Community Forum Archive

Cluster of Seizures

I have occasional seizures (tonic clonic) which occur during the night while I'm asleep. (4 or 5 times a year). I have no memeory of them happening, my wife teels me what happend. They have started to increase in frequency a little. I'm told my seizures start with a "mild seizure" (if there is such a thing) lasting a couple of minutes. About 2 to 5 minutes after that seizure ends it is followed by another stronger seizure lasting a little longer. After an intervening period of around 5 minutes I have another seizure. This will go one through 4, 5, or six seizures. I wake up after the last one with no recollection of what happend. Side effects usually start hapening 5 or 6 hours later. I'm wondering if these are just one long seizure or multiple rapid fire seizures. I feel okay after a day or two and don't generaly have another episode for about 3 months, until lately as Im down to once a month. Any advise or thoughts?  

Comments

Re: Cluster of Seizures

Submitted by ladymack14 on Fri, 2009-12-11 - 22:30

If you are having seizures that are lasting a couple of minutes, it is not a mild seizure. I don't believe in mild seizures. All seizures are important no matter how long they last. If your seizures are coming every couple of minutes apart without waking up, that is serious.  Seizures that last longer than 5 minutes or you have several seizures in a row without waking, that is considered Status Epilepticus. That is very serious and should not be taken lightly. You should be talking to your doctor immediately! If you are experiencing tonic-clonic seizures you will not have any memory of it.

If you are having seizures that are lasting a couple of minutes, it is not a mild seizure. I don't believe in mild seizures. All seizures are important no matter how long they last. If your seizures are coming every couple of minutes apart without waking up, that is serious.  Seizures that last longer than 5 minutes or you have several seizures in a row without waking, that is considered Status Epilepticus. That is very serious and should not be taken lightly. You should be talking to your doctor immediately! If you are experiencing tonic-clonic seizures you will not have any memory of it.

Re: Cluster of Seizures

Submitted by bishopr on Thu, 2009-12-17 - 18:07

Thank you very much. I didn't realize my experiences would be classified as Status Epilepitcus. I've told my Dr. about these experiences. He didn't express an opinion one way or another other. He said taking a klonipin (.5)might help. My wife said she tried to give me a klonipin one during one of these seizure episodes but she was of course not abole to get me to take a pill untill I regained consciousness. I'll talk to my Dr. again. This time with specific questions about Status Epilepticus. Thank you again. 

Thank you very much. I didn't realize my experiences would be classified as Status Epilepitcus. I've told my Dr. about these experiences. He didn't express an opinion one way or another other. He said taking a klonipin (.5)might help. My wife said she tried to give me a klonipin one during one of these seizure episodes but she was of course not abole to get me to take a pill untill I regained consciousness. I'll talk to my Dr. again. This time with specific questions about Status Epilepticus. Thank you again. 

Re: Cluster of Seizures

Submitted by wichitarick1 on Fri, 2009-12-18 - 10:31

peace R.C.

  Hello

 As a "quote" that imfo. is not completly accurate, not waking is different from a continous seizure

   Status is classified like this .

   I did not understand what a "short" sz. was until a few years ago and never had one until fairly recently

  mine are almost word for word like you are describing here.

 Mine previous to this were just a very long gmal. 20-30 min. SHEW.

  Mine are reduced now to about 5min. and occasionly run in a cluster of 2 -3 

  although my recovery time has been about 8 days for yrs now. almost wiping away any short term memory I obtained before that . Lol I am in this state right now .

 I am in a drug study and have run that by several top people many times and they agree that I do not need to call an ambulance .  $$$$$$$.

  I am suprised about taking a pill also? Every pc. of imfo. in print about szs. has never varied about "in..take" of ANYTHING during a sz. including water . My dentures have almost choked me several times during a sz. 

  I bit down so hard once I broke them in 4 places then choked afterwards a pill would have choked me for sure.

 Having a flu. where I threw up a lot raised more eye brows a the docs. office than almost anything. chewing gum etc can be dangerous. so I would think a pill could be same?

 These cluster szs concern me more than one "big" one  and I seem to be more "brain" dead but not as sore as a major gmal. 

  My thought on this, is the meds are doing this and this kind of activity is why "balancing these aed,s  is such a game . i feel my meds are what causes partial szs but are no doubt what is shortening them also . 

 So much is unknown and a Big ???? in this even with constant care they just walk away scratching their heads?    

 "disclamer"   lol

  All editing and spelling errors AND rambling are due to potical state . please forgive or understand the author 

  lol   Rick ..merry christmas

 

peace R.C.

  Hello

 As a "quote" that imfo. is not completly accurate, not waking is different from a continous seizure

   Status is classified like this .

   I did not understand what a "short" sz. was until a few years ago and never had one until fairly recently

  mine are almost word for word like you are describing here.

 Mine previous to this were just a very long gmal. 20-30 min. SHEW.

  Mine are reduced now to about 5min. and occasionly run in a cluster of 2 -3 

  although my recovery time has been about 8 days for yrs now. almost wiping away any short term memory I obtained before that . Lol I am in this state right now .

 I am in a drug study and have run that by several top people many times and they agree that I do not need to call an ambulance .  $$$$$$$.

  I am suprised about taking a pill also? Every pc. of imfo. in print about szs. has never varied about "in..take" of ANYTHING during a sz. including water . My dentures have almost choked me several times during a sz. 

  I bit down so hard once I broke them in 4 places then choked afterwards a pill would have choked me for sure.

 Having a flu. where I threw up a lot raised more eye brows a the docs. office than almost anything. chewing gum etc can be dangerous. so I would think a pill could be same?

 These cluster szs concern me more than one "big" one  and I seem to be more "brain" dead but not as sore as a major gmal. 

  My thought on this, is the meds are doing this and this kind of activity is why "balancing these aed,s  is such a game . i feel my meds are what causes partial szs but are no doubt what is shortening them also . 

 So much is unknown and a Big ???? in this even with constant care they just walk away scratching their heads?    

 "disclamer"   lol

  All editing and spelling errors AND rambling are due to potical state . please forgive or understand the author 

  lol   Rick ..merry christmas

 

Re: Cluster of Seizures

Submitted by 3Hours2Live on Fri, 2009-12-18 - 16:55
Hi bishopr, Sometimes, clusters of seizures are signs and symptoms of "Acute Repetitive Seizures" (ARS). This website has many citations listed in a search of: acute repetitive and a slightly different batch in a search of: ARS A direct article is at: http://www.epilepsy.com/articles/ar_1109872672 It's best not to be signed on as a member to use this link, because the links often default to the homepage when signed-on members try to use them. This website, and most googlle search result sites, note that as needed medicines for ARS may become less effective with overly frequent use, and may develop a dependency problem. I'm not a medical professional, but I hope Keppra works as a "Magic Bullet" for stopping my cluster seizures, and stopping them fast enough to prevent secondary tonic-clonics. I'm half-way afraid of Diastat for being, and having the same problems as, a form of Valium (diazepam). I hope this helps. Tadzio

Re: Cluster of Seizures

Submitted by uberzwitter on Thu, 2009-12-24 - 00:18

I am very prone to clusters, but I sieze during the day mostly and have complex partials. But they pretty much work by having a smaller one (yes, such a thing) as in motor activity is not as violent and shorter duartion, if concious you tend to be more lucid. And then they ramp up from there. The rest period between them tend to get shorter between sz but if you don't recover at all that becomes dangerious. Everyone has a different timeframe. I have sz'd for an hour where at least 20 minutes was straight, and probably should have gone to emergency and I'm just dandy. Someday I'll figure out what's too much. According to everyones guidelines I go into status almost every time I seize! Is that possible?

 

Anywho, you being asleep I think makes it different than bieng trully unconcious. You have to ask someone who has nighttime sz. 

 

I am very prone to clusters, but I sieze during the day mostly and have complex partials. But they pretty much work by having a smaller one (yes, such a thing) as in motor activity is not as violent and shorter duartion, if concious you tend to be more lucid. And then they ramp up from there. The rest period between them tend to get shorter between sz but if you don't recover at all that becomes dangerious. Everyone has a different timeframe. I have sz'd for an hour where at least 20 minutes was straight, and probably should have gone to emergency and I'm just dandy. Someday I'll figure out what's too much. According to everyones guidelines I go into status almost every time I seize! Is that possible?

 

Anywho, you being asleep I think makes it different than bieng trully unconcious. You have to ask someone who has nighttime sz. 

 

How does 33 sz in 3 hours

Submitted by Anonymous on Sun, 2014-04-06 - 10:13
How does 33 sz in 3 hours affect a person with temporal lobe epilepsy My partner has had this 12 years ago And has suffered from temporal lobe Since 5 year old due to scaring resulting From a fall, he doesn't have any memory During the sz he will try to get up and has Thrown things and lifted very heavy objects If any one can shed any thing on that amount Of sz would be a great help

I have the exact situation

Submitted by AndreaRose on Tue, 2017-10-10 - 02:38
I have the exact situation happening to me...a few times a year I'll have multiple seizures back to back with obviously no recollection of themI'm told that I'm ok from the Dr but I'll sleep for 3 days min after an episode and i generally feel kinda "slow" for awhile afterwards I'm not sure what our issue is but I'm right there with you 

Join Our Newsletter

Stay up to date with the latest epilepsy news and stories from the community.