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Photosensitivity anyone???

Tue, 12/07/2004 - 18:47

Hi all, I was just wondering who (children or adults) was photosensitive and to what and what type of seizures it ellicited?

The only types of seizures that are produced form this, from what my epi tells me, are Absence, Myoclonic and some types of Primary Generalized TCs.

I am Photosensitive to about everything, and had to recently buy polarized sunglasses to avoid some of it.  However I can't hide behind them all the time and some things are unavoidable, but they do cut down on the glare and UV rays that cause the brightness of things. 

Can you believe that even Christmas lights set me off.

The other night I was at a Christmas party with my for a ladies group at my church and some clown started taking pictures, and BAM, I had fallen into my mom who was standing next to me or the next stop would have been the floor had she not caught me.

I only had an Absence that lasted about 15 seconds or so, according to her.  After this person took about 10 pictures, and ellicited about 5-8 seizures out of me, my mom told her she needed to cut down on it for this evening.  She was mad and that was Thursday, and this is now Sunday, and she is still not talking to me. 

I also have Myoclonics as well, and they were also tripped by the other activity, so I had multiple seizure types going on at once.

The seizures continued for the next 48 hours.

I had to spend the later part of the party with my head in the hood of my coat everytime she took a picture, because she just couldn't not do it.

Nancy

 

Comments

RE: Photosensitivity anyone???

Submitted by Belinda on Mon, 2004-12-06 - 07:22
Phototo sensitive epilepsy.Yes that's me.I have a glare screen in my monitor because of it.MY tv can even bring on my seizures and that's not very common.Now the flashes lights will do it to me definitely. Belinda

Re: RE: Photosensitivity anyone???

Submitted by jennifer28 on Tue, 2006-01-31 - 16:39
This is new my 2 year old daughter started having seizures at 3 monthes we never had a problem with lights, now ceiling fans sun light that peeks through the slats in the blinds going out side from in the house, reflections from water when she goes in the pool, shadows from trees passing while riding in the car not to mention any toy with a flickering light sets her off and I can't get her to wear sunglasses! this summer wasn't as bad as last, last summer I couldn't take her outside during the day we would have to wait for overcast days or nighttime to go swimming. Her epilepsys are always changing so its been hard to diagnose but its hard because I never know day today how it will be I have two other children and its hard to accomidate everyones wants although they have been patient on the days we try to get out as a family and she just can,t do it I,m hopping as she gets older she,ll understand she needs the sunglasses before any resentments start from the other children.

Re: Re: RE: Photosensitivity anyone???

Submitted by Samantha Kravitz on Sat, 2007-04-21 - 20:43
My five year old daughter was diagnosed with reflex epilepsy; she is very sensitive to natural sunlight and needs to wear polarized sunglasses when outside. The frequency of her seizures is great; she would have them constantly if in bright sunlight. We have had the diagnosis for over a year and have had very little success with medications.

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