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How long do YOU feel strange after a seizure?

Tue, 03/27/2012 - 23:32
I figured I would share my situation and how I am feeling with people who hopefully can relate, because I am a bit scared currently. I had my first seizure some 8 years ago and have been dealing with them ever since. I always have felt slightly strange after a seizure maybe 3 or 4 days after as though my head has released all kinds of memories and I am just sifting through them all and regaining my present self. I went seizure free for two years and thought maybe I had tamed this beast. Of course epilepsy wont go away that easily and I recently had two seizures over the course of 3 weeks. It has been about a week since the last one, and that feeling of released memories and vibes from the past has become overwhelming and I cannot seem to get back to feeling normal. I am very anxious, bouts of depression have been frequent, and nothing seems to make me feel normal, and I am getting scared that I never will feel so again. I am not sure what has happened, I just want to share this with you all and hope that somebody else can relate and let me know they have gone through this and come out ok in the end. Or maybe it is a personal demon I must combat. The question is posed for everybody, how long does it take you personally to start feeling normal again? Thank you.

Comments

Re: How long do YOU feel strange after a seizure?

Submitted by 3Hours2Live on Thu, 2012-04-19 - 05:57
Hi Sparker001, I'm still here at times, and maybe more often, now that I have a different computer. I made it past the 3 year mark without a major tonic-clonic, but I'm still having problems getting Medicaid Keppra provided reliably. My ecstatic seizures continue. Doctors don't, or refuse to, understand that tolerating partial seizures with controlled tonic-clonic seizures, is better than excessive intoxication from Anti-Epileptic Drugs. The following might be "forbidden knowledge", by Roger Shattuck's standards: My recent clustered strong deja vu near otherwise tonic-clonics, and the way other people responded to them, got me a different used computer that doesn't repeatedly crashes at the newly designed epilepsy-dot-com. Somehow, my relatives "discovered" my name alias in my postings on other websites with my stance against "Stand Your Ground" laws where I cited that epilepsy probably made me seem to behave in a "suspicious" manner to many prejudiced individuals, and the hostile responses I received upset them more than the responses did me. These specific deja vu were particularly of bad sensations of "coincidences" (and anniversaries), hindsights including those of others, and, I believe, prejudice against epilepsy, as I requested accommodation on a website involving the newer amended guidelines for "ada compliant websites" near the middle of the sequence of events, and hearing of coincidental events: event A1: http://www.wrongplanet.net/postp4451874.html#4451874 event B1: http://www.cbsnews.com/8301-201_162-57408214/7-dead-in-shooting-at-oakland-religious-school/ event C1: Please advise me of the ADA accommodation/complaint resolution processes (for the involved website) event D1: http://www.wrongplanet.net/postp4557246.html&highlight=#4557246 event E1: The next afternoon, the e-mail telling me: "You have been banned from [the involved website]" event F1: http://abcnews.go.com/US/wireStory/va-tech-marking-years-campus-massacre-16146315#.T4_Z8bNYuTs So, now I at least get to use a used computer that doesn't crash with but a very few "member-ed" websites, with concern of future coincidental deja vu easily blamed on temporal lobe epilepsy phenomena. Tadzio

Re: How long do YOU feel strange after a seizure?

Submitted by sparker001 on Thu, 2012-04-19 - 20:35

How good to hear from you Tadzio!  And happy 3 yr anniversary TC free!  I generally only have 1 or 2 TC's a year at this point, which is not too bad. 

I'm sorry that people misconstrued your commentary on other sites.  That is a shame.  And I totally agree with your observation where a case like the SYG case could be instigated by someone observing the 'weird' behavior of someone who appears drugged or 'out of it' - and who, if approached, might continue to act in a strange way where a person could potentially feel threatened or whatever - and that 'suspicious character' could very well be having some type of seizure. One more reason to let the authorities handle it...

Anyway, wanted to pop in and say "Hi" and hope you continue beyond the 3 yr streak of being free of tonic clonics - that is indeed good news!! :)

Blessings to you, take good care of yourself.

How good to hear from you Tadzio!  And happy 3 yr anniversary TC free!  I generally only have 1 or 2 TC's a year at this point, which is not too bad. 

I'm sorry that people misconstrued your commentary on other sites.  That is a shame.  And I totally agree with your observation where a case like the SYG case could be instigated by someone observing the 'weird' behavior of someone who appears drugged or 'out of it' - and who, if approached, might continue to act in a strange way where a person could potentially feel threatened or whatever - and that 'suspicious character' could very well be having some type of seizure. One more reason to let the authorities handle it...

Anyway, wanted to pop in and say "Hi" and hope you continue beyond the 3 yr streak of being free of tonic clonics - that is indeed good news!! :)

Blessings to you, take good care of yourself.

Re: How long do YOU feel strange after a seizure?

Submitted by sparker001 on Wed, 2012-04-18 - 16:37
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