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Left Temporal Lobe Epilepsy and premonitions
Sun, 03/04/2012 - 17:35I posted this six years ago and thought I would post it again. Does anyone have TLE and experience premontions or other paranormal experiences that don't seem to be related to the TLE?
I have been diagnosed with TLE but can not take medication. Still not sure after all these years what type of seizures I am having. I have had a few two or three second dizzy spells that I am able to talk and function right through. They are calling those the seizures. I also have had many premonitions and some other bizarre visions. These are not the kind that are typical with seizures. These are partial visions that eventually come true. And they are not coincidences. I had a vision of 911 and many other occurances. I have had these all my life---long before the TLE diagnosis. Furthermore, I am not crazy. I'm a professional who seldom admits to these premonitions because I am afraid people will think I'm crazy.
I thought I read a similar post here but now I can't locate.
I would be interested in finding out if anyone else with TLE has these experiences. In particular, any TLE patients that are not on medication.
Comments
Re: Left Temporal Lobe Epilepsy and premonitions
Submitted by Tweety on Tue, 2012-10-23 - 13:26
Thanks for the response. I've had one-to-two second dizzy spells and some muscle cramping/numbness in the past seven years that they are guessing could be the tle seizures or mini-strokes. They aren't sure. A sleep deprived eeg showed evidence of tle. An MRI showed lesions. A second MRI 7 years later showed no further lesions so who knows what the cause. That's the short of it.
There is nothing short about the premonitions or 'visions' I've had. The 911 experience I wrote down at work and so when it happened our secretary looked at the notes I had written two months before. Those "seizures" happened one or two mornings a week for two months between 10AM and 10:30AM...never again after 911. I could literally bore you with details. We were once robbed and I told the police where the robber had pawned our jewlry. No one believed me of course until the kid who robbed us confessed a few weeks later that he had pawned the jewlry right at the location I had said.
It's funny you mention schizphrenia. When I turned 30, I was a professional, married with three kids. (My kids are now grown and fairly successful ---clinical psychologist, attorney and masters level special education teacher. My husband and I have been married 31 years. I say this just to let you know I'm fairly stable.) At that time, I thought to myself, well I'm not schizophrenic---it would have come out before now.
Anyway, I am intrigued by the subject and glad that you as an MD responded. My son-in-law is an MD---orthopedic surgeon---he has heard all of my crazy stories and always sits quietly pondering but says nothing. (What better response for your mother-in-law!!!)
If you have any other thoughts please let me know. I am not on medication because I've never lost consciousness. I'm a little worried about that choice. I don't want to have a seizure where I lose consciousness and some argue it could happen. I went to one or the best eptologists in PA and he agreed that he might risk it too since I am older and no one is sure what my seizures are.
Thanks!
Thanks for the response. I've had one-to-two second dizzy spells and some muscle cramping/numbness in the past seven years that they are guessing could be the tle seizures or mini-strokes. They aren't sure. A sleep deprived eeg showed evidence of tle. An MRI showed lesions. A second MRI 7 years later showed no further lesions so who knows what the cause. That's the short of it.
There is nothing short about the premonitions or 'visions' I've had. The 911 experience I wrote down at work and so when it happened our secretary looked at the notes I had written two months before. Those "seizures" happened one or two mornings a week for two months between 10AM and 10:30AM...never again after 911. I could literally bore you with details. We were once robbed and I told the police where the robber had pawned our jewlry. No one believed me of course until the kid who robbed us confessed a few weeks later that he had pawned the jewlry right at the location I had said.
It's funny you mention schizphrenia. When I turned 30, I was a professional, married with three kids. (My kids are now grown and fairly successful ---clinical psychologist, attorney and masters level special education teacher. My husband and I have been married 31 years. I say this just to let you know I'm fairly stable.) At that time, I thought to myself, well I'm not schizophrenic---it would have come out before now.
Anyway, I am intrigued by the subject and glad that you as an MD responded. My son-in-law is an MD---orthopedic surgeon---he has heard all of my crazy stories and always sits quietly pondering but says nothing. (What better response for your mother-in-law!!!)
If you have any other thoughts please let me know. I am not on medication because I've never lost consciousness. I'm a little worried about that choice. I don't want to have a seizure where I lose consciousness and some argue it could happen. I went to one or the best eptologists in PA and he agreed that he might risk it too since I am older and no one is sure what my seizures are.
Thanks!
Re: Left Temporal Lobe Epilepsy and premonitions
Submitted by Tweety on Thu, 2013-09-19 - 01:25
Sorry. I don't check this thread often. I am still not on medication and living life like I'm fine despite a second diagnosis of tle. As a profession, I talk very little about the epilepsy and even less about the premonitions. My premonitions can be controlled. While at times I feel people around me----yes much like Whoopi Goldberg in the movie Ghost---I can send them away quite easily. I often wonder how they know I can see them. They never say anything bad. Some don't say anything at all. Some are ill. The last time I was in the hospital there was a woman who never left my room. She was dressed in a white hospital gown and her eyes were bleeding. She was absolutely not scary. She was ill and waiting for someone to help her. She had no clue she was dead. Ok reading that in print sounds down right crazy, but I assure you I am as sane as anyone. I went to a counselor twice in my life and she was nuttier than me. She took a picture of my forehead and said I was stressed, Geesh,
Hence, if you have been diagnosed with TLE and also have premonitions, I would very much like to talk to you off thread. I am very dedicated to this topic. In addition to working as grant administrator for 12 years for a small city, I am also a freelance writer. I am currently interviewing people who have witnessed deathbed visions or experience a near death vision themselves.
Sorry. I don't check this thread often. I am still not on medication and living life like I'm fine despite a second diagnosis of tle. As a profession, I talk very little about the epilepsy and even less about the premonitions. My premonitions can be controlled. While at times I feel people around me----yes much like Whoopi Goldberg in the movie Ghost---I can send them away quite easily. I often wonder how they know I can see them. They never say anything bad. Some don't say anything at all. Some are ill. The last time I was in the hospital there was a woman who never left my room. She was dressed in a white hospital gown and her eyes were bleeding. She was absolutely not scary. She was ill and waiting for someone to help her. She had no clue she was dead. Ok reading that in print sounds down right crazy, but I assure you I am as sane as anyone. I went to a counselor twice in my life and she was nuttier than me. She took a picture of my forehead and said I was stressed, Geesh,
Hence, if you have been diagnosed with TLE and also have premonitions, I would very much like to talk to you off thread. I am very dedicated to this topic. In addition to working as grant administrator for 12 years for a small city, I am also a freelance writer. I am currently interviewing people who have witnessed deathbed visions or experience a near death vision themselves.