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Hair Loss and AEDs!

Fri, 09/11/2009 - 11:28
Topic: Medication Issues

I am trying to find a different seizure medication with fewer side effects. I can't take Dilantin or Keppra, for some reason my body won't  tolerate them. I am on Topamax 100mg daily (50/50). I have lost lots of hair.  ...Enough to make 2 wigs. I am lucky that I had extremely thick hair a year ago. 

But enough is enough...is ANYONE out there familiar with a medication that DOESN'T cause hair loss?

Thanks!

-Sue

Comments

Re: Hair Loss and AEDs!

Submitted by seattlecarol on Sat, 2009-09-12 - 22:31

I lost a lot of hair on Topomax too. I also had other side effects that after a year I wasn't going to get used to them. On the flipside it did work well for me.

I've since quit the Topomax and now take Lamictal. It is also successful in controlling my complex-partial seziures. 

I lost a lot of hair on Topomax too. I also had other side effects that after a year I wasn't going to get used to them. On the flipside it did work well for me.

I've since quit the Topomax and now take Lamictal. It is also successful in controlling my complex-partial seziures. 

Re: Hair Loss and AEDs!

Submitted by suebee27 on Sun, 2009-09-13 - 10:03

Thanks for your response!

After you stopped the Topomax and started to take Lamictal, did your hair start to come back?  Were the other side effects gone too? (I am a complete air-head...I can't finish sentences...ugh...) 

-Sue

Thanks for your response!

After you stopped the Topomax and started to take Lamictal, did your hair start to come back?  Were the other side effects gone too? (I am a complete air-head...I can't finish sentences...ugh...) 

-Sue

Re: Hair Loss and AEDs!

Submitted by Seruzies on Wed, 2009-09-16 - 01:34
Don't plan on hair loss to stop with Lamictal, my hair has been falling out on Lamictal ever since I started taking it. Hair loss is one of the listed side effects of Lamictal, search around for Lamictal side effects, I'm sure you'll find out more. I want to stop taking it, and that is one of the main reasons. Another main reason is that my seizures are not as controlled as they were when was taking Dilantin. My family likes to take control of my life because I have un-controlled seizures, but my seizures are not as controlled on Lamictal as they were on Dilantin. The next time I see a Neuro, there's going to be a fight about meds. My Father usually goes into the office with me when I have an appointment because my memory is so bad on Lamictal, but the next one is going to be mine, I'm going to take control of the appointment and tell the Dr of the side effects of Lamictal and why I want to get off of it and back on Dilantin. I'm sorry if I didn't answer your question about Topomax, but I think I needed to explain myself to myself about the reasons why I want to stop taking Lamictal.      

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