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Feeling Lost

Sun, 02/23/2020 - 14:11
I had a seizure after just under a year. I know that I tend to feel down afterwards but it is so hard to snap out of it. My partner has been amazing but I just feel so lonely.


Hi, Thank you for posting and

Submitted by Anonymous on Mon, 2020-02-24 - 09:39
Hi, Thank you for posting and we understand your concerns. We know that being diagnosed with epilepsy can be upsetting and make you feel isolated. However, it’s important to remember that you are not alone, and we are here to help support you. If you ever need to speak with someone please contact our Epilepsy and Seizures 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or .One of the most important things to help you live with epilepsy is to find a support network. Learn more about your community support options here: contact your local Epilepsy Foundation:  to find support groups, events, and programs in your community. You may want to consider participating in treatment, seizure and lifestyle management programs, which can help people with epilepsy learn skills to better manage their epilepsy and its effects on daily life: We understand that living with epilepsy is more than seizures,it also means learning how to handle the way epilepsy affects your life including your physical well-being, social and emotional health.  Additionally,documenting how you’re feeling in detail will be very helpful to review with your doctors. My Seizure Diary: a great tool for identifying & tracking seizures, setting reminders, managing medications & side effects, recording medical history, moods, behaviors, triggers, and other therapies or personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team. For practical& effective strategies, tips & resources to maintaining a healthy lifestyle and to enhance your well-being, visit:

Hello!I can really relate to

Submitted by Ellabella_5c8142315329e on Sun, 2020-03-01 - 11:57
Hello!I can really relate to what you are going through. Every day feels like a struggle. I often miss my old self who was happy and positive all the time. It feels like Keppra is the pill form of depression. I find myself sad, upset, and frustrated nearly every day and often need to sneak away from class just to let the tears out. I want you to know that you are absolutely not alone, and these sad feelings are not you. It is so extremely hard to convince yourself that "it's the medication" when you're in the bathroom crying telling yourself that everything sucks. It's not fair. I know this can feel like forever, but believe there's a light at the end of the tunnel.IT'S OKAY TO GRIEVE YOUR ILLNESS! Living with epilepsy is so incredibly unfair. You did not deserve this. You are so incredibly strong for keeping it together when you need to but it is really, really hard. When I'm feeling down I may write down everything I'm feeling but I normally find myself on some kind of forum for people who are struggling with a chronic disease. It makes me feel better knowing so many people with my disease are going through what I'm going through. Many of my friends and family try to sympathize, but no one really, truly understands what this is like- except for you guys on here. Remember, you are coping the best you know how. You have been through so much with this disease. We are all still learning how to cope. I have no doubt in my mind that anyone battling this horrible disease has the capacity to overcome these depressive states. You can do this. Even if you don't believe in yourself, just know there are so many people on here that know exactly what you're going through and believe in you! You absolutely got this! Take care,-Ella

HiThanks for your kind words.

Submitted by Roshni on Mon, 2020-03-02 - 12:35
HiThanks for your kind words. I was diagnosed 20 years ago and after some shaky times I stabilised for many years. I decided to join this forum this time round because, as you said, connecting with people who understand helps. Your post has given me the strength I need right now to pull myself out of this.You are absolutely right with Keppra, it is like a giant pill of depression but hej I guess we manage to pull through everyday which shows that we are tough individuals.Just know that you have helped me so much with your words. Thankyou once again

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