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5 Month old having Seizures after immunizations

Fri, 04/15/2005 - 05:26
When I had my son's immunizations at his 4 month check-up he had a adverse reaction and had a seizure 20 hours after that lasted approximately 10 minutes.  He has had a total of 9 seizure since February 20th approx 1 week apart but a couple of weeks ago he had a really bad week and had 4 in a week.  The all lasted approx 10 - 20 minutes.  They vary from either his right side or left side.  He starts with his arm and it looks like he is just jerking it and can't stop, his face sometime draws a blank and other times he is cognitive sometime it goes to the leg other times it starts in the leg and moves to the arm.  The doctors are talking about putting him on meds but I am quite apprehensive because I feel the drugs are very strong for a baby and I don't want him to be like a zombie.  If anyone can give me some insight on drugs that might be easier for babies or opinions about drugs versus no drugs I am willing to listen.

Comments

RE: 5 Month old having Seizures after immunizations

Submitted by shellyme33 on Tue, 2005-04-12 - 08:55

I do believe that there is could be a connection between sz and immunizations.  Defineately would not be publicized, do to the idea of "Greater good" to society.  That was the only connection between myself and epilepsy. 

My seizures is where my family history began.  As an infant I had tonic clonic seizures (After my first immunization). I had outgrown them by the age of three. Never had a seizure since. I was on pheno. My mother was scared and was very conservative, with the medication. So the story goes. I am not sure what a conservative approach is my self. I am now 34 yrs old. I have five children, and two of them have seizures. My son started having CAE @ three. My daugher has TLE, diagnosed January this year at the age of 16. I had never even been formally diagnosed. Good for me bad for my kids = bad for me too! (None of my five children are immunized, I made this decision prior to any knowlege that my children would develop epilepsy)

Shelly

I do believe that there is could be a connection between sz and immunizations.  Defineately would not be publicized, do to the idea of "Greater good" to society.  That was the only connection between myself and epilepsy. 

My seizures is where my family history began.  As an infant I had tonic clonic seizures (After my first immunization). I had outgrown them by the age of three. Never had a seizure since. I was on pheno. My mother was scared and was very conservative, with the medication. So the story goes. I am not sure what a conservative approach is my self. I am now 34 yrs old. I have five children, and two of them have seizures. My son started having CAE @ three. My daugher has TLE, diagnosed January this year at the age of 16. I had never even been formally diagnosed. Good for me bad for my kids = bad for me too! (None of my five children are immunized, I made this decision prior to any knowlege that my children would develop epilepsy)

Shelly

RE: 5 Month old having Seizures after immunizations

Submitted by gormanjr on Tue, 2005-04-12 - 13:28
Hello, my name Is nikki. I have a daughter who is 5 years old, and she has been having seizures since her first set of shots at 2 months. It started out like your child, the arm jerks, then the leg. I was told at first that this was because the shots can sometimes cause spasms. After about 2 weeks of the arm and leg jerks, she had a seizure that scared me. Her eyes bulged out, her face turned reddish blue, her arms stiffened as well as her legs, and it was if her body was trying to fold in half. Her Pediatrician told me he wanted to see a video of it first before he sent her to a Neurologist. Of course I wasn't about to take time away from my baby to grab a camera and video tape it. So after beggin from Dec. to Feb. he finally sent us to see someone. At first Madi was diagnosed with Infantile spasms. The put her on Phenobarbitol and Carnitor. This worked for awhile, then her seizures started getting worse. She has been in and out of hospitals, Doctors appointments on and off so many different meds. She has now for the past 3 years been on Klonipin(clonzapam). They are pills that can be crushed if necessary. She takes a total of 4 pills a day. She is also on Keppra which is a liquid. She has her days. Some times she will go seizure free for a few weeks, and then sometimes she has so many we head to the local Childrens hospital here. It's so stressful and frustrating that I can't help my child. I am mommy and I can't make this pain for her go away. Madi has never been able to talk, walk, crawl, feed herself, or be potty trained. We don't know what she feels like after a seizure or before because she can't tell us. I contacted a lawyer about this because she was "normal" before the shots. The lawyer told me that right now no case on shots and seizures could be brought on because the FDA was in the middle of an investigation on shots. They have found that alot of children have become Autistic after getting them. So until that investigation is over with...I wait patiently. Madi will die from this. Her actual diagnosis is Progressive Myclonic Seizure Disorder. I am in no way trying to discourage you from doing all you can, and believe me no matter what you do it never seems enough. I would however, collect any and all doctors files on your child. Each time you go for a visit, rather it be at the Doctor's office or a hospital, immediatly tell them you want a copy of everything written, performed, said, done whatever. After getting this stuff, call a lawyer. Yes I know no amount of money could bring back what the seizures have taken away, but maybe if enough parents do something about it, then these shots won't be forced on us. It would be our choice. Also, check with the doctor who gave the shots and find out if they ever called the 2 numbers that they are supposed to report seizures from shots to. Doctors don't tell you about those numbers, and so alot of time they are off the hook with calling them. Believe me, doctors stick together on these things. I know I have rambled on and on, so I will leave you with this: God chooses who he wants to raise his children. He gave us children with epilepsy because he knew we were the right ones to raise them. You will get discouraged and want to just give up. But remember no matter how bad it gets, they aren't gone yet. So just enjoy the time you do have.

RE: RE: 5 Month old having Seizures after immunizations

Submitted by kwajkid on Fri, 2005-04-15 - 05:26

I am so sorry to hear about your tragedy.  I feel for you truly I do.  My husband and I are on the opposite sides of the fence when it came to immunizing the kids (I have 3).  My husband against them and I believed in them.  For some reason I really didn't want to have my baby shots on that particular day and even talked to the doctor about my concerns but talked me into having them anyway and he has had seizures ever since...I feel sick to my stomach ever time I see him seize.  I have had and MRI & EEG and they both came back "good" but he continues to have seizures.  I am looking for any information on different meds that you think are "good" or "bad".  Thanks for listening and good luck to you and your family.

Kim

I am so sorry to hear about your tragedy.  I feel for you truly I do.  My husband and I are on the opposite sides of the fence when it came to immunizing the kids (I have 3).  My husband against them and I believed in them.  For some reason I really didn't want to have my baby shots on that particular day and even talked to the doctor about my concerns but talked me into having them anyway and he has had seizures ever since...I feel sick to my stomach ever time I see him seize.  I have had and MRI & EEG and they both came back "good" but he continues to have seizures.  I am looking for any information on different meds that you think are "good" or "bad".  Thanks for listening and good luck to you and your family.

Kim

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