That butterfly feeling

 Hi,Thank you for posting. It’s important that you're able to identify your auras and how that makes your body feel. It’s also important that you review this further with your healthcare team and if you experience any changes in seizure types, frequency, side effects, behaviors and symptoms, to determine what individual treatment plan is best for you. Seizures can take on many different forms and affect different people in different ways. Some commonly reported symptoms before a seizure include, nausea or other stomach feelings (often a rising feeling from the stomach to the throat), “strange” feelings and fear/panic(often negative or scary feelings). To learn more about seizures and auras, please visit: https://www.epilepsy.com/learn/about-epilepsy-basics/what-happens-during-seizureIf you do not already, you may want to consider keeping a journal or a diary. My Seizure Diary:https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for identifying & tracking seizures, setting reminders,managing medications & side effects, recording medical history, moods, behaviors, triggers, and other personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team. Review our seizure alert device factsheet with your doctor, to see if a seizure alert device is an option for you: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfAdditionally, you may always to contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help,hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline 

Yes I've had a similar sensation much of my life with my seizures.  It's a tickle in the stomach with a sour smell and taste.  As a child and teen I always felt foolish expressing this to my doctors as it seemed so crazy.  Like you I worried my doctors would think it is all just anxiety.  Later I learned that my focal seizures come from my right temporal lobe which is responsible for emotion and lead to this anxious feeling.  Smell and taste are also processed in the temporal lobe.  What you are experiencing is not uncommon, but that sudden and intense onset can seem strange and frightening.Mike

Auras are different for everyone and it’s important to realize that sometimes you may have them and other times you may not. I sometimes feel a “wave” come over me. It’s just a sensation and then like Michael said I even get a bad taste or sense of smell at the same time and feel somewhat sick to my stomach. But, mine is all part of the beginning of my seizure as the auditory sounds start at the same time and then go on for the duration whereas the initial sensation that you call “aura” may only last the first few seconds and many times I don’t get that part at all. So, my point is that it’s good that you’ve been able to identify it, it’s important to share that with your doctor and keep track of anything else that you may be able to identify, but remember that seizures are unpredictable and you cannot always depend on an aura to warn you all the time.