Am I getting too old?

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About 3 months ago, I turned 49, and in 3 months, I will have had epilepsy for 49 years. Just about 10 days ago, living with epilepsy has turned difficult. Do any of you out there have any ideas how I can find peace? I’ve thought of attending the Epilepsy Foundation group, but I just don’t know if that would work for me.

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Hi Eglestad,I'm 55 years old,

Submitted by irangel on Wed, 2020-01-08 - 18:38

Hi Eglestad,I'm 55 years old, not have had any grand mal nor petit mal seizures for the last 30+ years and I have not taken any anti-seizure for 40 years now, but I've had Myoclonic seizures whenever I have contact to calcium carbonate and my Myoclonic seizures will begin that very night when I'm trying to fall asleep, and continues for a few days after being exposed.Here are just some of the non-food items where calcium carbonate exists: Mortar Mix, Cat Litter, Latex Paint, Latex/Vinyl/Nitrile Gloves. Calcium carbonate also exists in food. We all know we need need both calcium and carbohydrates to live a healthy life. And, yes, now that I'm 55 years old, my epilepsy is becoming more difficult to live with. Here's my theory, my body wants more calcium to avoid my worsening osteoporosis (the weakening of bones), but the problem is I don't know what is the best calcium to carbon ratio for this new year of 2020. And most likely that ratio will need to change as I get older.And the other problem that I have is: I have yet to find a neurologist that believes me when I say I have a high sensitivity to calcium carbonate that is directly linked to my Myoclonic seizures......even after informing 2 neurologists in the past 2 months that after I bought a bottle of powdered calcium carbonate and placed a 1/2 tsp of the power directly on my hands along with a small amount of water, my Myoclonic "tics" began. I was even hospitalized for 4 1/2 days in an EMU (Epilepsy Monitoring Unit) where I wore nitrile gloves on the 2nd & 3rd day, followed by direct contact to powered calcium carbonate on the 4th day. The Neurologist wanted to try to trigger a full blown seizure. At the end, it only triggered Myoclonic "tics" and then the Neurologist wanted me to see a Psychologist to rule out the possibility that the tics where psychosomatic. My husband laughed at that one.Right now all I have is my husband of 22 years that believes me, and only because he has helped me by finding and confirming the common thread between Mortar Mix, Latex Paint, Cat Litter, and Latex/Vinyl/Nitrile Gloves.BTW - When my calcium level is 9.7 or higher and I drink natural spring water that contains calcium chloride, I develop ABS (Auto Brewery Syndrome) like symptoms. And here's another unusual symptom, when I eat two pieces of charred toast, then starting the very next day I develop Alzheimer's symptom over the duration of 3-4 days. Charred toast contains a lot of carbon....which is a other word for charcoal. May each day gets better for you.Irma

Hi Eglestad,I'm 55 years old, not have had any grand mal nor petit mal seizures for the last 30+ years and I have not taken any anti-seizure for 40 years now, but I've had Myoclonic seizures whenever I have contact to calcium carbonate and my Myoclonic seizures will begin that very night when I'm trying to fall asleep, and continues for a few days after being exposed.Here are just some of the non-food items where calcium carbonate exists: Mortar Mix, Cat Litter, Latex Paint, Latex/Vinyl/Nitrile Gloves.  Calcium carbonate also exists in food.  We all know we need need both calcium and carbohydrates to live a healthy life. And, yes, now that I'm 55 years old, my epilepsy is becoming more difficult to live with. Here's my theory, my body wants more calcium to avoid my worsening osteoporosis (the weakening of bones), but the problem is I don't know what is the best calcium to carbon ratio for this new year of 2020.  And most likely that ratio will need to change as I get older.And the other problem that I have is:  I have yet to find a neurologist that believes me when I say I have a high sensitivity to calcium carbonate that is directly linked to my Myoclonic seizures......even after informing 2 neurologists in the past 2 months that after I bought a bottle of powdered calcium carbonate and placed a 1/2 tsp of the power directly on my hands along with a small amount of water, my Myoclonic "tics" began.  I was even hospitalized for 4 1/2 days in an EMU (Epilepsy Monitoring Unit) where I wore nitrile gloves on the 2nd & 3rd day, followed by direct contact to powered calcium carbonate on the 4th day.  The Neurologist wanted to try to trigger a full blown seizure.  At the end, it only triggered Myoclonic "tics" and then the Neurologist wanted me to see a Psychologist to rule out the possibility that the tics where psychosomatic.  My husband laughed at that one.Right now all I have is my husband of 22 years that believes me, and only because he has helped me by finding and confirming the common thread between Mortar Mix, Latex Paint, Cat Litter, and Latex/Vinyl/Nitrile Gloves.BTW - When my calcium level is 9.7 or higher and I drink natural spring water that contains calcium chloride, I develop ABS (Auto Brewery Syndrome) like symptoms.  And here's another unusual symptom, when I eat two pieces of charred toast, then starting the very next day I develop Alzheimer's symptom over the duration of 3-4 days.  Charred toast contains a lot of carbon....which is a other word for charcoal. May each day gets better for you.Irma 

Hi Eglestad,I'm 55 years old, not have had any grand mal nor petit mal seizures for the last 30+ years and I have not taken any anti-seizure for 40 years now, but I've had Myoclonic seizures whenever I have contact to calcium carbonate and my Myoclonic seizures will begin that very night when I'm trying to fall asleep, and continues for a few days after being exposed.Here are just some of the non-food items where calcium carbonate exists: Mortar Mix, Cat Litter, Latex Paint, Latex/Vinyl/Nitrile Gloves. Calcium carbonate also exists in food. We all know we need need both calcium and carbohydrates to live a healthy life. And, yes, now that I'm 55 years old, my epilepsy is becoming more difficult to live with. Here's my theory, my body wants more calcium to avoid my worsening osteoporosis (the weakening of bones), but the problem is I don't know what is the best calcium to carbon ratio for this new year of 2020. And most likely that ratio will need to change as I get older.And the other problem that I have is: I have yet to find a neurologist that believes me when I say I have a high sensitivity to calcium carbonate that is directly linked to my Myoclonic seizures......even after informing 2 neurologists in the past 2 months that after I bought a bottle of powdered calcium carbonate and placed a 1/2 tsp of the power directly on my hands along with a small amount of water, my Myoclonic "tics" began. I was even hospitalized for 4 1/2 days in an EMU (Epilepsy Monitoring Unit) where I wore nitrile gloves on the 2nd & 3rd day, followed by direct contact to powered calcium carbonate on the 4th day. The Neurologist wanted to try to trigger a full blown seizure. At the end, it only triggered Myoclonic "tics" and then the Neurologist wanted me to see a Psychologist to rule out the possibility that the tics where psychosomatic. My husband laughed at that one.Right now all I have is my husband of 22 years that believes me, and only because he has helped me by finding and confirming the common thread between Mortar Mix, Latex Paint, Cat Litter, and Latex/Vinyl/Nitrile Gloves.BTW - When my calcium level is 9.7 or higher and I drink natural spring water that contains calcium chloride, I develop ABS (Auto Brewery Syndrome) like symptoms. And here's another unusual symptom, when I eat two pieces of charred toast, then starting the very next day I develop Alzheimer's symptom over the duration of 3-4 days. Charred toast contains a lot of carbon....which is a other word for charcoal. May each day gets better for you.Irma

Hi, Thank you for posting, it

Submitted by Anonymous on Thu, 2020-01-09 - 15:26

Hi, Thank you for posting, it sounds like you’ve been through a lot. Being diagnosed with epilepsy can be upsetting and make you feel isolated and alone. However, it’s important to remember that you are not alone, and we are here to help support you. If you ever need to speak with someone please contact our Epilepsy and Seizures 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources.1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline One of the most important things to help you live with epilepsy is to find a support network. Learn more about your community support options here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concernsOr contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates to find support groups, events, and programs in your community. Additionally, you may want to consider participating in treatment, seizure and lifestyle management programs, which can help people with epilepsy learn skills to better manage their epilepsy and its effects on daily life: https://www.epilepsy.com/learn/managing-your-epilepsy/what-managing-epilepsy-well-network It is also important to recognize that epilepsy is more than just seizures, overall well-being and emotional health is just as important: https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health The Wellness Institute: epilepsy.com/wellness ,has many helpful and easy-to-use tips & resources for maintaining a healthy lifestyle and maximizing the quality of life for you & your family. For practical & effective strategies to enhance your well-being, learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/wellness-support-tools

My mom lives with epilepsy

Submitted by landy5277 on Mon, 2020-01-13 - 05:39

My mom lives with epilepsy all her life and yeah it gets harder with age. the recurring brain damage does that it tool on her but she is doing good. You should try to contact your physician for any additional info or if you have questions. This link helped me out a lot at well: [url= https://www.epilepsy.com/learn/challenges-epilepsy/social-concerns] https://www.epilepsy.com/learn/challenges-epilepsy/social-concerns[/url]