Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Diagnostic Dilemmas and Testing

lip-smacking, Deja Vu, fear episodes

06/2020 | 0 Comments

Hi all, I have noticed that my wife (30 years old) makes lip-smacking sound often when she is asleep with rare jerks, sometimes she wakes up screaming...
Focal epilepsy that moves around

06/2020 | 2 Comments

Hi I have been diagnosed with focal epilepsy. However, where that activity originates from seem to be moving around; My first EEG's showed that the...
I don't know what to do...

05/2020 | 1 Comments

So this is probably going to be pretty long (sorry about that) but about a week ago I OD'ed on my medication (Topamax) and ever since then I've been...
72-hour VEEG - what to expect?

05/2020 | 2 Comments

Hello everyone, I had my first ever tonic-clonic seizure last Thursday, before then I now realise I also appear to have been experiencing focal...
Violent Physically Agressive Seizures

05/2020 | 2 Comments

Hello can anyone help with this..my 20 year old daughter has seizures since she was 4yrs old Every time she lets out a loud ‘woowoo’ scream and then...
Video EEG

05/2020 | 2 Comments

Hello, I am fairly new to dealing with seizures. My daughter now has a VP shunt and also has what were diagnosed as complex partial seizures a few...
Could I actually have PNES?

04/2020 | 3 Comments

Hi there I’ve been experiencing seizures since I was 9. I’m now 20 however I have only just been diagnosed as having epilepsy. My first seizure...
Aura during sleep

04/2020 | 1 Comments

Hi guys. My name is Andriani , 32 years old, had a brain surgery 4 years ago for removal of a tumor. I wanted to ask if someone experienced something...
I need help

04/2020 | 2 Comments

Hi all, I’m new to the forum. I had my very first seizure in 2017 or 2018, I remained fully conscious throughout the seizure, but experienced memory...
Struggle with epilepsy

03/2020 | 2 Comments

Hello everyone! My son is 10 years now, he has had his first tonic- clonic seizure when he was 4 years old it happened only once but age 5 the...
EEG strobe light question

03/2020 | 2 Comments

Anyone else have their eyes very rapidly 'vibrate' side to side during one of the strobe lights? It was as if my eyes were trying to follow two...
Am I developing new symptoms?

02/2020 | 2 Comments

Hi there, 4 months ago I developed what I think is TLE. My symptoms at the beginning were a extreme deja vu of a dream I’ve never had, extreme fear...
Misdiagnosis

02/2020 | 2 Comments

hi. in 2007 after almost 10 years of seeking help and being medicated with a heart medication I was diagnosed with left temporal lobe epilepsy. I saw...
Help understanding daughters eeg report

01/2020 | 1 Comments

My 10 year old daughter has been having episodes of dream like states when she is awake. She had a sleep deprived eeg before Xmas and they've now...
Three day episode

01/2020 | 2 Comments

I'm 35 and have had absence seizures since I was a child. I was lucky that one was caught on my first EEG. It is managed with Lamictal and I haven't...
Advice for first doctor visit

01/2020 | 6 Comments

I have been having strange symptoms for almost 3 years. It started off as complex scenic hallucinations that occur in the dark room - mostly at night...

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.