Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Focal epilepsy symptom = emotional anguish, anyone else?
Sun, 10/27/2019 - 19:23I only have focal seizures. I am looking for anyone who inderstand these feelings. When my seizure strikes this feeling of an intense emotional pain races up on me and in my head im thinking “i cant take this, it has to stop or I have to die”. I am not suicidal, just being honest about my experience. It is only during my seizure. Anyway, during or near the end of this mental torture, I sometimes have diarrhea or vomit. Annnyyyone else? I feel super alone with this.
Comments
Hi katec1, Thanks for posting
Submitted by Anonymous on Mon, 2019-10-28 - 07:30
Hi katec1, Thanks for posting, you are not alone, and we are here to help support you! If you ever need to speak with someone you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000 contactus@efa.org. epilepsy.com/helpline It’s important that you’re discussing any concerns you may have and if you continue to experience these symptoms, changes side effects, seizure types, frequency & behaviors, with your healthcare team to determine what individual treatment plan is best for you. Seizures can take on many different forms and affect different people in different ways. Learn more about seizures and here: https://www.epilepsy.com/learn/about-epilepsy-basics/what-happens-during-seizure https://www.epilepsy.com/learn/types-seizures It’s also important to recognize that epilepsy is more than just seizures, overall well-being and emotional health is just as important: https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health The Wellness Institute: epilepsy.com/wellness ,has many helpful and easy-to-use tips & resources for maintaining a healthy lifestyle and maximizing the quality of life for you & your family. For practical & effective strategies to enhance your well-being, learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/wellness-support-tools
I understand how you feel. I
Submitted by bretruss on Sun, 2019-11-10 - 18:28
I understand how you feel. I get the same symptoms. My focal seizures are like everything is in slow motion then I don't remember anything till I come out of it. My wife who is a nurse says its like trying to talk to someone with dementia. I have that far off stare. My left arm goes limp and drag my left leg and balance is very off. I suffered two strokes last yr. Then seizures started. I have a blood disorder that causes clots so I will take thinners the rest of my life and have to check my Blood INR weekly on top of having an autoimmune disorder.
You’re definitely not alone.
Submitted by Sciencegal92 on Mon, 2019-10-28 - 00:19
You’re definitely not alone. I only have focal epilepsy as well. I’ve never had the feeling of wanting to die, but after each episode, I do have a feeling of not existing if that makes sense. It’s hard to go on with my day afterwards. Being an engineer and student, I have to be focused and alert at all times, but it’s been a difficult journey. I get super nauseous and vomit after each episode, so my doctor put me on Zofran to ease the nauseous feeling.