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Photosensitivity anyone???

Tue, 12/07/2004 - 18:47

Hi all, I was just wondering who (children or adults) was photosensitive and to what and what type of seizures it ellicited?

The only types of seizures that are produced form this, from what my epi tells me, are Absence, Myoclonic and some types of Primary Generalized TCs.

I am Photosensitive to about everything, and had to recently buy polarized sunglasses to avoid some of it.  However I can't hide behind them all the time and some things are unavoidable, but they do cut down on the glare and UV rays that cause the brightness of things. 

Can you believe that even Christmas lights set me off.

The other night I was at a Christmas party with my for a ladies group at my church and some clown started taking pictures, and BAM, I had fallen into my mom who was standing next to me or the next stop would have been the floor had she not caught me.

I only had an Absence that lasted about 15 seconds or so, according to her.  After this person took about 10 pictures, and ellicited about 5-8 seizures out of me, my mom told her she needed to cut down on it for this evening.  She was mad and that was Thursday, and this is now Sunday, and she is still not talking to me. 

I also have Myoclonics as well, and they were also tripped by the other activity, so I had multiple seizure types going on at once.

The seizures continued for the next 48 hours.

I had to spend the later part of the party with my head in the hood of my coat everytime she took a picture, because she just couldn't not do it.

Nancy

 

Comments

Re: Photosensitivity anyone???

Submitted by Beach07 on Wed, 2007-06-06 - 21:42
Hi, I hope I've chosen the proper space here for my comment, I've just signed on here... The crazy thing is for the past 10 years, I've been suffering off and on from seizures myself, however my doctor has been unable to find a specific cause - other than A-typical migraines. I do have photosenitive tendencies myself, however - such as sunlight through the trees while in the car, strobe lights (can't go through haunted houses and have a heck of a time at concerts or clubs)flickering flourescent lights are the worst for me - some stores have particularly bright lights that I can;t even bear to be under, even when they're not flickering. I've never suffered the same way twice - any one or all of the follwoing can happen - sudden, intense headache; vertigo, numbness in face, eyelid twitching, blurry vision, slurred speech...I've passed out a couple times as well. My Doctor calls them Simple Partial Seizures and to make things even more complicated, most of the time, they just come on completely out of the blue, usually while I'm driving (Now THAT'S terrifying) and sometimes they have absolutely nothing to do with photosensitivity. I've also had full on tonic clonic seizures, but again - it's never been diagnosed as epilepsy...

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