Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Advocate for Epilepsy

Keppra Has problems too, Whew!

01/2009 | 18 Comments

Whew!! My concern over the minority of people who were insulted and/or put down when they got advice to stop wallowing in self-pity at a time when...
Tell President-elect Obama Your Story

12/2008 | 0 Comments

In the Washington Post today there was an article - "Obama Team Seeking Grass-Roots Input on Policy." This is your opportunity to tell your story. You...
Tell President-elect Obama Your Story

12/2008 | 0 Comments

In the Washington Post today there was an article - "Obama Team Seeking Grass-Roots Input on Policy." This is your opportunity to tell your story. You...
Americans with Disabilities Act 2008

08/2008 | 3 Comments

Here's the deal, fellow Americans - you are supposed to be protected under the Americans with Disabilities Act of 1990... but there's a problem with...
Update on Destinymaker

06/2008 | 1 Comments

Hi everyone! In case you haven't heard, Glenn Fenster of DestinyMaker is on a 6000 mile ride to raise awareness of epilepsy. Here's his webpage if you...
Calling all New Jersey Residents!

05/2008 | 0 Comments

The Epilepsy Foundation of New Jersey is working to help along on some of the many legislative and advocacy issues that we have been involved with...
Housing discrimination

03/2008 | 0 Comments

I am being evicted in response to the letter my doctor provided my landlord requesting that I be moved to a quieter apartment-that has become...
preservatives in meats

10/2007 | 7 Comments

Has any one heard of the preseratives in meats being a trigger for seziures? Cold cuts are really loaded with the stuff. We had gone to see a Doc. in...
walking for epilepsy

10/2007 | 4 Comments

Hi! I just thought maybe... I don't know - if couldn't hurt to post here... My 14 year old step-daughter passed away last year from epilepsy (seizure...
Buddy Lists and Support Groups

09/2007 | 3 Comments

Hi all, This forum might not need lots of exchange, who knows. Just wanted a comment to be able to go out to all, without going to every forum and...
All Roker joke, over the line?

08/2007 | 6 Comments

I have been a little under the weather lately due to med changes, so i just heard this. I just came across an article about Al Roker of the Today Show...
Happy Anniversary ADA!

07/2007 | 1 Comments

Anniversary of the Americans with Disabilities Act, 2006 A Proclamation by the President of the United States of America White House News The...

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