Cluster of Seizures

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I have occasional seizures (tonic clonic) which occur during the night while I'm asleep. (4 or 5 times a year). I have no memeory of them happening, my wife teels me what happend. They have started to increase in frequency a little. I'm told my seizures start with a "mild seizure" (if there is such a thing) lasting a couple of minutes. About 2 to 5 minutes after that seizure ends it is followed by another stronger seizure lasting a little longer. After an intervening period of around 5 minutes I have another seizure. This will go one through 4, 5, or six seizures. I wake up after the last one with no recollection of what happend. Side effects usually start hapening 5 or 6 hours later. I'm wondering if these are just one long seizure or multiple rapid fire seizures. I feel okay after a day or two and don't generaly have another episode for about 3 months, until lately as Im down to once a month. Any advise or thoughts?

Comments

Re: Cluster of Seizures

Submitted by ladymack14 on Fri, 2009-12-11 - 22:30

If you are having seizures that are lasting a couple of minutes, it is not a mild seizure. I don't believe in mild seizures. All seizures are important no matter how long they last. If your seizures are coming every couple of minutes apart without waking up, that is serious. Seizures that last longer than 5 minutes or you have several seizures in a row without waking, that is considered Status Epilepticus. That is very serious and should not be taken lightly. You should be talking to your doctor immediately! If you are experiencing tonic-clonic seizures you will not have any memory of it.

Re: Cluster of Seizures

Submitted by bishopr on Thu, 2009-12-17 - 18:07

Thank you very much. I didn't realize my experiences would be classified as Status Epilepitcus. I've told my Dr. about these experiences. He didn't express an opinion one way or another other. He said taking a klonipin (.5)might help. My wife said she tried to give me a klonipin one during one of these seizure episodes but she was of course not abole to get me to take a pill untill I regained consciousness. I'll talk to my Dr. again. This time with specific questions about Status Epilepticus. Thank you again.

Re: Cluster of Seizures

Submitted by wichitarick1 on Fri, 2009-12-18 - 10:31

peace R.C.

Hello

As a "quote" that imfo. is not completly accurate, not waking is different from a continous seizure

Status is classified like this .

I did not understand what a "short" sz. was until a few years ago and never had one until fairly recently

mine are almost word for word like you are describing here.

Mine previous to this were just a very long gmal. 20-30 min. SHEW.

Mine are reduced now to about 5min. and occasionly run in a cluster of 2 -3

although my recovery time has been about 8 days for yrs now. almost wiping away any short term memory I obtained before that . Lol I am in this state right now .

I am in a drug study and have run that by several top people many times and they agree that I do not need to call an ambulance . $$$$$$$.

I am suprised about taking a pill also? Every pc. of imfo. in print about szs. has never varied about "in..take" of ANYTHING during a sz. including water . My dentures have almost choked me several times during a sz.

I bit down so hard once I broke them in 4 places then choked afterwards a pill would have choked me for sure.

Having a flu. where I threw up a lot raised more eye brows a the docs. office than almost anything. chewing gum etc can be dangerous. so I would think a pill could be same?

These cluster szs concern me more than one "big" one and I seem to be more "brain" dead but not as sore as a major gmal.

My thought on this, is the meds are doing this and this kind of activity is why "balancing these aed,s is such a game . i feel my meds are what causes partial szs but are no doubt what is shortening them also .

So much is unknown and a Big ???? in this even with constant care they just walk away scratching their heads?

"disclamer" lol

All editing and spelling errors AND rambling are due to potical state . please forgive or understand the author

lol Rick ..merry christmas

peace R.C.   Hello  As a "quote" that imfo. is not completly accurate, not waking is different from a continous seizure    Status is classified like this .    I did not understand what a "short" sz. was until a few years ago and never had one until fairly recently   mine are almost word for word like you are describing here.  Mine previous to this were just a very long gmal. 20-30 min. SHEW.   Mine are reduced now to about 5min. and occasionly run in a cluster of 2 -3    although my recovery time has been about 8 days for yrs now. almost wiping away any short term memory I obtained before that . Lol I am in this state right now .  I am in a drug study and have run that by several top people many times and they agree that I do not need to call an ambulance .  $$$$$$$.   I am suprised about taking a pill also? Every pc. of imfo. in print about szs. has never varied about "in..take" of ANYTHING during a sz. including water . My dentures have almost choked me several times during a sz.    I bit down so hard once I broke them in 4 places then choked afterwards a pill would have choked me for sure.  Having a flu. where I threw up a lot raised more eye brows a the docs. office than almost anything. chewing gum etc can be dangerous. so I would think a pill could be same?  These cluster szs concern me more than one "big" one  and I seem to be more "brain" dead but not as sore as a major gmal.    My thought on this, is the meds are doing this and this kind of activity is why "balancing these aed,s  is such a game . i feel my meds are what causes partial szs but are no doubt what is shortening them also .   So much is unknown and a Big ???? in this even with constant care they just walk away scratching their heads?      "disclamer"   lol   All editing and spelling errors AND rambling are due to potical state . please forgive or understand the author    lol   Rick ..merry christmas  