Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Fundraising and Awareness

Needing help getting to mayo

09/2015 | 0 Comments

My daughter was 3 when she had her first grad mal. Then said she had generiallzed epilepsy. About 6 months ago she started to stare off. Just a month...
Charity Gaming Stream

08/2015 | 0 Comments

Throwing together a bit of an impromptu charity stream to raise money and awareness. the link is www.twitch.tv/rngmobiusone. I will be going live at...
Making A Difference

04/2015 | 0 Comments

hey everyone I recently started a campaign called Making A Difference and it's an inspirational speaking campaign for topics like: Mental health...
helpmy please

02/2015 | 0 Comments

Hello friends, I am new to this and am ashamed but my 3 months was diagnosed epilepsy at 2 months, I've had to endure these past few weeks, I do live...
Epilepsy Awareness

01/2015 | 0 Comments

Hi I wanted to let people in NY and NJ know about the services provided by the Epilepsy Society of Southern NY. We plan support group meeting for...
Epilepsy Awareness Dinner in Sacrramento

11/2014 | 0 Comments

If anyone is in the Sacramento area Dr. Chez (neurologist from Sutter Health) and a family speaker from the PCDH19 Alliance group will be giving a...
K.C. is understaffed?

11/2014 | 0 Comments

I moved to Kansas City with a family member who has epilepsy. Back home, our local epilepsy foundation director was outstanding at helping people with...
How i got cured from epilepsy

11/2014 | 0 Comments

I am from Canada, I was diagnosed of Epilepsy in 2004 then i was just 17years, the disease is so disgracing and embarassing because atimes i get...
Epilepsy Awareness Promotion Idea

10/2014 | 0 Comments

I am 30 years old and have had seizures since I was a baby. I grew out of them after age 3, but they returned from about age 12 to age 15. After...
Shake Challenge

10/2014 | 0 Comments

Hi Everyone, I was wondering if those of us that have Facebook have seen a video called the "Shake Challenge." It's basically the Ice Bucket Challenge...
Connecticut/NY

09/2014 | 0 Comments

Hi Everyone, Is there anyone in Fairfield County, CT or the Westchester area that would be interested in starting a group or holding an event? There...
Raising Money and Awareness

08/2014 | 1 Comments

Hello my name is Kyle... I recently joined the forum... i've had generalized epilepsy for 22 years... I've been through some good times and well some...
Light My FIre Benefit

06/2014 | 0 Comments

Hello, My name is Kayla and I work as a PCA at Children's. I am hosting a benefit on August, 1, 2014, to raise money for Camp Flame Catcher, which is...

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