Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Epilepsy and Glyconutritional Products Like Ambrotose

Tue, 07/05/2005 - 15:05

Dear Readers;

Does anyone have any stories/results to share about taking glyconutritional products like Ambrotose to

help alleviate the effects of epilepsy including seizures?

Sincerely,

Al Picken

Comments

RE: Epilepsy and Glyconutritional Products Like Ambrotose

Submitted by angel_lts on Wed, 2005-07-06 - 07:02

No but in epilepsy cured support group, they may know.

Lisa

http://health.groups.yahoo.com/group/EpilepsyApproach/

No but in epilepsy cured support group, they may know.

Lisa

http://health.groups.yahoo.com/group/EpilepsyApproach/

RE: RE: Epilepsy and Glyconutritional Products Like Ambrotose

Submitted by apicken on Wed, 2005-07-06 - 08:23

Lisa,

Thanks for the info.  I was wondering if anyone has tried Glyconutritional products (like Ambrotose) for epilepsy since I seemed to have had significant resullts with it for my son.

He's 16, has JME and in Oct/Nov last year was having quite a hard time.  He was having cluster seizures (4-5 grand mals) about every two weeks, basically washed out of high school and really down because of his illness.  He was taking Depakote, Lamictal, and Zonegran at the time.

Around Thanksgivng, I put him on the Ambrotose product and the cluster seizures stopped.  With the Doctor's permission and guidance we slowly took him off of Lamictal and Zonegran, which were seriously effecting his personality, speech, memory, and cognition.  While going off the Zonegran, he had one grand mal on December 29th. 

To our knowledge, he hasn't had a seizure since, and is doing a lot better emotionally.

I just wanted to share his story and see if anyone else has had a similar one relative to glyconutritional products.

Sincerely,

Al  Picken

Lisa,

Thanks for the info.  I was wondering if anyone has tried Glyconutritional products (like Ambrotose) for epilepsy since I seemed to have had significant resullts with it for my son.

He's 16, has JME and in Oct/Nov last year was having quite a hard time.  He was having cluster seizures (4-5 grand mals) about every two weeks, basically washed out of high school and really down because of his illness.  He was taking Depakote, Lamictal, and Zonegran at the time.

Around Thanksgivng, I put him on the Ambrotose product and the cluster seizures stopped.  With the Doctor's permission and guidance we slowly took him off of Lamictal and Zonegran, which were seriously effecting his personality, speech, memory, and cognition.  While going off the Zonegran, he had one grand mal on December 29th. 

To our knowledge, he hasn't had a seizure since, and is doing a lot better emotionally.

I just wanted to share his story and see if anyone else has had a similar one relative to glyconutritional products.

Sincerely,

Al  Picken

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.