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Cabin fever is real

Fri, 12/13/2019 - 11:53
I can't leave the house unintended because of my seizure frequency. The only other ONE person in my life, my wife, does not have car, license or reliable friends. The nearest bus stop is 7 miles and my wife works full time I'm not making her walk on her days off. Uber isn't an option unless it's free. (I already used this website's promo) I can't even walk around and be present in my yard/neighborhood because I have a complicated living situation. What the **** am I supposed to do indoors with zero dollars, and no social skills.

Comments

Hi,Thank you for posting, we

Submitted by Anonymous on Fri, 2019-12-13 - 14:46
Hi,Thank you for posting, we understand your frustrations. Being diagnosed with epilepsy can be upsetting and make you feel isolated and alone. However, it’s important to remember that you are not alone, and we are here to help support you. If you ever need to speak with someone please contact our Epilepsy and Seizures 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources, 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline   One of the most important things to help you live with epilepsy is to find a support network. Learn more about your community support options here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concerns You may want to consider participating in treatment, seizure and lifestyle management programs, (from home), which can help people with epilepsy learn skills to better manage their epilepsy and its effects on daily life: https://www.epilepsy.com/learn/managing-your-epilepsy/what-managing-epilepsy-well-network It is also important to recognize that epilepsy is more than just seizures, overall well-being and emotional health is just as important:  https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health   The Wellness Institute:  epilepsy.com/wellness   ,has many helpful and easy-to-use tips & resources for maintaining a healthy lifestyle and maximizing the quality of life for you & your family.  For practical & effective strategies to enhance your well-being, learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/wellness-support-tools

I hope things get better for

Submitted by Lilly Mota on Fri, 2019-12-13 - 16:03
I hope things get better for you. I understand the frustration but sometimes you have to take life by the horns. I know is a stupid analogy but is the best way I can explain it. I have no idea how many seizures you are having a day or how intense they are but I know through experience that things do get better. 

You may qualify for an aide,

Submitted by Sarah G. on Sun, 2019-12-15 - 01:02
You may qualify for an aide, free transportation for medical visits and other benefits. Also, depending on where you live, there can be free events for you to attend. Try calling your local Aging and Adult Services. They may be able to refer you to the right place. I've had a very severe case of Rheumatoid Arthritis for over 15 years. It went into remission last year. Now, I have epilepsy. My main problem is the severe depression and tiredness that is associated with the disease and the Keppra that I take twice a day. I sincerely wish you the best and hope this info helps you. Don't give up!

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