Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Family & Friends

A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Shunt Placement

11/2018 | 0 Comments

Hello, I'm new to this forum and am hoping to get some answers or find someone who has had a similar experience as my family and I are grasping at...
Keppra Side Effects: Angry BF

11/2018 | 3 Comments

So my BF start taking the Generic Keppra in May 2018 after his 2nd episode of seizures. Before then, he's always kind of had anger issues...but...
My moms fight

11/2018 | 2 Comments

My mother had epilepsy my whole life she recently died from a seizure last Friday went spend 23 years together dominated by this decease called...
Fuck this.

09/2018 | 2 Comments

Im sick of the anxiety of going to bed every night hoping I dont wake up with EMTs over me. Im sick of being so fucking tired from the medication Im...
Seizure Sense Strobe Warning Website

09/2018 | 0 Comments

If anyone has any questions about the amount of strobe lights in a movie, video game, or concert, go to this website to find complete reviews on the...
I'm not sure what to do! I need advice.

08/2018 | 3 Comments

Hello, my name is Jenevie and I am a 19 y/o in college. My sister Lily who is 17 has had absent seizures up until 8/16/18 since she was 11. She...
Seminar on Epilepsy and College!

08/2018 | 0 Comments

Seminar in Nashville on Sept. 15 for students on doing college with epilepsy! Details/Register online: studentswithepilepsy.com *For high school and...
Any advice!!!

06/2018 | 0 Comments

I am 22 years old, a month ago I was a perfectly healthy individual. But now I’m having symptoms such as seizures, passing out and a high resting...
Advice please!

06/2018 | 1 Comments

Hi, my name is Ashley and I have been married almost 11 months to my wonderful husband, and we've been together for over 6 years. Up until this past...
My husband and new parents ....

06/2018 | 2 Comments

My husband suffers with epilepsy and currently isn’t under control fully. We have recently become new parents and I’ll be due to go back to work soon...
Post Seizure activity question.

05/2018 | 2 Comments

New here, so Hello! Ok, my wife was diagnosed with epilepsy between 5-6 years ago. She is 36. But what I'm curious about is post-seizure activity. How...
My Husband was doing great until...

03/2018 | 6 Comments

My husband has had epilepsy since he was 8 years old. He's now 24, and generally his seizures had been very under control. He had maybe 1 every 6...
New here

03/2018 | 3 Comments

Hi everyone...my littlest man (17 months) was just diagnosed he started having myoclonic jerks a few months ago the neurologist found that he also may...
Is it actually epilepsy?!?

01/2018 | 2 Comments

My dad was diagnosed with epilepsy 3 1/2 years ago following a number of seizures. He takes kepra and epilim. Most seizures have been tonic clonic and...
second seizure appearance.

01/2018 | 13 Comments

My mom had a seizure about a year ago. She just had another one. She was on Keppra and then her doctor told her to no longer take it. She had the...
Skull fracture

01/2018 | 4 Comments

My daughter had a skull fracture two years ago. She was one month when it happened. No evidence of seizures yet. Should I be concerned? I am still...
Seizures following a TBI

12/2017 | 2 Comments

Hello all, my brother suffered a TBI almost 2 years ago following an assault. He has had four seizures since then. My family has no prior experience...
Reconnecting With Family After Rehab

11/2017 | 1 Comments

Numerous individuals who leave during addiction treatment at alcohol rehab are surprised when their family members don’t them a warm welcome home...
Reconnecting With Family After Rehab

11/2017 | 0 Comments

Numerous individuals who leave during addiction treatment at alcohol rehab are surprised when their family members don’t them a warm welcome home...

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