Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Infantile Spasms & Tuberous Sclerosis

1 mo baby having 7 seizures a day

01/2020 | 1 Comments

My 1 mo baby boy started having seizures from 6th day of life. We went through every test possible and now awaiting genetics report. His seizures are...
Has my nephew inherited my epilepsy?

08/2018 | 1 Comments

Not sure if I've already posted this. I tried to before but I don't think it worked, because I've only just registered. I have been using the epilepsy...
Infantile spasms

01/2018 | 1 Comments

My son was diagnosed with infantile spasms at 4 months old, he was prescribed a steroid but it didn't seem to help so they switched him to vigabatrin...
Please Help

06/2017 | 2 Comments

My son is 2 and contracted encephalitis (Herpes Virus) when he was 9 months old in September 2015. He recovered well and seemed to regain his current...
Please help??

07/2016 | 1 Comments

I know something is wrong with my daughter. She's 12 weeks old and has these spasms jerking movements. Multiple times a day, is there anyone I can...
Don't lose hope

02/2016 | 2 Comments

When my son Max was 4 months old he started having seizures. Hundreds every day. Infantile Spasms they were called. My husband and I were devastated...
6 month old infantile spasms

03/2015 | 1 Comments

My 6 month old daughter was diagnosed with Band heterotopia and has had multiple seizures since the diagnosis last week. They put her on Keppra but...

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.