Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Advocate for Epilepsy

Etp pipeline updates

02/2012 | 1 Comments

Hi everyone! I am at thePipelineconference in SanFrancisco. Great speakers talking about what's needed to speed up progress for new treatments. The I...
Help Others with Epilepsy!

01/2012 | 0 Comments

Hey everyone, I am part of a study at Columbia University which hopes to build upon the collected wisdom of people living with epilepsy to inform...
What would you do?/Would of done?

01/2012 | 0 Comments

So I am going to college. I am doing a practicum/ work expereince in a daycare, I am studying Early Childcare. Yesterday I had some apointments with...
writing a book

12/2011 | 5 Comments

I have been an epileptic since the 7th grade, and spent most of my life working in the medical community. Can any one give me an idea how I can go...
The Names Were Changed

11/2011 | 0 Comments

Due to the lack of communication, I am aware of people not knowing that the names of seizures were changed, and expanded, way back in the year 1981...
Awareness for Epilepsy Research

11/2011 | 0 Comments

For Epilepsy Awareness Month, I thought I would share information about a clinical research study for epilepsy to raise awareness for research. I’m...
What are you doing for November?

10/2011 | 0 Comments

As most of us know, November is Epilepsy Awareness Month! Whoot! I, for one, have several plans to advocate for awareness in my community. Do you? For...
First Aid Hints and Tips

08/2011 | 1 Comments

While watching an episode of "Untold Stories of the ER" being shown on the 'Discovery Fit & Health' channel, one of the situations pertain to a little...
Should I stay, or should I leave?

08/2011 | 0 Comments

Due to me repeatedly being ignored, or receiving request to "Drop It", when trying to communicate with other members in the chat room; along with the...
Seizure Dog

08/2011 | 0 Comments

Hi! I have been looking into getting a seizure response dog and I am wondering if you have any organizations in Kansas or missouri/surrounding areas...
An aura is a seizure itself !

07/2011 | 1 Comments

An aura is a seizure itself ! When either a simple partial seizure and or a complex partial seizure advances into a tonic clonic seizure (old name...
Help the Epilepsy Foundation win $500K!

05/2011 | 0 Comments

Hi Everyone, The Epilepsy Foundation of Florida is participating in the Chase Community Giving Program and they have the chance to win $500K to...
Inspriational Video

04/2011 | 0 Comments

Please take a moment to watch this video as I hope it will inspire you to live fully and richly. Thank you. http://www.youtube.com/watch?v=Op9xBcnp_18
Denied a vacation because of my seizures

04/2011 | 6 Comments

Hi, i'm Andrea and i'm new to this site. I have petit mal seizures. i'm 33 years old. Anyways, my friend had invited me on a cruise with her, the...
awareness

03/2011 | 0 Comments

For Immediate Release glenn fenster destinymaker 305-528-7854 destinymaker4u@gmail.com www.destinymaker.org 6th ANNUAL NORTH AMERICA BIKE RIDE FOR...
daughter

02/2011 | 0 Comments

i dont understand why people with seizures are not getting the funding they need from the goverment so i wish they were a way to get a goverment...

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