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I need some tips on non epileptic seizures

Sat, 09/07/2019 - 16:49
I had seizure like activity where I fall and start shaking, have aura (stiffness in whole body), blurred vision, aware what I’m doing, then I get all confused after my seizures. I don’t know what is going on or why it’s happening. This has been happening for past two or three weeks. I went to see neurologist and had eeg done. It went back normal and I got told I don’t have epilepsy and I only have PNES (psychological non-epileptic seizures) which look like real seizures. And no I’m not faking them. I currently am in college and am looking for tips for being a college student with non epileptic seizures. I think that would help me so I don’t feel alone in this. And what to do if another episode happens. I have like two or three a day. That would be helpful if you have tips for non epileptic seizures. My mom suffers from epilepsy. My seizures I think are triggered from anxiety, depression and autism.

Comments

Hi ClaraKaylaMarion,  Thanks

Submitted by Anonymous on Mon, 2019-09-09 - 09:55
Hi ClaraKaylaMarion,  Thanks so much for sharing your story, it sounds like you've been through a lot. We understand this can be very scary and confusing to experience. It's important that you continue to follow-up with your healthcare team to express your concerns and discuss these episodes further. It’s also important that you discuss any increase feelings of depression,anxiety, changes in side effects, seizure types, frequency, behaviors and symptoms, to determine what individual treatment is best for you.https://www.epilepsy.com/sites/core/files/atoms/files/pg2L_HealthCareVisits_09-2018.pdf .          It’s important to remember that you are not alone. However, we know that being diagnosed with PNES can be upsetting and make you feel isolated. One of the most important things to help you live with PNES is to find a support network.  Learn more about your community support resources, here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concerns It’s also important to remember that overall well-being and emotional health is just as important:  https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health  Learn more about depression & anxiety, here: https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health/overview-depression: https://www.epilepsy.com/learn/challenges-epilepsy/moods-and-behavior/mood-and-behavior-advanced/anxiety-disordersThe Wellness Institute:  epilepsy.com/wellness   ,has many helpful and easy-to-use tips & resources for maintaining a healthy lifestyle and maximizing the quality of life for you & your family.  For practical & effective strategies to enhance your well-being, learn more here:  https://www.epilepsy.com/living-epilepsy/toolbox/wellness-support-tools College is an exciting time, but can bring on a lot of new stressors. For more information and resources on the importance of stress management, visit: https://www.epilepsy.com/living-epilepsy/healthy-living/stress-and-wellnesshttps://www.epilepsy.com/sites/core/files/atoms/files/Stress%20Management%20factsheet.pd Managing your PNES can help to lessen your risks, improve safety, and increase the chance of a successful college experience, both in and out of the classroom. https://www.epilepsy.com/learn/age-groups/youth/work-and-college/attending-collegeAs you plan for college, develop a personalized plan for managing your episodes and your learning needs. Use a diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary Track your episodes,record your medical history, medications, side effects, moods, triggers, or other personal experiences. Create a seizure response or action plan: https://www.epilepsy.com/living-epilepsy/toolbox/seizure-forms which is a helpful tool for those around you to understand what to do if you have an episode. Learn about  potential risks and safety tips: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe Learn more about things to consider for independent living , resources that are available & when help is needed: https://www.epilepsy.com/living-epilepsy/independent-living                                                                                                           For strategies, tips and resources for transitioning to college, visit:  https://www.epilepsy.com/article/2018/8/epilepsy-strategies-transitioning-college  Additionally, you may always contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 [email protected] , where a trained information specialist can connect you to resources,  provide referrals and additional support. epilepsy.com/helpline

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