Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

im 18 just had my first seizures last week

Sun, 05/24/2009 - 19:25
so im 18 i live in a small town in idaho. and last saturday i think it was the 16th of may i spent the nite at a friends house. when i woke up i was on the floor i felt funny so i got up and fell casue i was weak so i went to the bathroom and fell in there.  i was confused so i drove to my parents house and my mom told me to go the er so i went and they thought i had spinal meningitis. it came back neg. and then on sunday i woke up to having oxygen on my face and my mom next to me i asked for her after i had another seizure 4am and i had no clue what was happining and on wednesday i had an eeg and this tuesday i find out what it is. but it does not run in my family. i also bit my tounge so bad it was black dark black i had to take my tounge ring out  

Comments

Re: im 18 just had my first seizures last week

Submitted by rikk on Sun, 2009-05-24 - 20:02

hi,

first you are not alone.  All the fears, confusion and concerns are all real.  You are not looseing your mind.    The first thing to do, you have already started.  Educate yourself.  Everything you can find out.  Types of seizures,  types of medications,  types of resourses that are available, everything you can do to limit the possibility of others occuring.   Keep a journal, diary, record of the seizures.  put down everything that you know, and ask anybody that has information about what happened.  include time, activity, diet,  sleep, stresses,  alcohol, or the use of over the counter, prescription, or illegal medications, drugs.

Seizures are a problem with the brain, not the mind.  It is a short circuit.  testing is trying to find out what is going on, and to help put together a plan to control the seizures.  Family history is not all that important.  It is valuable.  For the most part.  The person diagnosised with a seizure disorder, is usually the first and only.

Expectations can be addressed.  It is better to see what the tests show, and what the medication effects are.  Education is the most important part in learning to accept, learn, and adapt to seizures. 

We will help with what we can.  any question, concern, or a shoulder to cry on, or blow off steam too.  We all go through this and at best it is difficult.  It can be handled.  It is earier with help.  hope this helps.  rikk

hi,

first you are not alone.  All the fears, confusion and concerns are all real.  You are not looseing your mind.    The first thing to do, you have already started.  Educate yourself.  Everything you can find out.  Types of seizures,  types of medications,  types of resourses that are available, everything you can do to limit the possibility of others occuring.   Keep a journal, diary, record of the seizures.  put down everything that you know, and ask anybody that has information about what happened.  include time, activity, diet,  sleep, stresses,  alcohol, or the use of over the counter, prescription, or illegal medications, drugs.

Seizures are a problem with the brain, not the mind.  It is a short circuit.  testing is trying to find out what is going on, and to help put together a plan to control the seizures.  Family history is not all that important.  It is valuable.  For the most part.  The person diagnosised with a seizure disorder, is usually the first and only.

Expectations can be addressed.  It is better to see what the tests show, and what the medication effects are.  Education is the most important part in learning to accept, learn, and adapt to seizures. 

We will help with what we can.  any question, concern, or a shoulder to cry on, or blow off steam too.  We all go through this and at best it is difficult.  It can be handled.  It is earier with help.  hope this helps.  rikk

Re: im 18 just had my first seizures last week

Submitted by tenacious on Fri, 2011-06-17 - 02:24
18, Life is not over, Stress, lack of sleep and poor diet are the triggers. Stay relaxed. listen to your gut instincts about what caused it. your doctor is not always right. go to a neurologist, regular docs have no clue. Some Ep meds can make you feel worse so try another type if you want. Take control, don't be controlled !

Re: im 18 just had my first seizures last week

Submitted by jc-32 on Thu, 2009-09-17 - 00:55
Keep a journal!!! and you are not alone i went through a year of stuff when i was just a year older than you before they found out what was wrong. My heart was also stoping though causing my whole body to shut down so thats why it took so long to find. but my first and for most advice is AVOID alcohol, your already not incontrol of your body as it is, and it makes it worse, and KEEP A JOURNAL!!! Detail be anal about it! it will help you and your doctors a great deal! Even have people video tape your episodes every now and if you can and have them frequently. Good luck and dont worry, you have a community backing behind you. and GO BOISE STATE!!

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.