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Adult Onset Absence Seizures
Sat, 12/14/2019 - 17:27Hi. This is my 1st post...
At the age of 40, I had my first (observed) absence seizure. No one knew at that time what it was. I’ve had every test possible—MRI, EEG-in office & ambulatory, CT—all clear. I had a pretty bad car accident 2 1/2 years ago (luckily it was only myself involved). I have not driven a car since. I am currently taking topirimate and Lamictal—increased dose after increase dose. My seizures are more frequent now than when I started. No one—including my neurologist—knows what to do. We’ve tried everything & nothing helps. I feel like I’m popping pills for nothing. Has anyone else had an experience like this? Thoughts? Advice? Thank you in advance!
Comments
Hi, I am new to this site and
Submitted by Genise19 on Wed, 2020-03-04 - 15:32
Hi, I am new to this site and was wondering how you are doing? I read your post and surprised no one answered? I believe i may be experiencing the same type and was wondering what you symptoms are and how are dealing with it?
Hi, Thank you for posting, it
Submitted by Anonymous on Mon, 2019-12-16 - 09:13
Hi, Thank you for posting, it sounds like you’ve been through a lot. Treatment and how your body may react to certain medications varies for each individual. To learn more about medications you take, please visit: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/side-effectsIt’s important that you’re following- up with your healthcare team to determine what individual treatment plan is best for you and if you continue to experience any changes in seizure frequency, seizure types, side effects, symptoms, and behaviors. If you have not already, you may want to consider seeing an epileptologist (epilepsy specialist) or seeking a second opinion. For information regarding second opinions, visit: https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-team/second-opinionsand assistance finding a specialist near you,visit: https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialistYou may also want to consider keeping a journal or diary. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for identifying & tracking seizures, setting reminders,managing medications & side effects, recording medical history, moods, behaviors, triggers,and other personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team. Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline