Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Advocate for Epilepsy

epilepsy

02/2018 | 2 Comments

hello everyone i am writing a book and wanted some people to tell me some questions that people want answered or questions you have been asked or...
Reentry into the workforce

05/2017 | 4 Comments

Hello, I had a brain surgery in 2009, and after having had enough time now to heal from the surgery,I would like to reenter the work force. I have...
FDA Reauthorization Act of 2017

05/2017 | 2 Comments

What are people's thoughts on the current draft of the FDA Reauthorization Act of 2017? How do you think it would impact patients, doctors, drug...
Please help me out

01/2017 | 5 Comments

Hello, My name Mixi, and I was born with epilepsy. I'm currently 21 but turns 22 in June this year, I have two jobs; childminder at a kindergarden and...
Help spread Epilepsy Awareness

01/2017 | 2 Comments

Please help spread epilepsy awareness by signing the petition for NFL players to wear purple during the month of November for Epilepsy awareness. The...
Ever been abused by the hospital?

08/2016 | 2 Comments

I had a status seizure. They broke it. The doctor asked me if I had any bad reaction to keppra and I said yes it makes me psychotic. They ended up...
Epilepsy and Driving

06/2016 | 3 Comments

People should sign this if they agree. I think it would do a lot of good for a lot of people. http://www.thepetitionsite.com/293/558/897/demand-fairer...
Share Your Experience

02/2016 | 2 Comments

Come check out Growing and Living with Epilepsy , a blog about my personal experiences with Epilepsy, as well as info, videos, and a page about you...
ADA Reasonable Accommodations

11/2015 | 1 Comments

I recently had to stop driving and am trying to get a 'Reasonable Accomadation' to help get to work. Can you all let me know what kind of Reasonable...
Why the Lack of Action??

11/2015 | 2 Comments

Where do we find legislative action updates on the part of the Epilspsy Foundation? How aggressive is the Foundation in pushing our Federal government...
Awareness through my art

10/2015 | 2 Comments

I am new here and looking to network with others. have temporal lobe epilepsy and have "mystical/escatic" partial seizures and I started to paint few...
A Career Teaching and Helping Others

01/2015 | 2 Comments

Hi everyone, my name is Erica, I’m 26 years-old, and I have periventricular heterotopia, a rare form of epilepsy. (You can learn more about it here...
Federal Funding Priorities

01/2015 | 2 Comments

I am joining the fight against this heinous disease much later than I should have and I am embarrassed for my hesitation. However I fully intend to be...
Stand up for epilepsy!

12/2014 | 3 Comments

Hi everyone! My name is Chris, I'm a 29 year old Dutch girl and I have epilepsy. I've made a 2 minute movie on epilepsy for an annual 48-hour...

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