Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Memory And Neuropsychological tests.. . kicked out?!

Tue, 06/14/2011 - 19:40

Wondering if anyone has ever had to discontinue their memory/neuropsych testing due to inconsistent unreliable results?

I went for testing for the first time today and after an hour of doing word and shape memory tests, (which I really was trying at) the Dr came in and said that they had to discontinue because the results weren't reliable and wouldn't help them diagnose me.

They said that people with senile dementia living in a nursing home had scored better than I had on those specific tests, and I couldn't be that badly off because I am a young mom at home with two small children, right?

I do appear to be pretty high functioning, but my memory and cognition and destroyed. . .

I asked why that would happen, and they said that they dodn't think I was trying to do it, but that sleep, medication, pain level, or unconscious stress could have made the answers different?! 

They said they will try again in a month . . . but  my question is, does anyone know about this?

Do I just look like a big faker?

Can you even fake these tests?

Thanks!

 

Comments

Re: Memory And Neuropsychological tests.. . kicked out?!

Submitted by princesscakes on Mon, 2011-07-11 - 18:53
Do they even have a diagnosis for you ? Maybe they should look into more scientific avenues of testing like gene test or such maybe the doctor doesn't know what to test for but if you have changes in cognitive abilities its a start to look somewhere else . I don't know just a thought.

Re: Memory And Neuropsychological tests.. . kicked out?!

Submitted by FK on Tue, 2011-07-12 - 21:20

Do you have TLE?    I have TLE and hippocampal sclerosis, affecting my recent memory.   I'm also on 3 AED's.  I don't seem to have much of a problem conceptualizing things I see or hear, but I do have a difficult time remembering with words, names, etc., from my recent past.  I've had many tests with various results.  For example, if I am given list of 20 words all related in some way, then told to repeat them, I may only come up with 3 of the 20.  However, if 100 words are repeated to me, I would immediately be able to identify which were the 20 original words.   It is definitely possible to have fairly serious memory issues, yet be able to function reasonably well.  Only people who know me well notice how my memory appears to be gradually deteriorating.  However, no one, including my neurologist, expects me to develop severe dementia whereby I am unable to function on my own. 

Do you have TLE?    I have TLE and hippocampal sclerosis, affecting my recent memory.   I'm also on 3 AED's.  I don't seem to have much of a problem conceptualizing things I see or hear, but I do have a difficult time remembering with words, names, etc., from my recent past.  I've had many tests with various results.  For example, if I am given list of 20 words all related in some way, then told to repeat them, I may only come up with 3 of the 20.  However, if 100 words are repeated to me, I would immediately be able to identify which were the 20 original words.   It is definitely possible to have fairly serious memory issues, yet be able to function reasonably well.  Only people who know me well notice how my memory appears to be gradually deteriorating.  However, no one, including my neurologist, expects me to develop severe dementia whereby I am unable to function on my own. 

Re: Memory And Neuropsychological tests.. . kicked out?!

Submitted by momashleigh on Wed, 2011-07-20 - 13:44

Thank you, that sounds so familiar to my results!

I actually had my retesting yesterday, and they discontinued AGAIN!

I can tell you beyond a shadow of a doubt that I was not stressed, well-fed and rested, and in a really good mind set. I brought my A game!  I thought I was doing much better than last time, but they said that the results (some of them) appeared invalid.

 I have a porencephalic cyst in my right occipital/temporal lobe. . . no seziures on EEG, so no diagnosis. But I had a tonic clonic seizure in 2009 and I woke up like this (memory problems, facial numbness, space cadet)

Here's what I npoticed yesterday:

 I would be focusing on a word list, and then its like my brain would drop the thread. In a second, my focus and understanding of the task was GONE. Wiped out. It happened in spatial tasks, auditory and visual memory, anything that I was intensely concentrating on.

DOes this sound like simple partial seziures? That would explain why my answers are inconsistent. . .

To be honest, I glad that it happened again. It shows them that their preconceived notions of how high functioning I am are wrong. I am positive that no outside influences played a factor this time. Maybe now we can have an honest conversation about how to move forward in recognizing and treating my learning disability.

As far as what the doctor said, out of context it seems horrible. But I think she was really freaked out. I think she couldn't come to grips with the scores, and wanted an accurate benchmark. I mean, the week before we had a great conversation about a bunch of stuff, including the fact that I am my own worst enemy, because I appear to be very intellgent when you talk to me but it hides the very real problems I have.

On paper I am not that person. . .

Thank you, that sounds so familiar to my results!

I actually had my retesting yesterday, and they discontinued AGAIN!

I can tell you beyond a shadow of a doubt that I was not stressed, well-fed and rested, and in a really good mind set. I brought my A game!  I thought I was doing much better than last time, but they said that the results (some of them) appeared invalid.

 I have a porencephalic cyst in my right occipital/temporal lobe. . . no seziures on EEG, so no diagnosis. But I had a tonic clonic seizure in 2009 and I woke up like this (memory problems, facial numbness, space cadet)

Here's what I npoticed yesterday:

 I would be focusing on a word list, and then its like my brain would drop the thread. In a second, my focus and understanding of the task was GONE. Wiped out. It happened in spatial tasks, auditory and visual memory, anything that I was intensely concentrating on.

DOes this sound like simple partial seziures? That would explain why my answers are inconsistent. . .

To be honest, I glad that it happened again. It shows them that their preconceived notions of how high functioning I am are wrong. I am positive that no outside influences played a factor this time. Maybe now we can have an honest conversation about how to move forward in recognizing and treating my learning disability.

As far as what the doctor said, out of context it seems horrible. But I think she was really freaked out. I think she couldn't come to grips with the scores, and wanted an accurate benchmark. I mean, the week before we had a great conversation about a bunch of stuff, including the fact that I am my own worst enemy, because I appear to be very intellgent when you talk to me but it hides the very real problems I have.

On paper I am not that person. . .

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.