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Does any1 else wiv epilepsy seem to have a bed wetting problem?

Sun, 07/31/2005 - 21:44
hi im a 17 year old girl and i was wondering if anyone else wiv epilepsy has a bed wetting problem. im really embarrassed about it and dont like talkin to my doctor about it. if anyone on here has the same problem, knows any1 who has the same problem or no's any1 who wets the bed then can you please help me !! i really need help ive wet the bed all my life n its getting me down because i cant sleep in my friends house!!

Comments

RE: Does any1 else wiv epilepsy seem to have a bed wetting probl

Submitted by sophie3272 on Sun, 2005-07-31 - 20:20

Stacy,

I feel so bad for you because I can totally sympathize. I was completely healthy until I turned 27 and got epilepsy, and with that came nocturnal convulsive seizures and bed-wetting.  I was so horrifingly embarrassed that I could BARELY tell my neurologist the first time it happened...but knew I had to since that was the only way the problem could be addressed.  I'm so sorry this is happening to you, but you need to talk about it (terrible as that seems) for it to hopefully get treated and improve.  I still have this happen from time to time and am always nervous when I'm not sleeping home, but with the right meds, it's improved a lot.  I really hope it does for you too - best wishes.  Just know there's other people who have gone through the same thing, and also remember that the docs understand; my neurologist was totally cool and understanding - I'm sure yours will be too.   

Stacy,

I feel so bad for you because I can totally sympathize. I was completely healthy until I turned 27 and got epilepsy, and with that came nocturnal convulsive seizures and bed-wetting.  I was so horrifingly embarrassed that I could BARELY tell my neurologist the first time it happened...but knew I had to since that was the only way the problem could be addressed.  I'm so sorry this is happening to you, but you need to talk about it (terrible as that seems) for it to hopefully get treated and improve.  I still have this happen from time to time and am always nervous when I'm not sleeping home, but with the right meds, it's improved a lot.  I really hope it does for you too - best wishes.  Just know there's other people who have gone through the same thing, and also remember that the docs understand; my neurologist was totally cool and understanding - I'm sure yours will be too.   

Re: RE: Does any1 else wiv epilepsy seem to have a bed wetting

Submitted by Jenny1143 on Sat, 2009-04-04 - 03:24

I saw a normal doctor for this reason (bed wetting) and he told me that it had nothing to do with epilepsy. See, I have petit mal and I am on medician, I'm going to the nuerologist in a week so now I know to ask him. I thought I was alone.

I saw a normal doctor for this reason (bed wetting) and he told me that it had nothing to do with epilepsy. See, I have petit mal and I am on medician, I'm going to the nuerologist in a week so now I know to ask him. I thought I was alone.

Re: RE: Does any1 else wiv epilepsy seem to have a bed wetting

Submitted by kay69 on Sat, 2009-04-11 - 05:19

Stacey-

I really feel for you, I was a bed wetter up to when I was 19, my szs started when I was 14. I had it blamed on everything from sleeping too deeply, to an overactive bladder to emotional/phsychological. I went through all the tricks- alarms, buzzers, no drinking after 3pm etc but made no difference.  I missed out on a lot of things too like school camps and sleepovers. It's been years now but I haven't forgotten how it ruined a lot of my life.

I found out much later on I have a condition known as Intersticial Cysytitis/Painful Bladder Syndrome which can cause frequency/urgency of urination and also accounts for the pelvic pain I suffer from, and not terribly easy to diagnose unless you strike a doctor who knows to look for it. I'm on meds that mostly control this and I know what foods to keep out of my diet to avoid a flare-up, but there's still problems casued by the frequency/urgency part.

Somewhat ironically I've only been incontinent form tonic-clonic sz 3 times, and that was in my late teens and during the day. My TCs are all nocturnal and I've never wet myself.

I can't add to what the others here have said about establishing if it's related to your szs or some other cause. I really hope you are able to find the answer and hopefully a solution, because it really is a horrible thing to live with, and I totally empathise.

kay xx

Stacey-

I really feel for you, I was a bed wetter up to when I was 19, my szs started when I was 14. I had it blamed on everything from sleeping too deeply, to an overactive bladder to emotional/phsychological. I went through all the tricks- alarms, buzzers, no drinking after 3pm etc but made no difference.  I missed out on a lot of things too like school camps and sleepovers. It's been years now but I haven't forgotten how it ruined a lot of my life.

I found out much later on I have a condition known as Intersticial Cysytitis/Painful Bladder Syndrome which can cause frequency/urgency of urination and also accounts for the pelvic pain I suffer from, and not terribly easy to diagnose unless you strike a doctor who knows to look for it. I'm on meds that mostly control this and I know what foods to keep out of my diet to avoid a flare-up, but there's still problems casued by the frequency/urgency part.

Somewhat ironically I've only been incontinent form tonic-clonic sz 3 times, and that was in my late teens and during the day. My TCs are all nocturnal and I've never wet myself.

I can't add to what the others here have said about establishing if it's related to your szs or some other cause. I really hope you are able to find the answer and hopefully a solution, because it really is a horrible thing to live with, and I totally empathise.

kay xx

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