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Need help
Sun, 05/12/2019 - 02:50Topic: Epilepsy.com Help
My daughter is 3 years old.Her eyes roll up for a second and doctors did EEG which was abnormal.Neurologist told she has epilepsy and we have to so MRI with sedation.I am scared and broken.Has anyone done it for 3 yr old?She is also on Kepra now.Thought that my daughter will be sedated is making me restless.We have to do genetic testing.Please advice shall we go for MRI with sedation or take second opinion.
Comments
Hi Tradiya, Thank you for
Submitted by Anonymous on Mon, 2019-05-13 - 10:48
Hi Tradiya, Thank you for sharing your experience.It’s important to speak with your daughter’s health care team about your concerns and questions https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-teamFor more information about epilepsy & diagnosing please visit, https://www.epilepsy.com/learn/about-epilepsy-basics , https://www.epilepsy.com/learn/diagnosing-epilepsy & https://www.epilepsy.com/learn/diagnosis/genetic-testingIt also important for you as a caretaker to make sure you’retaking care of yourself as well, https://www.epilepsy.com/learn/seizures-youth/parents. The Wellness Institute https://www.epilepsy.com/living-epilepsy/our-programs/wellness-institute ,provides tools and strategies to better assist your loved one and support you in your important role.Sometimes it's helpful to connect with other people who live with epilepsy, or care for someone with epilepsy, to ask questions, share experiences, and find and give support to each other. Find your local Epilepsy Foundation at epilepsy.com/localsupport ,then contact them to find support groups, events, and programs in your community. For additional services, support, and referrals contact our 24/7 national helpline by emailing us at contactus@efa.org & by calling, 1-800-332-1000, https://www.epilepsy.com/living-epilepsy/247-helpline ,where a trained information specialist can connect you to resources, provide referrals and additional support.
One child of ours has had
Submitted by Amy Jo on Sun, 2019-05-12 - 23:16
One child of ours has had multiple MRIs under anesthesia within the first year, more since with anesthesia but hasn't used anesthesia for many years now. They don't recommend MRIs for all epilepsy patients so you are best served asking what it was about the EEG that caused them to call for one and clarify what they do to help reduce any adverse impacts for young children (generally they don't recommend this without good cause but I would consider if the neurologist is a pediatric neurologist who works with kids at a children's hospital so that the doc is up on pediatric issues). Here's one brief outline about imaging in diagnosis https://www.epilepsy.com/learn/diagnosis/looking-brain