Driving

I have a Question.  Is there anyone out here who is still driving or still has their Drivers License even with the Seizures they are having?  I am 25 and love my independence that my drivers License gives me. I have partial Seizures sometimes and was just curious about driving, my Drivers License is up for renewal soon. Thanks. 

Comments

RE: Driving

Submitted by TJCPS on Mon, 2004-12-27 - 01:48

Hey,

 

I'm tj, im 23, i also have partial seizures and i have my license, i never had it changed because of my seizures, i still drive when the seizures are under control, but when i have them my parent take my keys away for awhile until they are back under control.  It sucks having that feeling of not having freedom, but i guess its for the best, lately i should actually not be driveing even though i do, i've been having a couple and havent told my parents, but the only places i have drove have only been a few blocks to my gram's for christmas, and to mcdonalds.  I guess not driving and being alive is better than driving and hurting myself or other, as my parent say, i guess get your seizures under control and try to get the liscense to drive back.

tj

Hey,

 

I'm tj, im 23, i also have partial seizures and i have my license, i never had it changed because of my seizures, i still drive when the seizures are under control, but when i have them my parent take my keys away for awhile until they are back under control.  It sucks having that feeling of not having freedom, but i guess its for the best, lately i should actually not be driveing even though i do, i've been having a couple and havent told my parents, but the only places i have drove have only been a few blocks to my gram's for christmas, and to mcdonalds.  I guess not driving and being alive is better than driving and hurting myself or other, as my parent say, i guess get your seizures under control and try to get the liscense to drive back.

tj

RE: Driving

Submitted by Belinda on Mon, 2004-12-27 - 08:00
I have a question.Are you driving and having seizures?Because if you are that's a good way to kill yourself and someone else.I've never driven but I've always managed.Belinda

RE: RE: Driving

Submitted by frogman137 on Tue, 2005-06-21 - 08:26
I completely concur,Belinda.I'm 35 and have never driven,first due to my lack of need for a driver's license then,at 23,due to my siezure disorder.I've said in many posts that you can't let it beat you,that it only can if you let it and that you've gotta find the heart to fight it even when you don't think you can but there's a big difference between brave and stupid.I can't see how anyone could have a disorder that completely takes their conciousness at times would want to be behind the wheel of a car.Nothing like being unconcious and having a ton of steel and plastic around you.Not only will you hurt or kill yourself you stand a good chance of doing the same to countless other people.

RE: Driving

Submitted by gsness on Mon, 2004-12-27 - 09:25
Hi Zoe!I've had my license suspended three times (six months each time) in the state of California, although it is currently active and I am driving now. In California doctors are required by law to report your name and information to the DMV if you have a seizure that causes unconsciousness or brings you to the hospital.Each state, it seems, has slightly different laws and suspension periods for people with seizures. There are times when I won't drive because I feel like a seizure may be starting, or having an aura. But the earlier writer is correct. You really shouldn't be driving if your seizures aren't under control, or if you can't feel them starting in time to get off the road.Have a great new year! (And please DON'T drink and drive!). (And please DON'T take strong meds that affect you and drive!) (And please DON'T drive if you can't feel a seizure in time to get off the road!) Other than that, please do have a great new year!gsness

RE: Driving

Submitted by tmpino on Mon, 2004-12-27 - 10:12

Hello, my name is Tiffany and I am very fortunate.  I have been having CPS for 14 years now and only had my license suspended for 6 months in those years.  I am one of the lucky ones, I have always had very prominent warning signs (auras) before each seizure and am capable enough at that time to pull over and call my emergency number from my cellphone. My seizures are well under control which is the only reason I still drive, but even so, it is always crucial to be ready for ANY emergency situation.  Have a cellphone ready with an emergency number on speed dial.  Don't take any chances.  It's not only your own life that is in jeopardy, there are many others on the road, and we must keep in mind.

 

Good Luck and Be Safe!

Hello, my name is Tiffany and I am very fortunate.  I have been having CPS for 14 years now and only had my license suspended for 6 months in those years.  I am one of the lucky ones, I have always had very prominent warning signs (auras) before each seizure and am capable enough at that time to pull over and call my emergency number from my cellphone. My seizures are well under control which is the only reason I still drive, but even so, it is always crucial to be ready for ANY emergency situation.  Have a cellphone ready with an emergency number on speed dial.  Don't take any chances.  It's not only your own life that is in jeopardy, there are many others on the road, and we must keep in mind.

 

Good Luck and Be Safe!

RE: Driving

Submitted by Suzmom on Tue, 2004-12-28 - 07:14

Hi Zoe,

My heart really goes out to you.  Just a couple months ago I was asking the same question when the doc told me "No driving" and in the state of Florida it's on the honor system, so it was my call to make.

When I got home in tears, I handed dh the car key and said "Six months seizure-free." 

That day I got on this list and kind, gentle, yet reality-based folks shared with me their hearts, their stories, and their victories.  It made "not driving" seem do-able ... even with 2 homeschooled children in my life. 

Oh, I have sent some messages saying "How can I DO THIS?!" on days when life just seemed so confining, but ya know, it's kinda cool ... those days passed and here I am writing to you!  :)

Here's the list of reasons that helped me see why I shouldn't drive with seizures ... whether I have an aura (which I do sometimes - but I can't risk going 70 mph on the highway and have time to pull safely off the to the side) or not ...

- I might kill myself in the car, I might kill my kids in the car, I might kill someone else, I might kill someone else's kids/mother/father

- if I get in an accident and insurance finds out (which they will) that I have seizures they will wiggle out of payment AND I can get SUED by the other person (I love my husband too much to see us bankrupt for life)

- there is city transportation (with discounts for folks with seizures)

- I won't have to pay for gasoline, car insurance, car washes

- I can manage my time so much better because I schedule my outings more efficiently etc, etc, etc! 

Do I have days where I get frustrated?  Oh YES!  But I used to get frustrated that I had so many ERRANDS to run!!! LOL!  Now I get frustrated that I can't run them!  But most of them I find don't need running after all.  :)

I am still looking for ways to get the kids out with other kids, but that will come in time. 

Enjoying the adventure (with a few tears along the path),

Suzanne

Hi Zoe,

My heart really goes out to you.  Just a couple months ago I was asking the same question when the doc told me "No driving" and in the state of Florida it's on the honor system, so it was my call to make.

When I got home in tears, I handed dh the car key and said "Six months seizure-free." 

That day I got on this list and kind, gentle, yet reality-based folks shared with me their hearts, their stories, and their victories.  It made "not driving" seem do-able ... even with 2 homeschooled children in my life. 

Oh, I have sent some messages saying "How can I DO THIS?!" on days when life just seemed so confining, but ya know, it's kinda cool ... those days passed and here I am writing to you!  :)

Here's the list of reasons that helped me see why I shouldn't drive with seizures ... whether I have an aura (which I do sometimes - but I can't risk going 70 mph on the highway and have time to pull safely off the to the side) or not ...

- I might kill myself in the car, I might kill my kids in the car, I might kill someone else, I might kill someone else's kids/mother/father

- if I get in an accident and insurance finds out (which they will) that I have seizures they will wiggle out of payment AND I can get SUED by the other person (I love my husband too much to see us bankrupt for life)

- there is city transportation (with discounts for folks with seizures)

- I won't have to pay for gasoline, car insurance, car washes

- I can manage my time so much better because I schedule my outings more efficiently etc, etc, etc! 

Do I have days where I get frustrated?  Oh YES!  But I used to get frustrated that I had so many ERRANDS to run!!! LOL!  Now I get frustrated that I can't run them!  But most of them I find don't need running after all.  :)

I am still looking for ways to get the kids out with other kids, but that will come in time. 

Enjoying the adventure (with a few tears along the path),

Suzanne

RE: Driving

Submitted by Karolwf on Wed, 2004-12-29 - 07:04

Zoe,

 I still have a drivers license in the state of Texas but I live in Minnesota where they will not give me one. I do not drive but I do keep my Texas drivers license just incase someday I will be able to drive again. DON"T DRIVE if you are having seizures-- it is not worth it. I cried and cried when my doctor told me not to drive any more-- I cried and cried when I had to leave Texas and come up to the North POLE and live with my sister because I can no longer work or live by myself. BUT it has been 4 years now and I am managing-- where there is a will there is a way and where there is no way GOD will make one for you. I fly a lot-- and travel -- that makes up for it for me.

Zoe,

 I still have a drivers license in the state of Texas but I live in Minnesota where they will not give me one. I do not drive but I do keep my Texas drivers license just incase someday I will be able to drive again. DON"T DRIVE if you are having seizures-- it is not worth it. I cried and cried when my doctor told me not to drive any more-- I cried and cried when I had to leave Texas and come up to the North POLE and live with my sister because I can no longer work or live by myself. BUT it has been 4 years now and I am managing-- where there is a will there is a way and where there is no way GOD will make one for you. I fly a lot-- and travel -- that makes up for it for me.

RE: RE: Driving

Submitted by fenway on Wed, 2004-12-29 - 08:38

Hi there Zoe:

I lost my licence in New Hampshire in October after having a seizure in July.  There is a thread out there explaining the situation.

Of course, when my seizures are not controlled, I take the commmuter rail and walk. :(.  I am fortunate in that my seizures happen at night.  New Hampshire is a real stickler when it comes to driving.

 

 

Hi there Zoe:

I lost my licence in New Hampshire in October after having a seizure in July.  There is a thread out there explaining the situation.

Of course, when my seizures are not controlled, I take the commmuter rail and walk. :(.  I am fortunate in that my seizures happen at night.  New Hampshire is a real stickler when it comes to driving.

 

 

RE: RE: RE: Driving

Submitted by shan on Wed, 2004-12-29 - 09:59

Hi,

I am new to this list...I have just lost my license again.  When I was a kid you had to be one year seizure free.  I didn't get it when everyone else did.  Never thought it was a big deal.  Two years ago is was revoked (in Kansas they make you take the entire driving test) and now again. 

It would be easier in a city where there was a transit system...but I'll have to lean on the old friends again. 

My son and I rode our bikes everywhere when this happened before..but now it is cold.

No relief for taxi services here unless income is low...so I take a bus for the elderly..but they stop their runs at 4pm.

This too shall pass.

Shan

Hi,

I am new to this list...I have just lost my license again.  When I was a kid you had to be one year seizure free.  I didn't get it when everyone else did.  Never thought it was a big deal.  Two years ago is was revoked (in Kansas they make you take the entire driving test) and now again. 

It would be easier in a city where there was a transit system...but I'll have to lean on the old friends again. 

My son and I rode our bikes everywhere when this happened before..but now it is cold.

No relief for taxi services here unless income is low...so I take a bus for the elderly..but they stop their runs at 4pm.

This too shall pass.

Shan

RE: RE: RE: RE: Driving

Submitted by danny on Sun, 2005-04-10 - 04:19
HOW LONG AFTER SEIZURE DID IT TAKE YOU TO LOSE YOUR LICENSE?

RE: RE: RE: Driving

Submitted by danny on Sun, 2005-04-10 - 04:12
YOU HAD YOUR SEIZURE IN JULY AND THEY TOOK YOUR LISCENSE IN OCT?THAT SEEMS CRAZY I THOUGHT IT WAS TO PROTECT THE PUBLIC?HOW DID THEY TAKE YOUR LICENSE?THRU A LETTER OR WHAT?AND DID YOU HAVE 30DAYS TO APPEAL?

RE: Driving

Submitted by stella on Thu, 2004-12-30 - 22:24
I definetly joined the right site!  Driving all depends on two very important things; your doctor for one and whether or not you have a warning before you seize.  By this I mean that in the end the decision rests upon you doctor it is his or her job to make the final decision.  If you have a warning period before every seizure that allows you enough time to get off the road then your good.  My experience was I always had a warning so I never lost my license.  However, I lost that warning on the highway and went across all eight lanes of 95.  A good sized highway.  I then traveled through the woods and into some ladies pine tree. I still havn't gotten that warning back.  If you don't have a warning, make a good decision.  I know how important independence is, and god I miss driving, but hurting yourself or someone else is not worth it.  I havn't driven in three years and though it sucked at first you deal with it.  Depending on what state you live in you can get it back once your seizures can be controled.  The law here in NH is six months seizure free.  I havn't made it yet but I plan to.  Just be safe and be honest with yourself. 

RE: Driving

Submitted by fishergal on Fri, 2004-12-31 - 10:02

If everyone asked themselves these questions just think how much safer the roads would be.

Can I truely KNOW that I won't have a seizure reaching my destination?    Who will be MURDERED not killed when I am not honest about how I feel today.    Can I give my keys over to someone to hold when I begin to feel bad after I reached my destination?   Will there be someone who will be willing to take me home while my car will probably sit right where it is?  Is there another way to get where I want to go on this day?

Do you know all your triggers?  I had to leave the city driving to someone else about six years ago.  I know its only a matter of time and I will be totally dependant upon friends and local agencies.  I understand how hard it is to give up another thing you used to do before things got worse.  I have a friend who refuses to learn to drive because being psychotic he knows the road rage would kick in and who knows what would happen. (That's one of life's funny stories, we met at work.  I talked him out of his building rages and he watched over my work load.)  God does work in mysterious ways and you will find the help you need when you need it.

If everyone asked themselves these questions just think how much safer the roads would be.

Can I truely KNOW that I won't have a seizure reaching my destination?    Who will be MURDERED not killed when I am not honest about how I feel today.    Can I give my keys over to someone to hold when I begin to feel bad after I reached my destination?   Will there be someone who will be willing to take me home while my car will probably sit right where it is?  Is there another way to get where I want to go on this day?

Do you know all your triggers?  I had to leave the city driving to someone else about six years ago.  I know its only a matter of time and I will be totally dependant upon friends and local agencies.  I understand how hard it is to give up another thing you used to do before things got worse.  I have a friend who refuses to learn to drive because being psychotic he knows the road rage would kick in and who knows what would happen. (That's one of life's funny stories, we met at work.  I talked him out of his building rages and he watched over my work load.)  God does work in mysterious ways and you will find the help you need when you need it.

RE: RE: Driving

Submitted by shan on Fri, 2004-12-31 - 11:34

My mom raised me to not let seizures get in my way.  Through this I have been a long distance runner (though I had seizures during practice and during meets) it is a "thing" I have lived w/ and not given it much thought.  (well that is a bit of an exaggeration...as day to day care is needed) Anyway, It seems that now that I am in my mid thirty's that I am have a different type of seizure w/ no aura.  My seizures had seemed to be 100% tied to a med miss and stressors...but the last six weeks I'm toppling over (a drop seizure).

Funny, after adolescence w/ seizures and me believing they were no big deal do I now face this loss of driving again (I do think I'll reach the 6 month again).  I do have good friends and I'm sure they will help me. 

The reason that I even fess up to these seizures is for the safety of others. I generally have them in the evening and generally not in public.

shan

My mom raised me to not let seizures get in my way.  Through this I have been a long distance runner (though I had seizures during practice and during meets) it is a "thing" I have lived w/ and not given it much thought.  (well that is a bit of an exaggeration...as day to day care is needed) Anyway, It seems that now that I am in my mid thirty's that I am have a different type of seizure w/ no aura.  My seizures had seemed to be 100% tied to a med miss and stressors...but the last six weeks I'm toppling over (a drop seizure).

Funny, after adolescence w/ seizures and me believing they were no big deal do I now face this loss of driving again (I do think I'll reach the 6 month again).  I do have good friends and I'm sure they will help me. 

The reason that I even fess up to these seizures is for the safety of others. I generally have them in the evening and generally not in public.

shan

RE: Driving

Submitted by addie243 on Fri, 2004-12-31 - 17:40

I am melissa, also new to this site. I don't usually get auras and lose my license for at least 6 months after each seizure. This time, I actually was driving when I had the seizure. I won't be risking that again. Although nobody was hurt (God was watching out for me, I think), I will be waiting at least a year until I can drive again. It helps me to know that I can take this time to try new meds instead of sticking with one I didn't like very much. I also prepared for this by moving into a small city last year, just in case. Now, I can get around by bus (although I hate the bus) and by walking to most places. Also, most friends are really more generous than I ever expected.

Good luck!

Melissa

I am melissa, also new to this site. I don't usually get auras and lose my license for at least 6 months after each seizure. This time, I actually was driving when I had the seizure. I won't be risking that again. Although nobody was hurt (God was watching out for me, I think), I will be waiting at least a year until I can drive again. It helps me to know that I can take this time to try new meds instead of sticking with one I didn't like very much. I also prepared for this by moving into a small city last year, just in case. Now, I can get around by bus (although I hate the bus) and by walking to most places. Also, most friends are really more generous than I ever expected.

Good luck!

Melissa

RE: RE: Driving

Submitted by JLAvery on Sun, 2005-04-10 - 23:33
God was watching out for you, you know he was.

RE: RE: RE: Driving

Submitted by Sestrilla on Mon, 2005-04-11 - 12:33
You're right. God is the only reason I survived those accidents. But in those "young and stupid" years I don't think a person thinks about that. "Fun and Freedom" was what it was all about.Ahhh...if only I knew then what I know now.

RE: Driving

Submitted by MORNING on Sat, 2005-01-01 - 00:24
My doctor told me if I drove he would see that I went to prison! So, I don't drive the car. This summer, I decided that I would mow the lawn to help my husband. I started up the mower, backed out of the shed, doing just fine, and started mowing. Next thing I knew, I was being hauled off the mower, and I saw that I had hit a tree and done damage to the mower. I thought it was a freak thing, so I tried again a few days later. This time, I tore the blades off when I side swiped something. Did you know, those mowers run if you are conscious or not? Anyway, after I saw all the damage I did with the mower, I understand the threat of prison. Morning

RE: RE: Driving

Submitted by LeeMc on Mon, 2005-01-03 - 00:12

Lee here.  I never did lose my license.  I did lose the 4 year one when medic ID's became available on your license in Iowa.  They asked why I wanted one - I told them and now I  have a medical restriction that requires a complete physical every two years and I have to fill out a bunch of forms for the DOT to renew my license.  My doc kids that they should just let us write DITTO on them if nothing has changed.  I never kid myself though - I am always aware of what could happen and I am very careful to take my meds on time and as directed, do not drink alcohol and not to get too tired.   I was lucky in the beginning in that none of my seizures (from the blank stares through to the grand mals) ever happened when I was alone - or driving.  Somebody was looking out for all of us then!

I don't live in town so public transportation isn't an option.  Taking care of myself and staying seizure free is what I have to do - although that bike riding idea doesn't sound too bad for summers.  Use your head - there are other ways and we can adapt if we must.  We did okay before we were old enough to be able to drive!

Wish you all the best.............Lee

Lee here.  I never did lose my license.  I did lose the 4 year one when medic ID's became available on your license in Iowa.  They asked why I wanted one - I told them and now I  have a medical restriction that requires a complete physical every two years and I have to fill out a bunch of forms for the DOT to renew my license.  My doc kids that they should just let us write DITTO on them if nothing has changed.  I never kid myself though - I am always aware of what could happen and I am very careful to take my meds on time and as directed, do not drink alcohol and not to get too tired.   I was lucky in the beginning in that none of my seizures (from the blank stares through to the grand mals) ever happened when I was alone - or driving.  Somebody was looking out for all of us then!

I don't live in town so public transportation isn't an option.  Taking care of myself and staying seizure free is what I have to do - although that bike riding idea doesn't sound too bad for summers.  Use your head - there are other ways and we can adapt if we must.  We did okay before we were old enough to be able to drive!

Wish you all the best.............Lee

RE: RE: RE: Driving

Submitted by pongosmommy on Wed, 2005-01-05 - 13:53
Hi my name is Dayna, l live in California. My License has not been suspended yet. My "episodes" started happening within the last year. The only reason I still have a license is because I have not officially been diagnosed with epilepsy...although if you ask the parametics or any of the nurses in the ER (who all know my name) they will say it is a seizure. My prior Neurologist said that I could drive and could even go back to work. He swears that my episodes are nothing more than a complex migraine.The Nurses and Paramedics and the Neurologists at UCLA (my new docs) and my own MD have all asked me not to drive. I don't ..unless there is no one else to take me to the store(It is 6 blocks away and it was raining real hard).I expect to lose my drivers license anytime now. As soon as my New Docs get my tests run. I can't even go a week w/o a seizure let alone 6 months or a year.

RE: Driving

Submitted by classy1g on Fri, 2005-04-08 - 22:26
Zoe,Each state differs with the laws relating to driving with epilepsy. I know in NJ, it is mandatory that the doctor reports the condition to DMV, and then they pull your license. You can get your license back after one year of being seizure free, with no more than 2 seizures. Doesn't that sound wonderful?...2 seizures in a year! That I can live with...surrendering my license I can't!Keep safe..classy1PS: I'm too scared to drive, cause I have had too many seizures while on the road...I would not be able to live with myself, if I were to cause an accident and hurt an innocent bystander. Just some food for thought.

RE: Driving

Submitted by angel_lts on Sat, 2005-04-09 - 06:21
This is for all those who drive and are not seizure free.I have never driven in my life. My sister who has epilepsy also has driven. About 20 years ago at the age of 16 she was in an accident for she had a seizure. She might have stopped her meds. She was driving to school with friends and my brother in the car. She had killed a little girl only six years old. It was a horrible time in my parents, the girls family, my sisters life's. It was a few weeks before christmas and was very hard for all of us. We were all so young.PLEASE, PLEASEthink of others and yourself before getting behind that wheel for accidents can happen.http://health.groups.yahoo.com/group/EpilepsyApproach/Lisa

RE: Driving

Submitted by angel_lts on Sat, 2005-04-09 - 06:22
This is for all those who drive and are not seizure free.I have never driven in my life. My sister who has epilepsy also has driven. About 20 years ago at the age of 16 she was in an accident for she had a seizure. She might have stopped her meds. She was driving to school with friends and my brother in the car. She had killed a little girl only six years old. It was a horrible time in my parents, the girls family, my sisters life's. It was a few weeks before christmas and was very hard for all of us. We were all so young.PLEASE, PLEASEthink of others and yourself before getting behind that wheel for accidents can happen.http://health.groups.yahoo.com/group/EpilepsyApproach/Lisa

RE: RE: Driving

Submitted by jinx1331xnij on Sat, 2005-04-09 - 09:06
I just recently got my license and it was one of the happiest days of my life. I went the full 8 months that the state requires, but didn't tell the dps that I have epilepsy, cuz that would have meant going back every year to have it renewed. It really did kinda suck being a teen and not having a car, not taking drivers education like all my friends, blah blah blah. Epilepsy sux and we can't deny the fact that it puts limitations on our lives,,,but just keep reminding yourself of the old adage " what doesn't kill you makes you stronger". Dang we are some strong people!! lol.....PLEASE don't drive if you are having sz's! Innocent people could die for it. Theres always a way to get places, theres always your own 2 feet even lol. seriously i used to walk to the mall as a teenager and it was over 10 miles away,,,,I have used public transportation a lot, and when that wasn't available, I have either caught a ride with friends or walked, or biked. Limitations are awful and they can make you feel like a useless person, but youre not. None of us are. so u can't drive a car. big deal right? a lot of people don't drive just by choice.

RE: RE: RE: Driving

Submitted by AvidRunner22 on Sat, 2005-04-09 - 10:34
i haven't been diagnosed with anything or put on any meds at all, and with the frequency of my dizziness and zoning out and not just always being on top of things, i'm not driving anymore. i was before my initial seizure in july of last year but right now, it just don't seem smart to be behind the wheel.

RE: RE: RE: RE: Driving

Submitted by amyj on Sat, 2005-04-09 - 11:22
I live in California and although my lic. has not been revoked, I have not driven since May 2004. I have complex partial seizures. My doctor says that I need to be 6 mos. seizure free before I can drive again. I will not drive until that time -- it's not a chance I am willing to take, with my life or anyone elses.

RE: Driving

Submitted by jtschley on Sat, 2005-04-09 - 10:55

Hello, my name is John.  My wife has had absent seizures since birth, but they always happened at night.  Up until 2003 she was able to drive.  In 2003 something in her body changed and she started having them in the day.  At this point the State of California has suspened her license and we still have not been able to 6 months without a siezure.  Shortly after her suspension, my mother told us how a man got was sued and convicted of involunteer man slaughter because he caused a car accident in Maryland.  The man had the VNS and even used it earlier that day to help control his seizures.  Unlike a heart-attacks where they can happen at anytime and one never knows when or where, he knew of his seizures and knew they can strick at any time.

I recommend that anyone with seizures that drive check with your city and state to see if you could be charged with man slaughter if you cause an accident due to seizure.

 

Hello, my name is John.  My wife has had absent seizures since birth, but they always happened at night.  Up until 2003 she was able to drive.  In 2003 something in her body changed and she started having them in the day.  At this point the State of California has suspened her license and we still have not been able to 6 months without a siezure.  Shortly after her suspension, my mother told us how a man got was sued and convicted of involunteer man slaughter because he caused a car accident in Maryland.  The man had the VNS and even used it earlier that day to help control his seizures.  Unlike a heart-attacks where they can happen at anytime and one never knows when or where, he knew of his seizures and knew they can strick at any time.

I recommend that anyone with seizures that drive check with your city and state to see if you could be charged with man slaughter if you cause an accident due to seizure.

 

RE: Driving

Submitted by aeboyle on Sat, 2005-04-09 - 16:12

This seems to be a reborn topic so I'll post:

I had my first tonic-clonic @ 16 and got my license at 17... nothing inbetween so I was fine.  Now, I just had a seizure 3 weeks ago and no one said anything to me about not driving?  My neuro back home when I first got my license said that as long as they are controlled they don't need to be reported?  My neuro now didn't say anything about it to me when i had my 2nd TC three weeks ago.

This seems to be a reborn topic so I'll post:

I had my first tonic-clonic @ 16 and got my license at 17... nothing inbetween so I was fine.  Now, I just had a seizure 3 weeks ago and no one said anything to me about not driving?  My neuro back home when I first got my license said that as long as they are controlled they don't need to be reported?  My neuro now didn't say anything about it to me when i had my 2nd TC three weeks ago.

RE: RE: Driving

Submitted by danny on Sun, 2005-04-10 - 04:03
HI I WAS JUST WONDERING WHAT STATE YOU LIVE IN AND DID YOU GO TO THE HOSPITAL?

RE: Driving

Submitted by melissa1376 on Sun, 2005-04-10 - 12:32
Zoe, I have to say think about others first. I was a legal driver for a good year year and a half, because I had gone long enough without seizures to drive via NC law at the tiem. Then, one day I had a seizure in the parking lot and rear-ended another car. I thought, "I can't give up my freedom, and probably my job, for a one time seizure." Well, that wasn't the case. A few weeks later I got up early for an appointment. I was so tired from lack of sleep and I KNEW better than to hop into a car. I got down the road only a mile or two from my apartment, had a seizure and hit a tree head-on. If I had hit on the driver's side, I WOULD be dead; no question about that. I put down my keys in 2000 and got a job and a new apartment where I could walk to work. All I can think about is that tree could have been someone--because of my stupidity and selfishness!If you knew what provoked your seizures and had the discipline to put the keys down, no matter how important it was to get to your destination, then it might be possible to pull that off. I know that when I'm stressed or sleep deprived, I shouldn't be driving--even for a month at a time. I am a person who LOVES her freedom and I've had such a hard time with that---so hard. I've lost a lot of opportunities because of it. I will be "legal" in a couple of months, but I don't think I'll drive for a while, until I feel my seizures are really under control. Six months really isn't that long. I'll probably start by just going to the grocery store when I feel good. :) I'll always think of that tree and WHO it coild be next time....

RE: RE: Driving

Submitted by jinx1331xnij on Sun, 2005-04-10 - 14:24
awesome attitude melissa. hang in there, and good luck :)

RE: Driving

Submitted by MORNING on Sun, 2005-04-10 - 16:36
Here in Texas, they ask you if you have had seizures. I don't drive, but I keep my license. It is nearly impossible to do many things without a driver's license. Morning Linda

RE: Driving

Submitted by Sestrilla on Sun, 2005-04-10 - 17:56
Hi Zoe,I am 34 and live in Alabama. This state requires that a person go 6 months seizure free before having an active license. I haven't cleared that 6 months yet. When I was a teenager, I never let them know I had seizures, and for some unknown reason, my doctor never turned me in.....until 2 years ago.From the time I was 16 until I turned 26, I had a few little accidents. Sometimes waking up on the side of the road in my car. Once waking up in my car on the side and a police officer knocking on the window to wake me up. Stupid me told him I was up all night and was now on my way to work and must have fallen asleep while driving. I was lucky those times.What finally got me to turn in my license was the year I turned 26, and I had a job interview. I was so excited the night before that I barely slept, this was going to be a fantastic job opportunity!! The next morning I got up, dressed and went on my way. I woke up to EMS men yelling through my window telling me they were going to get me out. I had a seizure right at a sharp curve in the road...I kept going straight, somehow cleared a 8 foot wide and 6 feet deep ditch and ran my car right into the corner of a house. I shattered my ankle and broke my leg (I now have 3 screws in that ankle and a foot long pin running up my leg from my ankle. Yet again, I told the EMS team that I had fallen asleep at the wheel. As the days passed after the accident, all I could think about was my 4 year old son. What if he had been with me? What if there had been children playing in that yard? What if I had died and left my son alone? I cried. The more I thought about the "Could have beens" the more I cried and the more scared I got. I never drove again. My family has been great about taking me to places I need to go. And a social life doesn't come to an end when you don't drive. Life is all around you, live it up! Don't think a car has anything to do with your happiness, you can find that all around you.Check with your doctor and/or the Driver's License Division in your city. They can tell you everything you need to know as far as your license renewal goes.Good luck.Tove

RE: RE: Driving

Submitted by rfskye on Mon, 2005-04-11 - 23:47

I am 56 years old and have had TLE for 16 years. I drive now, but they took my license a few years ago for 6 months. After an OK from my doctor, I got it  back, but had to report to the state every 6 months. Recently, they told me that since my seizures had been localized for two years, I was OK to drive. No more reporting to the DMV, unless my doctor says to. (She says she is bound by law.) Sometimes I have a petit mal or localized seizure while I am driving. I may miss my exit, or start talking to someone who isn't there, but it does not affect my functional driving--although when I am post-ictal, I'm a little confused. I have found that I can have a temporal lobe seizure while walking, running, driving etc., and it does not affect my motor skills.

Bob

PS: Anyone know about the patron saint of epilepsy? Saul of Gallilee, otherwise know as St. Paul. Write for more details.

I am 56 years old and have had TLE for 16 years. I drive now, but they took my license a few years ago for 6 months. After an OK from my doctor, I got it  back, but had to report to the state every 6 months. Recently, they told me that since my seizures had been localized for two years, I was OK to drive. No more reporting to the DMV, unless my doctor says to. (She says she is bound by law.) Sometimes I have a petit mal or localized seizure while I am driving. I may miss my exit, or start talking to someone who isn't there, but it does not affect my functional driving--although when I am post-ictal, I'm a little confused. I have found that I can have a temporal lobe seizure while walking, running, driving etc., and it does not affect my motor skills.

Bob

PS: Anyone know about the patron saint of epilepsy? Saul of Gallilee, otherwise know as St. Paul. Write for more details.

RE: RE: RE: Driving

Submitted by mak1123 on Wed, 2005-04-13 - 08:00

Hello!  I am Melissa and I live in the Pittsburgh area.  I lost my license for five years, the law is six months, throughout that time I lost every friend that I ever had.  They all moved a little further away, got married, or something else.  They just didn't have time to come and pick me up anymore.  I became very depressed and convinced my doctor to let me get my license back. ( With a few fibs )  Any way, I have had a few seizures while driving since then.  My luck is that I have a very strong aura before my seizures, so I know when to pull over.  I know that this is still very dangerous, but for the longest time I didn't have a life anymore.  I wish that there was some other way of transportation for people like me that didn't cost an arm and leg.  I wouldn't have done the "fibs" if I could have found other ways to the store or to take my daughter to the park.

 

Hello!  I am Melissa and I live in the Pittsburgh area.  I lost my license for five years, the law is six months, throughout that time I lost every friend that I ever had.  They all moved a little further away, got married, or something else.  They just didn't have time to come and pick me up anymore.  I became very depressed and convinced my doctor to let me get my license back. ( With a few fibs )  Any way, I have had a few seizures while driving since then.  My luck is that I have a very strong aura before my seizures, so I know when to pull over.  I know that this is still very dangerous, but for the longest time I didn't have a life anymore.  I wish that there was some other way of transportation for people like me that didn't cost an arm and leg.  I wouldn't have done the "fibs" if I could have found other ways to the store or to take my daughter to the park.

 

I still drive, but I would

Submitted by katw0826 on Thu, 2006-04-06 - 18:11
I still drive, but I would NEVER drive if my doctor didn't clear me to. I have a mild form of epilepsy - it is completely controlled by medicine and I get warning signs. I try to avoid situations that I know are triggers for my seizures (being overheated, being too tired, and poor eating), and if I ever feel "funny" (even a little bit), I don't drive (or if I am already driving I *immediately* pull off the road). If I ever do have a seizure (I didn't have one for 13 years!), I follow all of the state regulations regarding driving after having a seizure. Additionally, I don't drink (maybe 1-2 times a year, if that) and don't take drugs or anything like that (except my prescribed medications :-) ). In my humble opinion, it is important to not let your condition debilitate you. You absolutely must must must be responsible, taking care of yourself and considering the fact that others are on the road (and acting accordingly), but if both your doctor and the DMV have cleared you to drive, I think it is okay to do so. If you feel at all uncomfortable or unsure about driving, then follow your gut feeling and don't drive. I guess it is also worth noting that, unless there is some reason that the other person should not be driving, I have no problem letting someone else drive. I don't shy away from driving, but I also don't feel the need to be the driver. If you do feel this need to be the driver when you are with a group of people, you may want to try to shed some of those feelings - it isn't that big of a deal, and there is no possibility of you having any sort of episode behind the wheel if you aren't there to begin with. It may be being overly cautious, but so what. :-)

I don't really know what the

Submitted by andy m on Fri, 2006-04-07 - 05:24
I don't really know what the laws are in the U.S but from reading the posts it seems to differ from state to state. here in the U.K. if you are seizure free for 2 years you can retake your test and regain your license without a problem.

Re: Re: Driving

Submitted by alientwilight21 on Fri, 2006-04-28 - 15:12
i am 26 i still have the driver's L. but i have to wait til next january to drive again in west virginia its like year after u have a seizure.I so hate not driving.But i don't want to Kill a innocent.I would get them renewed i wouldn't let them die.www.myspace.com/aliens_world www.tagworld.com/alientwilight21 www.alientwilight.deviantart.com/

Re: Re: Re: Driving

Submitted by Cathy_C on Fri, 2006-04-28 - 17:55
Hi, I am 45 and just got my license back TODAY!!!!!!!! I went 10yrs without driving. I gave my license up while living in Texas, came back home to Maine and Had my VNS implant done and got on Keppra & Lamictal. Things are going really well. But I can tell you one thing and that is, IF I was to get up in the morning and not feel 100% great, or if I had a head ache or was tired, you would not see me get into my car. I had to go for my permit all over since I hadn't held a license in 10yrs so I have been driving with my hubby in my car for the last month. We work in a Medical Research Lab together and when we take my car instead of his truck I drive to work. If on that day I have had a really tiring day in the lab I automatically have him drive home. Lots of times in the evenings when the lights will bother my eyes, I have him drive. I won't be driving all the time everywhere it is just if I NEED to do something. The only way I will get behind the wheel is if I am totally rested up and have no auras that day. I do have my magnet that works with my Vagnus Nerve Stimulator, but while driving a car I don't want to have to rely on reaching for the magnet to make a seizure pass. Reaching for the magnet would be no different then reaching for a cell phone. I ask God for his protection and for him to send one of my guardian angels with me when ever I drive, and to also keep me from harming anyone else. I look at having my license as a priviledge that I don't plan on taking for granted. I will not drive if I have a seizure. I couldn't live with hurting or killing anyone. My Hubby is very stricked about my seizures and driving. He would take my keys in a heartbeat. I am glad that he loves me that much. Have a great evening and God Bless.

Re: Re: Driving

Submitted by aquila316 on Fri, 2006-04-28 - 18:28
Here in Florida there have been several deaths due to driving and seizures. The Florida courts set a new president by convicting someone of vehicular homicide, and that person was sentenced to life in prison. As a result, now whenever ANYONE goes to get a new license or a renewal (even with no history of epilepsy/seizures whatsoever) the first question they ask is "have you ever had a seizure?". I know it sucks having to take the bus, but like I stated in a different forum, it is no safer than the drunks that are on our roads every night. Susan

Re: Re: Driving

Submitted by ivy on Fri, 2006-04-28 - 18:51
zoe49576, I too feel extremely independent with my complex partials. Used to drived everywhere. I was driving home one afternoon and had an aura. As I drove on the the ramp to get to freeway went into sz. From here on, my memory is shot...got bumped by a car from behind that pushed me into other lane of cars coming from opposite direction. Got hit head on by 18 wheeler who was going 70 mph and here I sit to talk about it. I made it A-OK--my car did not. Truck driver is OK, too. Please,please be very careful with " being independent". I still work 40 hrs a week, sometimes ride a bike,take cab,have friends or neighbors take me. My life is more important than being independent. Ivy

Re: Re: Re: Driving

Submitted by suebear on Tue, 2006-11-21 - 02:23
I happen to stumble across this thread and have to make a post in it. I've been having seizures since birth up until about 6 months ago. Prior to that I was seizure free for approx 4 or 5 yrs when there was a high consideration for getting my driver's license for the first time. I had moved out to the midwest (Iowa) from my home town on the east coast so it's an entirely set of different state laws obviously. I believe in Iowa it was something like six months but in any case I wasn't thinking too much about it at the time because college was on my mind. Anyway. What has thrown everything out of whack has been the seizes coming back; not only that I've been really considering the fact of what I'd be looking at should I start driving and if it is worth me being behind the wheel. Sure I'd have the independence and the ability to go places but is it really worth it? My husband and I are always going places together - stuck like glue - and whenever I need to get somewhere he's always right there to take me so that's never been an issue. I think of the freedom that I would have when I get my driver's license and the ability to go places but then there's the other side of the coin when things don't quite mesh and I've got that small "what if" voice asking questions. Perhaps thoughts might change in the future but for now I don't see it happening. I appreciate everyone sharing their stories both good and not so good. It is surely an eye opening event for me.

Re: Re: Re: Re: Driving

Submitted by wichitarick on Tue, 2006-11-21 - 11:26
hi I am 43 and I have not driven for yrs. It is 6 mos seizure free in this state. that has never happened for me. I ride the bus . I worked with a lady who has ?? simple ?? not sure but where you go into a blank stare and a few other things up to falling down and going blank for 30 seconds then she remembers everything and goes back to what she was doing?? she is still driving and drove back and forth from the country to town daily for work for 15 yrs. whew scary. I had another friend who was an insurance man and he gave me some details that are not talked about to often ,getting the license is easy but you need insurance and if you lie on these forms they are VOID. and if you tell the truth A. they may not give it to you or B.THE price goes way up. also the fine print on some insurance forms is what will be in court . just imagine the worst case scenario, I mean for real it happens a lot it just happened here where two people were killed because a man had a bad reaction to his meds and ran over two bicycles. sad but true and they are investigating to press charges. If you lied about anything they will press those charges. sorry to ramble but the real world is where we live. there are a million people out there taking there meds and driving but I had a very good attorney tell me a few yrs ago tell me not to worry because what seperates a great attorney and a great judge from good ones was their ability to read the fine print. example ..I had an ambulance call just awhile ago for a seizure. I go get my license. I seize and wreck. I go to court d.a.,s office finds this hosp. record . oops I lied oops I,m busted . I read here just the other day where a guy wrecked 3 times while seizing whew ,,,,scary.. Rick

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