Community Forum Archive
Topic: Infantile Spasms & Tuberous Sclerosis
06/2020 | 2 Comments
Hi everyone, I am looking for some advice on this, as I have no idea if I am being too worried, or if I have good reason to be... About 2 weeks ago my...
02/2020 | 1 Comments
Hello, My two month old had an abnormal EEG but the results didn't show signs of a seizure nor has he displayed any. Has anyone experienced this...
01/2020 | 1 Comments
My 1 mo baby boy started having seizures from 6th day of life. We went through every test possible and now awaiting genetics report. His seizures are...
08/2018 | 1 Comments
Not sure if I've already posted this. I tried to before but I don't think it worked, because I've only just registered. I have been using the epilepsy...
05/2018 | 2 Comments
HI, My husband and I are planning to settle in the US with our 1 1/2 year old son who has infantile spasms. We have previously had him treated at the...
01/2018 | 1 Comments
My son was diagnosed with infantile spasms at 4 months old, he was prescribed a steroid but it didn't seem to help so they switched him to vigabatrin...
06/2017 | 2 Comments
My son is 2 and contracted encephalitis (Herpes Virus) when he was 9 months old in September 2015. He recovered well and seemed to regain his current...
07/2016 | 1 Comments
I know something is wrong with my daughter. She's 12 weeks old and has these spasms jerking movements. Multiple times a day, is there anyone I can...
02/2016 | 2 Comments
When my son Max was 4 months old he started having seizures. Hundreds every day. Infantile Spasms they were called. My husband and I were devastated...
03/2015 | 1 Comments
My 6 month old daughter was diagnosed with Band heterotopia and has had multiple seizures since the diagnosis last week. They put her on Keppra but...
05/2014 | 0 Comments
My daughter was diagnosed with West Syndrome at 3 months in May 2013 and was given Sabril as the primary method of treatment. We had tried the ACTH...