absent seizures

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Hello, I am suffering from epilepsy from the last 8 years.have been operated twice .i am on regular mediation of Torleva, Clobazam, and Tegrital. Although the frequency has decreased I am not seizure-free which was expected after the second surgery. This has affected my career immensely. I am a CA final student which demands many hours of study but unfortunately, I Am unable to do so because of the seizures. Kindly suggest something about the treatment.

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Hi, Thank you for posting and

Submitted by Anonymous on Tue, 2020-02-04 - 09:10

Hi, Thank you for posting and we understand your frustrations and concerns. Goals and expectations after surgery will vary for each person. It's important that you’re continuing to address these concerns with your healthcare team and if you experience any changes in seizure frequency/types, side effects, symptoms, moods and behaviors to help determine what individual treatment plan is best for you. If you feel you cannot talk openly with your healthcare team, or that you aren’t working towards the same goals, it may be time to get a second opinion. For information regarding second opinions, or assistance finding an epileptologist (epilepsy specialist) near you, please visit:https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-team/second-opinions It may be helpful to see a vocational rehabilitation counselor to help you navigate your career. https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-team/vocational-rehabilitation-counselorsIn many communities the local Epilepsy Foundation offers programs and resources to help connect you with vocational counselor,or visit: https://www.epilepsy.com/living-epilepsy/independent-living/employment/finding-employmentfor additional employment resources.We know that living with epilepsy is more than seizures, it also means learning how to handle the way epilepsy affects your life including your physical well-being, social and emotional health. https://www.epilepsy.com/learn/managing-your-epilepsyYou may want to consider keeping a journal or diary. My Seizure Diary:https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for identifying & tracking seizures, setting reminders, managing medications & side effects, recording medical history, moods, behaviors, triggers, and other therapies or personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team. Additionally, you may also want to consider participating in treatment, seizure and lifestyle management programs, which can help people learn skills to better manage their epilepsy and its effects on daily life: https://www.epilepsy.com/learn/managing-your-epilepsy/what-managing-epilepsy-well-network Or contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, orcontactus@efa.org. epilepsy.com/helpline

Hi, Thank you for posting and we understand your frustrations and concerns. Goals and expectations after surgery will vary for each person. It's important that you’re continuing to address these concerns with your healthcare team and if you experience any changes in seizure frequency/types, side effects, symptoms, moods and behaviors to help determine what individual treatment plan is best for you. If you feel you cannot talk openly with your healthcare team, or that you aren’t working towards the same goals, it may be time to get a second opinion. For information regarding second opinions, or assistance finding an epileptologist (epilepsy specialist) near you, please visit:https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-team/second-opinions It may be helpful to see a vocational rehabilitation counselor to help you navigate your career. https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-team/vocational-rehabilitation-counselorsIn many communities the local Epilepsy Foundation offers programs and resources to help connect you with vocational counselor,or visit: https://www.epilepsy.com/living-epilepsy/independent-living/employment/finding-employmentfor additional employment resources.We know that living with epilepsy is more than seizures, it also means learning how to handle the way epilepsy affects your life including your physical well-being, social and emotional health. https://www.epilepsy.com/learn/managing-your-epilepsyYou may want to consider keeping a journal or diary. My Seizure Diary:https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for identifying & tracking seizures, setting reminders, managing medications & side effects, recording medical history, moods, behaviors, triggers, and other therapies or personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team. Additionally, you may also want to consider participating in treatment, seizure and lifestyle management programs, which can help people learn skills to better manage their epilepsy and its effects on daily life: https://www.epilepsy.com/learn/managing-your-epilepsy/what-managing-epilepsy-well-network Or contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, orcontactus@efa.org. epilepsy.com/helpline  

Hi, Thank you for posting and we understand your frustrations and concerns. Goals and expectations after surgery will vary for each person. It's important that you’re continuing to address these concerns with your healthcare team and if you experience any changes in seizure frequency/types, side effects, symptoms, moods and behaviors to help determine what individual treatment plan is best for you. If you feel you cannot talk openly with your healthcare team, or that you aren’t working towards the same goals, it may be time to get a second opinion. For information regarding second opinions, or assistance finding an epileptologist (epilepsy specialist) near you, please visit:https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-team/second-opinions It may be helpful to see a vocational rehabilitation counselor to help you navigate your career. https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-team/vocational-rehabilitation-counselorsIn many communities the local Epilepsy Foundation offers programs and resources to help connect you with vocational counselor,or visit: https://www.epilepsy.com/living-epilepsy/independent-living/employment/finding-employmentfor additional employment resources.We know that living with epilepsy is more than seizures, it also means learning how to handle the way epilepsy affects your life including your physical well-being, social and emotional health. https://www.epilepsy.com/learn/managing-your-epilepsyYou may want to consider keeping a journal or diary. My Seizure Diary:https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for identifying & tracking seizures, setting reminders, managing medications & side effects, recording medical history, moods, behaviors, triggers, and other therapies or personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team. Additionally, you may also want to consider participating in treatment, seizure and lifestyle management programs, which can help people learn skills to better manage their epilepsy and its effects on daily life: https://www.epilepsy.com/learn/managing-your-epilepsy/what-managing-epilepsy-well-network Or contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, orcontactus@efa.org. epilepsy.com/helpline

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