Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Sounds that trigger seizures???
Sun, 03/20/2005 - 09:26Hi I am new here and recently was diagnosed with having seizures. I dont have the Grandmal seizures, but I have the partial seizures. This is an embarrassing question to ask, but does anyone here think that certain sounds can trigger a seizure? Sometimes the feeling of de javu comes on after I hear a certain word, or maybe sound. I cant ever remember what it is after words.
Also I might be watching tv, or doing nothing and suddenly a word, not even a word sometimes ( more like a made up word ) will pop into my head and it gives me the feeling that a siezure is going to happen. I know this sounds crazy, but if anyone can relate I would appreciate it greatly. Thanks, Laurie
Comments
Re: Sounds that trigger seizures???
Submitted by modlar on Tue, 2013-11-26 - 20:39
Hi!
I've had E. for about 36yrs. now, but I've never heard that something like that can cause one to come on. What I can say is that it's kind of weird that you asked this question. Only because I have pedimal, and granmals, I can only tell when a pedimal is coming on. It's like the room get disorinated, yet at the same time it's the same, and the souns around me seem to get louder within a couple of seconds span. I can close my eyes to block out the site from trying to keep it from coming on. Except the sounds around me won't allow me to try to fight the seizure back, I know it sounds weird. Only because it's hard for me to even understand it myself, yet to even be able to explain it to others. So you should never feel embarrassed about asking such a question, because in this chatroom there are no stupid questions. Take care, and God! Bless!
Hi!
I've had E. for about 36yrs. now, but I've never heard that something like that can cause one to come on. What I can say is that it's kind of weird that you asked this question. Only because I have pedimal, and granmals, I can only tell when a pedimal is coming on. It's like the room get disorinated, yet at the same time it's the same, and the souns around me seem to get louder within a couple of seconds span. I can close my eyes to block out the site from trying to keep it from coming on. Except the sounds around me won't allow me to try to fight the seizure back, I know it sounds weird. Only because it's hard for me to even understand it myself, yet to even be able to explain it to others. So you should never feel embarrassed about asking such a question, because in this chatroom there are no stupid questions. Take care, and God! Bless!
Re: Sounds that trigger seizures???
Submitted by atlc996 on Thu, 2013-10-24 - 17:45
Oh my, Laurie! I thought I was the only one with that bizarre, unique trigger. I'm relatively new to seizures - diagnosed less than 2 years ago. My seizures come from my language center, as my symptoms are always language related. I've found out that certain words/short phrases would trigger my simple partial seizure (unable to speak and understanding speech/printed words). And I can never remember what that words is/are, however, I am almost certain that they are the same ones. I've also realized that there are a few words/expressions that are forever gone in my "brain dictionary" -- they are lost forever for me, literally. What I can't stand is that I have no control over whether I'll come across those certain words, therefore I don't know whether I can prevent it. My medication doesn't seem to always help in this aspect. Any tips or advice? I haven't shared this with my neurologist since I didn't know this was a "real" trigger, I thought I was just not thinking straight. I will mention it to her next time........