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im 18 just had my first seizures last week

so im 18 i live in a small town in idaho. and last saturday i think it was the 16th of may i spent the nite at a friends house. when i woke up i was on the floor i felt funny so i got up and fell casue i was weak so i went to the bathroom and fell in there.  i was confused so i drove to my parents house and my mom told me to go the er so i went and they thought i had spinal meningitis. it came back neg. and then on sunday i woke up to having oxygen on my face and my mom next to me i asked for her after i had another seizure 4am and i had no clue what was happining and on wednesday i had an eeg and this tuesday i find out what it is. but it does not run in my family. i also bit my tounge so bad it was black dark black i had to take my tounge ring out  

Comments

Re: im 18 just had my first seizures last week

Submitted by rikk on Sun, 2009-05-24 - 20:02

hi,

first you are not alone.  All the fears, confusion and concerns are all real.  You are not looseing your mind.    The first thing to do, you have already started.  Educate yourself.  Everything you can find out.  Types of seizures,  types of medications,  types of resourses that are available, everything you can do to limit the possibility of others occuring.   Keep a journal, diary, record of the seizures.  put down everything that you know, and ask anybody that has information about what happened.  include time, activity, diet,  sleep, stresses,  alcohol, or the use of over the counter, prescription, or illegal medications, drugs.

Seizures are a problem with the brain, not the mind.  It is a short circuit.  testing is trying to find out what is going on, and to help put together a plan to control the seizures.  Family history is not all that important.  It is valuable.  For the most part.  The person diagnosised with a seizure disorder, is usually the first and only.

Expectations can be addressed.  It is better to see what the tests show, and what the medication effects are.  Education is the most important part in learning to accept, learn, and adapt to seizures. 

We will help with what we can.  any question, concern, or a shoulder to cry on, or blow off steam too.  We all go through this and at best it is difficult.  It can be handled.  It is earier with help.  hope this helps.  rikk

hi,

first you are not alone.  All the fears, confusion and concerns are all real.  You are not looseing your mind.    The first thing to do, you have already started.  Educate yourself.  Everything you can find out.  Types of seizures,  types of medications,  types of resourses that are available, everything you can do to limit the possibility of others occuring.   Keep a journal, diary, record of the seizures.  put down everything that you know, and ask anybody that has information about what happened.  include time, activity, diet,  sleep, stresses,  alcohol, or the use of over the counter, prescription, or illegal medications, drugs.

Seizures are a problem with the brain, not the mind.  It is a short circuit.  testing is trying to find out what is going on, and to help put together a plan to control the seizures.  Family history is not all that important.  It is valuable.  For the most part.  The person diagnosised with a seizure disorder, is usually the first and only.

Expectations can be addressed.  It is better to see what the tests show, and what the medication effects are.  Education is the most important part in learning to accept, learn, and adapt to seizures. 

We will help with what we can.  any question, concern, or a shoulder to cry on, or blow off steam too.  We all go through this and at best it is difficult.  It can be handled.  It is earier with help.  hope this helps.  rikk

Re: im 18 just had my first seizures last week

Submitted by tenacious on Fri, 2011-06-17 - 02:24
18, Life is not over, Stress, lack of sleep and poor diet are the triggers. Stay relaxed. listen to your gut instincts about what caused it. your doctor is not always right. go to a neurologist, regular docs have no clue. Some Ep meds can make you feel worse so try another type if you want. Take control, don't be controlled !

Re: im 18 just had my first seizures last week

Submitted by jc-32 on Thu, 2009-09-17 - 00:55
Keep a journal!!! and you are not alone i went through a year of stuff when i was just a year older than you before they found out what was wrong. My heart was also stoping though causing my whole body to shut down so thats why it took so long to find. but my first and for most advice is AVOID alcohol, your already not incontrol of your body as it is, and it makes it worse, and KEEP A JOURNAL!!! Detail be anal about it! it will help you and your doctors a great deal! Even have people video tape your episodes every now and if you can and have them frequently. Good luck and dont worry, you have a community backing behind you. and GO BOISE STATE!!

Re: im 18 just had my first seizures last week

Submitted by phylisfjohnson on Mon, 2011-06-20 - 11:14
jc-32 is right. Keeping a journal of how you sleep, what you eat, daily activities (and stresses) might help discover your triggers. Also note how you feel before a seizure, during it, the duration of the seizure how you feel afterwards. Anything that results in a sudden lack of oxygen or a reduction in blood flow to the brain can cause a seizure. (The brain needs a constant supply of oxygen and nutrients to function). And if your EEG comes out negative, don't be discouraged. I know of people who have had 5 EEGs, only to be properly diagnosed when they finally had Video EEG Monitoring. Basically,an EEG is used by a neurologist to determine whether there are any irregular electrical activities occurring in the brain which may produce seizures. It can help identify the location, severity, and type of seizure disorder. An abnormal EEG does not diagnose epilepsy nor does a normal EEG reading exclude it. If you want to pursue further diagnostic testing, you might consider a Video EEG Monitoring which allows prolonged simultaneous recording of your patient’s behavior and the EEG. Seeing EEG and video data at the same time, permits precise correlation between seizure activity in the brain and the behavior during seizures. Video-EEG can be vital in the diagnosis of epilepsy and epileptic seizures. It allows the doctor to determine: Whether events with unusual features are epileptic seizures…The type of epileptic seizure, and…The region of the brain from which the seizures arise. Good luck and welcome to the forum. You've landed in a good place of friendly people who truly try to help one another, plus a site of endless information. (Remember, knowledge is power!) If you start clicking the orange bars to the left, you'll learn a lot about epilepsy, types, symptoms, and resources. Phylis Feiner Johnson www.epilepsytalk.com P.S. Epilepsy is rarely hereditary.

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