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How exactly do aura's feel

Mon, 05/15/2006 - 11:30
How exactly do aura's feel? Can you have aura's and not have an actual seizure? I think I had some this weekend. I went off into like a "spacy" feeling. Like I was tingling and I couldn't make myself snap out of it for a few seconds. I have had a headache since I has these feelings. I have had E a long time, but I am new to all the terminology and so forth. Thanks.

Comments

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Submitted by 2bfree on Sat, 2007-02-10 - 04:01
I have several distinct types of aura's which besides my EEG was one of the ways we finally realized that my "episodes" were seizures.It seemed like my aura's changed as I got older and the disease itself changed its manifstations. I either see red , like a filter covers my eyes & everything is tinted red (this is my most common aura, & when I see red I sit down immediately). I also have olfactory hallucinations (smell things), most commonly burning electrical wireing(?) occasionally devils food cake (LOL-I have no idea why it's not particularly to my liking). A long time ago I would have had auditory hallucinations (hear things) mainly country music songs that I did not know but I could repeat the words word for word & get them right. I used to think I was picking up a country music radio station in 1 of my fillings. Sometimes it also sounded like a little boy saying a quick word "mommy" or "help" or "hi" which was very freaky (this was around the time that the John Edwards Show first came out so I thought that I was either crazy or psycic. I also used to feel like I was burning, and I could not swallow, & I thought that I was going to forget how to breath & I would have a strange feeling(I always called Whelling) in my throat. Jamis Vu & deja vu' were frequently present depending on where I was. Even thought I am currently seizure free I still experience deja vu' when watching TV. I don't know if this is because everything has been done before and I can just predict what is going to happen or just because all the actors are all so familiar. I don't think(but it could be) it's a side effect of topamax. But it does seem like I am saying "I've seen this before" way too much to brand new shows. Oh wee life goes on. :-)

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Submitted by mvaleri175 on Sun, 2007-02-11 - 02:31
I find this post very comforting for I myself have been expreiencing similar "auars: or at least I think. I am 17 years old and ever since I have been in 5th grade i have been having these "auars". the first one was when I was with my dad at a gas station. all of a sudden I had a feeling of deja-vu, extreme. Then I had slight amnesia, I forgot who I was and where I was. I looked around confused, I was conscience. It seemed as if I was looking through a window at the world, like a new dimension or something. Ever since that night I have gotten them at least 3 times a month, usually happend during the span of a week. Now I am starting to get this tingling senstaion like whn you get goosebumbs on the side of my head. I's extrmemly frieghtning, do you think I may have epilsey or something? Also I have nver had a sezuire like a grand-mal or shaking. Help!

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Submitted by speranza82 on Wed, 2007-02-21 - 17:38
My seizures started about the same time, 6th grade, I think. But no one including me had any idea what they were. But the situation you described is how mine were back in the day (about 15 years ago). I would have auras just like that. When things went back to "normal" I'd tell whoever I was with to stop looking at me funny, and that I was fine. I wasn't. It turned out that I've got TLE (Temporal Lobe Epilepsy), and those were auras. If you're worried about possibly having Epilepsy (and I think it's safe to say that we all were at one point), then talk to your doctor. You don't want something to happen when you're driving. But always remember that it is your life, and you need to find things out for yourself. I had to do most research on my own because when I was diagnosed I was a teenager and my doctor thought I wouldn't understand. But talk to your doctor -- they are there to help.

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