Community Forum Archive

ARE THERE ANY TEENAGERS ON THIS SITE

So guys I am 17 final year of school and live in australia. I am really lost and I would like to talk to somebody going through epilepsy as a teenager. thanks heaps :)

Comments

Re: ARE THERE ANY TEENAGERS ON THIS SITE

Submitted by Misjoey101 on Sat, 2012-02-04 - 00:18
Hello, fellow SENIOR! I am 17 too and have had epilepsy all my life. I'm in the states though. I'm going to get ANOTHER EEG this month and I'm not looking forward to it!

Re: ARE THERE ANY TEENAGERS ON THIS SITE

Submitted by soundwav on Mon, 2012-02-06 - 04:10
wow that must suck, don't worry i have a specialist appointment in the next month and well he is changing legit everything, it is good to have someone my age on here though!

Re: ARE THERE ANY TEENAGERS ON THIS SITE

Submitted by phoebeisabella on Sun, 2012-02-12 - 12:23
heey! i live in australia too, i'm 16 though i've had epilepsy since i was 8, it definitely sucks, it effects everything! just this weekend i felt awkward because i was the one person not drinking at the party, it effects school due to days off and stupid medication side effects! i wish you the best! if you ever need someone to talk to i'm here!

Re: ARE THERE ANY TEENAGERS ON THIS SITE

Submitted by Misjoey101 on Fri, 2012-03-09 - 16:45
well, there is only one good thing I've been able to come across with this disorder,Scholarships. They make a great essay and qualifies you for disability and epilepsy scholarships.

Re: ARE THERE ANY TEENAGERS ON THIS SITE

Submitted by soundwav on Sat, 2012-03-10 - 05:27
omg another australian thats so cool, yeah i used to drink with my meds, didn't affect much but everyone different. where bout in aus?

Re: ARE THERE ANY TEENAGERS ON THIS SITE

Submitted by Misjoey101 on Sat, 2012-03-10 - 13:39
uh, what's the drinking age in Australia? In the US that's illegal until you're 21, soooo WHAT KIND OF PARTIES ARE YOU GOING TO???? Yeah, it affects my school too. My mom has made it so that my teachers never move my seats(in case I have a big one). All the kids are like "Weird, you didn't move?" Or "Haha, you haven't moved the entire year!" I just play the ignorant card. " I think the teacher hates me" or "they must have forgot to move my seat" Oh, and the doctors have also diagnosed me with a memory disorder.Soooo that has bad effects too

Re: ARE THERE ANY TEENAGERS ON THIS SITE

Submitted by soundwav on Mon, 2012-03-12 - 02:26
I was going through a tough time in my life, in Australia it is 18, and i was underage. But I don't drink anymore.I know it's wrong but back then, it numbed me, i never turned into a tramp, i just wanted to feel nothing. But I am out of that scene now and it is like I am a new person :) don't judge me. I don't get it, in America are you suppose to move seats in classes or something? ohhh so that would be a pain around exams :/

Re: ARE THERE ANY TEENAGERS ON THIS SITE

Submitted by Misjoey101 on Mon, 2012-03-12 - 10:16
Yes, in America we do move seats throughout the year. Generally once a quarter.

Re: ARE THERE ANY TEENAGERS ON THIS SITE

Submitted by soundwav on Mon, 2012-02-06 - 04:10
wow that must suck, don't worry i have a specialist appointment in the next month and well he is changing legit everything, it is good to have someone my age on here though!

Re: ARE THERE ANY TEENAGERS ON THIS SITE

Submitted by Misjoey101 on Fri, 2012-03-09 - 16:48
So how'd your appointment go? My EEG was strange. I has 3 seizures that day, none of which were during the actual EEG. My parents have reverted back to their old selves. "Get enough sleep". "Don't chew gum", "Don't stay home alone" "Did you take your pills?" blah blah blah.

Re: ARE THERE ANY TEENAGERS ON THIS SITE

Submitted by soundwav on Sat, 2012-03-10 - 05:28
omg thats horrible:l yep,my mum is like that all the time, she blames smallest things on my episode. my appointment went ok, i have to change off frisium onto topamax but stay on lamictal its confusing and my driving is confusing and yes it does mess with school and friends and such but at least I am not alone! and i agree, it makes the best essays and all teachers love to hear personal experiences about it,one positive. what did your test turn out to say?

Re: ARE THERE ANY TEENAGERS ON THIS SITE

Submitted by soundwav on Sat, 2012-03-10 - 05:26
omg thats horrible:l yep,my mum is like that all the time, she blames smallest things on my episode. my appointment went ok, i have to change off friseur onto topamax but stay on lamictal its confusing and my driving is confusing and yes it does mess with school and friends and such but at least I am not alone! and i agree, it makes the best essays and all teachers love to hear personal experiences about it,one positive. what did your test turn out to say?

Re: ARE THERE ANY TEENAGERS ON THIS SITE

Submitted by Misjoey101 on Sat, 2012-03-10 - 13:34
They said it was normal, thankfully. I still can't believe they changed my medication though. I was on Keppra for 5 years and it was going well, but randomly this year "we're switching you to lamictal". Greeeaat :(. Does Lamictal make you twitch? I've noticed that since I've started the medication, I tend to twitch alot.

Re: ARE THERE ANY TEENAGERS ON THIS SITE

Submitted by chloee320 on Sat, 2012-03-10 - 01:24
I'm 15! But I live in the US. I've had epilepsy since I was 9 and it's rough! It interferes with school (the meds slow me down so much) and social life, sports, etc. I'm turning 16 in 11 days, and I wont be able to get my license :( Having so little freedom is hard. But it's good to know that there are other teenagers on this site!! Itd be great to see how others are dealing with epilepsy.

Re: ARE THERE ANY TEENAGERS ON THIS SITE

Submitted by soundwav on Sat, 2012-03-10 - 05:29
the freedom stuff sucks but in the end you find out who your true friends are and hey,you don't have to worry about paying for a car or petrol for a while so you have time to save for other stuff :3

Re: ARE THERE ANY TEENAGERS ON THIS SITE

Submitted by Jimsun on Mon, 2012-03-12 - 11:46

I found that my E was a great "leveller"!

ie; We are all together, for one another, here, and we should be taking no prisoners!

My attitude to life changed dramatically. Having a brain injury spawn from my E, I got quite cynical & sceptical & I have no time @ all for the jobsworths who administer benefits, etc.

My E nearly "killed" me twice, so what have I got to lose - & yes, it does reveal your true friends!

J.

"Even monkeys fall from trees"!

I found that my E was a great "leveller"!

ie; We are all together, for one another, here, and we should be taking no prisoners!

My attitude to life changed dramatically. Having a brain injury spawn from my E, I got quite cynical & sceptical & I have no time @ all for the jobsworths who administer benefits, etc.

My E nearly "killed" me twice, so what have I got to lose - & yes, it does reveal your true friends!

J.

"Even monkeys fall from trees"!

Re: ARE THERE ANY TEENAGERS ON THIS SITE

Submitted by Jimsun on Mon, 2012-03-12 - 09:28
Does being a teenager @ heart count?! My teens have long deserted me - however, armed with a long memory of events/experiences of my E kicking in, plus a mentality verging from stupidly to downright lunacy, maybe you might let me join ?!! At least I promise you a laugh - & perhaps one or two sensible words of wisdom thrown in for good measure! Be warned, 'though that, hailing from God's Own Country & as 17 March approaches (St Podraigh's Day) draws nigh, my brain & body disavow any responsibility for the actions of my fingers !! Hope everyone is well. J. "Even monkeys fall from trees"!

Re: ARE THERE ANY TEENAGERS ON THIS SITE

Submitted by aimeenoelle on Thu, 2012-06-21 - 03:50
Hey:) I am 21... and been dealing with this my entire life.. I am still waiting on the whole license thing...which dose suck.. I am in college right now and my med's slow me down as well. I agree this site is great and there are so many people with the same issue's as us. But hey...life is short so I just remind myself to enjoy the little things...stay strong=]

Re: ARE THERE ANY TEENAGERS ON THIS SITE

Submitted by LostLia on Mon, 2012-05-07 - 17:18
Hey, i'm 15, 16 in 23 days. (YEAH!!) I live in Canada, and contrary to popular belief, i do NOT ride a polar bear to school, nor do i drink maple syrup... Hehe. Anyway, i have absence andd grand mal siezures, and in the beginning stages of switching medications from Limictol to Keppra.... I'm kinda stressin over the change. But its good to know theyre others out there...

Re: ARE THERE ANY TEENAGERS ON THIS SITE

Submitted by soundwav on Tue, 2012-05-08 - 00:26
As random as this is Lostlia For my final year of high school I am doing case studies of people with epilepsys A few have emailed me yet I have yet to have a younger one from US! Anyway basically I just have people give me how they were diagnosed and then do sub headings like social life: then do two sentences how epilepsy affected social life They do this for social life,work life,stigma of epilepsy(what society thinks of it) and how epilepsy affects your outlook on life Anyway if anyone reading interested in shooting an email how epilepsy affected their lifestyle shoot me an email at emilyzucak@hotmail.com Any questions shoot me an email and I'll answer :)

Re: ARE THERE ANY TEENAGERS ON THIS SITE

Submitted by lulugirl422 on Thu, 2012-06-21 - 12:38

Hey

I am 22 and have been living with Epilepsy for 11 years. AH so long! It makes me feel old :Phaha I am also from Canada and definitely don't have a pet polar bear or sleep in an igloo. Although it would be awesome :P

I can relate to so many of the things that everyone is talking about on here-I myself don't have a driver's license, and even though I am in university I find that my medications slow me down and it takes me longer to complete assignments. It sometimes gets in the way of my social life because I can't stay out late because I get so sleepy, and I need a ton of sleep to be able to function well throughout the day.

Up until the end of highschool I never had any seizures in public...I guess I was just lucky in that they were always in my room. Lately though my seizures have been acting up and I have to be a lot more careful about what I do and whether its safe in case I suddenly have a seizure. My seizures are generally very short-about 10 seconds, but they do interfere with life as I have fallen and hurt myself and I get very anxious and depressed afterwards.

Anyways, even though your seizures may not be well controlled or it gets in the way of living the life you want, be strong and know that it will get better. It's hard to do, but just keep it in the back of your mind. Maybe it will help. It has for me, at least ;).

Hey

I am 22 and have been living with Epilepsy for 11 years. AH so long! It makes me feel old :Phaha I am also from Canada and definitely don't have a pet polar bear or sleep in an igloo. Although it would be awesome :P

I can relate to so many of the things that everyone is talking about on here-I myself don't have a driver's license, and even though I am in university I find that my medications slow me down and it takes me longer to complete assignments. It sometimes gets in the way of my social life because I can't stay out late because I get so sleepy, and I need a ton of sleep to be able to function well throughout the day.

Up until the end of highschool I never had any seizures in public...I guess I was just lucky in that they were always in my room. Lately though my seizures have been acting up and I have to be a lot more careful about what I do and whether its safe in case I suddenly have a seizure. My seizures are generally very short-about 10 seconds, but they do interfere with life as I have fallen and hurt myself and I get very anxious and depressed afterwards.

Anyways, even though your seizures may not be well controlled or it gets in the way of living the life you want, be strong and know that it will get better. It's hard to do, but just keep it in the back of your mind. Maybe it will help. It has for me, at least ;).

Re: ARE THERE ANY TEENAGERS ON THIS SITE

Submitted by Chaoc on Thu, 2012-06-21 - 21:14
Heyyy I'm 19 and have been dealing with epilepsy since grade 5. You're definitely not alone. :) I've had seizure basically everywhere from a public swimming pool, a public park, a public sidewalk, on a public bench, at school (elementary, high school and university), and etc. Keep positive and live life. Epilepsy is not your whole life. :) Feel free to ask me any questions.

Hey! I'm 19 and had my first

Submitted by Anonymous on Sat, 2015-03-07 - 12:50
Hey! I'm 19 and had my first seizure when i was 14. I've had them in all sorts of places... like school,  the bus,  most of my friends houses, but the really scary one was the one in the shower. I fell and the faucet got one side of my upper lip. My lip was huge and hurt a bunch for a couple of weeks. I was glad I didn't hit the faucet hard on my head. I consider myself lucky compared to others. Epilepsy is scary but the more you know, it takes away the fear of the unknown. Here to talk anytime. :) 

Join Our Newsletter

Stay up to date with the latest epilepsy news and stories from the community.