Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Complementary Therapies

melatonin for sleep problems

11/2007 | 11 Comments

Has anyone tried taking synthetic melatonin to deal with sleep problems? What have been the experiences with this synthetic hormone? Is it a help or a...
Cost of neurofeedback?

11/2007 | 4 Comments

Does anyone know what the cost of neuofeedback sessions tend to be? I'm interested in trying it but I work an entry-level temp job, and I'm very...
Biofeedback

11/2007 | 4 Comments

Hi Has anyone tried using biofeedback to manage the stress that triggers seizures? Or even the seizures themselves? There is this computer program and...
Pyridoxine Dependent Epilepsy

11/2007 | 8 Comments

My name is Andrew and I am 37yrs old. I have a very rare type of epilepsy known as Pyridoxine Dependent Epilepsy. I had my first seizure at two weeks...
Seizures and Energy Therapies

10/2007 | 1 Comments

I first started having seizures after a car accident in 1997. Initially, it was diagnosed as epilepsy. After 7 neurologists, the diagnosis changed to...
need input on marijuana and sez's

10/2007 | 6 Comments

I'm going to see my doctor tuesday. I plan to tell him I use weed to control my sez. Does anyone else ever talk to your doctor about this?? I wish to...
GABA - Gamma amino butyric acid

10/2007 | 2 Comments

Has anyone tried this stuff? GABA - gamma amino butyric acid. I've been reading up about it lately as I look towards less traditional (you know, AEDS)...
Vns possible need help

10/2007 | 5 Comments

My Daughter dani was diagnosed with having Tuberous sclerosis which is a condition which she has tumours in the brain causing her to have seziures...
EEG Neurofeedback or LENS Neurofeedback

10/2007 | 10 Comments

I am interested in hearing from anyone who has tried neurofeedback (either EEG or LENS types) and what your experience was like. My wife had a lot of...
Yoga = less seizures?

10/2007 | 21 Comments

Has anybody experienced a decline in seizures due to yoga? I am seriously thinking about starting classes twice a week but wanted to know other people...
Coenzyme Q10 help???

09/2007 | 0 Comments

I was told by my chiroprator, that taking Coenzyme Q10, fish oils, and B complex vitamins would be OK to give a kid with seizures. I've heard of...
Cost of taking drugs

09/2007 | 3 Comments

Out of curiosity, I had a look at the annual Prescription Cost Analysis produced by the National Health Service in the UK. Among other things... of...
Should my son get VNS therapy???

09/2007 | 3 Comments

Hi eveyone, I' a single father of 4 kids and one of my son is handicap due to stroke at is birth. Is actually 9 years old but mentaly is just like a 6...
We have a stress management program

09/2007 | 7 Comments

Hi The Victoria Epilepsy and Parkinson's centre in Victoria, British Columbia, Canada has a stress management program. I attend this program and it...
meds vs. ketogenic diet

07/2007 | 2 Comments

Hi, I am new here. My 4 year old daughter has had complex partial seizures since the age of 6 months. She has broken thru on dilantin, phenobarb and...

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.

Subscribe