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Medical Marijuana and Juvenile Myoclonic Epilepsy

Thu, 04/21/2016 - 21:23
Hello, I was diagnosed with Juvenile Myoclonic Epilepsy in my early teens and I am currently in my mid-twenties. I do smoke marijuana every night to help me sleep and I am in a state that allows medical marijuana. I have tonic clonic seizures and I am currently on Lamictal and Keppra. In the past, if I smoked marijuana that was too potent in THC, I became paranoid and sometimes induce mild seizures (twitches). Now, I have a medical marijuana card and I purchased marijuana with a high percentage of CBD and a low percentage of THC. Medical marijuana does not interact with the epilepsy but I would like to wean off of Keppra but I am a bit nervous to do so. I was wondering if anyone with JME has ever switched to medical marijuana and what was your story. Thanks

Comments

I'd like to know if the weed

Submitted by margiefox118@live.com on Mon, 2016-04-25 - 11:28
I'd like to know if the weed  has helped your seizures.I am a regular user but this does not control mine, It eases my mind, helps me deal with them and sleep also,I still need my regular meds to have any control of my seizures. I have had epilepsy for 45 years since 16 yrs old. I am thankful my meds at least stave off the worst but I still have daily partials Why do want to go off Keppra if it Helps with your seizures?? I have tried all kinds of drugs- if any completely controlled mine I'd be thrilled.Bear in mind that your brain needs help to function normally. You must consult your neurologist for the best way to go off Keppra just like any other drug. Please tell me if your regular use of marijuana has helped at all. Thanx   

Hello i would like to say

Submitted by ShelbyN on Mon, 2017-04-24 - 13:46
Hello i would like to say that i have had JME since i was 10 years old. I have been on Depakote and it has done wonders for me. I realize that it is not medical marijuana but it has served it's purpose. I will be winged off to a different medication for when I would like to be a mother. Hope it helps.

Hi Kay. My names is Brent.I

Submitted by Von1119496 on Sat, 2017-05-20 - 21:38
Hi Kay. My names is Brent.I was diagnosed with JME in my early twenties.I have been taking 200mg of Lamotrigine twice a day for five years now, and have recently added Med.marijuana.It took a few months to get the Lamotrigine dose right, and the side affects are minimal.The worst I experience is a migraine, and thats only after missing a few doses.Now, this is where cannabis comes in. I started smoking not as a replacement, but as a supplement, and I really enjoy smoking. So, say for whatever reason I forget my meds. For those few days cannabis acts kinda like a buffer.Once again finding the correct dose can take some time.However finding the right strain is more important then dosing. If she were an adolescent then dosing would be more critical. Knowing that she has smoked before should take a lot of the anxiety away from the subject, so I would try asking her about how to get things started.I bet she can answer just about every to question you have, and then some.I only mentioned my medication because I recommend it over everything else I've tried, so if you haven't already go talk to your neurologist about it. 

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