Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Diagnostic Dilemmas and Testing

EEG questions

01/2018 | 1 Comments

My daughter’s neurologist is out of town and we can’t get any feedback on her recent sleep deprived EEG. I don’t know enough about EEGs to know how...
7 Day VEEG

01/2018 | 1 Comments

I had a 7 Day EEG where I was taken off all meds and they couldn't get a seizure to happen. They said since no seizures happened mu seizures were...
Misdiagnosis Possible?

12/2017 | 2 Comments

As I’m reading more about epilepsy, I read research and case studies that say narcolepsy with cataplexy is often misdiagnosed as epilepsy. Does anyone...
Searching for a Diagnosis

12/2017 | 9 Comments

Hello, I am 31 years old and just had my first seizure, ever, when my daughter (2nd child) was about 3-4 months old. I have no history of seizures. I...
JME

12/2017 | 2 Comments

I'm 19 and I had 1 confirmed seizure then 1 unwitnessed but suspected seizure. I believe they were both tonic clonic seizures as well.The first...
Deja Vu about the same thing?

12/2017 | 1 Comments

Does anyone ever have deja vu about the same thing over and over? I had an episode in October of 2017, in which I got sick from the deja vu. I had to...
New to seizures

11/2017 | 1 Comments

On 10/27/17, I walked into a room of strobe lights at a haunted house and almost instantly went into a tonic-clonic seizure. I could feel it coming on...
Seizures linked to food?

11/2017 | 0 Comments

Hi. My daughter (aged 2), has been having absent seizures for about a year (very sporadic). She has had a test, but results came back normal. She hadn...
Help Understanding EEG results

11/2017 | 6 Comments

Hi there, my daughter is 8 years old and was diagnosed with epilepsy Bach in August. She had one normal EEG in May after suffering from a seizure (we...
Help diagnosing this please

11/2017 | 1 Comments

Can you please help me diagnose this? My 6 year old daughter started having seizures about 3 weeks ago. She turns her head all the way to the left and...
Epilepsy vs POTS - misdiagnosis??

10/2017 | 1 Comments

Hello and thank you for reading this. I have a question that can prob only be definitively answered by a specialist, but i wanted to see what others...
Is this what I have?

10/2017 | 1 Comments

I hope this makes sense. Today I was driving and had an episode of Déjà Vu. The more I tried to figure out why I thought I had had this thought before...
Need help understanding test results

10/2017 | 3 Comments

I got an EEG and this is what the results said: "This EEG performed during wakefulness and drowsiness is abnormal. The posterior dominant rhythm is...
Considering invasive eeg

10/2017 | 10 Comments

I need to run something by all of you . I am 36 years old and the past decade of my life has been riddled with a variety of seizure like activity. I...
RNS on post surgical patients

10/2017 | 0 Comments

I was recently told by my doctors at a major medical center that RNS would not be a good option because previous surgery on my right temporal lobe...

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