therapy A key part of managing epilepsy is knowing how it can affect a person's independence and day-to-day needs. Visit our independent living pages here: https://www.epilepsy.com/living-epilepsy/independent-living to learn more about things to consider for independent living , resources that are available & when help is needed. There are many different devices that can help detect seizures and notify someone to help respond. Review our seizure alert device factsheet with your doctor to see if a seizure alert device is an option you: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdf Consider keeping a journal or a seizure diary. My Seizure Diary can help identify & track seizures, record medical history, set reminders, manage medications, side effects, moods, behaviors, recognizing triggers and health events that may affect seizures and wellness, which can be shared with your healthcare teamhttps://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryAdditionally, you may always contact our Epilepsy and Seizures 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources.1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline

new problems

Comments

Hi, Thank you for posting.

Submitted by Anonymous on Tue, 2019-11-26 - 09:24

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