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How long do YOU feel strange after a seizure?

Tue, 03/27/2012 - 23:32
I figured I would share my situation and how I am feeling with people who hopefully can relate, because I am a bit scared currently. I had my first seizure some 8 years ago and have been dealing with them ever since. I always have felt slightly strange after a seizure maybe 3 or 4 days after as though my head has released all kinds of memories and I am just sifting through them all and regaining my present self. I went seizure free for two years and thought maybe I had tamed this beast. Of course epilepsy wont go away that easily and I recently had two seizures over the course of 3 weeks. It has been about a week since the last one, and that feeling of released memories and vibes from the past has become overwhelming and I cannot seem to get back to feeling normal. I am very anxious, bouts of depression have been frequent, and nothing seems to make me feel normal, and I am getting scared that I never will feel so again. I am not sure what has happened, I just want to share this with you all and hope that somebody else can relate and let me know they have gone through this and come out ok in the end. Or maybe it is a personal demon I must combat. The question is posed for everybody, how long does it take you personally to start feeling normal again? Thank you.

Comments

Re: How long do YOU feel strange after a seizure?

Submitted by Ghebre on Wed, 2012-04-18 - 23:01
www.myspace.com/MySeizures Renting one bedroom apartment in this area being expensive & beyond my reach, I share an apartment with my roommate & my roommate got the bedroom. Therefore, my bed is in the living room, which COULD have helped for anyone to see I'm having seizures in my bed & need help. NOPE,,, My stupid roommate tells me,,, "Oh Yeah,,, You fell down from bed & you were sleeping on the floor face down for two days". MY POINT,,, After my initial Grand-mal initial seizure episode,,, I fall in to DEEP SLEEP for a long time. And after the long-deep-sleep comes, NEARLY a week of muscle pain, confusion, disorientation, memory lose & desperate ATTEMPT to catch-up & recovery back to "NORMAL", before ANOTHER grand mal seizure strikes again. Let's face it,,, There is nothing back to NORMAL about this menace. EPISODES AFTER EACH EPISODES,,, We will always feel strange. I don't mean to be rude or bitter but,,, The sooner, we have come to FACE & ACCEPT the bitter truth, the easier & simpler to live & cope this fatal-menace, Epilepsy. BTW: Since I was NEW to Epilepsy, I tried to deny & cover up my grand mal seizures from my own family, friend, co-workers & employers, until the AMBULANCE kept showing up where ever I was knocked down & out with YET,,, another episode. PLEASE TRY TO ACCEPT THAT THERE IS NO DEAD-LINE TO FEEL NORMAL WHEN YOU LIVE WITH THIS FATE. Good luck.

Re: How long do YOU feel strange after a seizure?

Submitted by endinsight on Sat, 2012-04-21 - 22:33
  Having Grand Mals aka Tonic Clonics is the new name for them, I can be 2 to 3 weeks until I feel better. Normal is never a reality when seizures hit you. One thing you may want to do is go to a good massage therapist. I did that last year in March 2011 and I felt good until I got home. My body ached as if I had a grand mal seizure three days before but I knew I did not so I went bowling that night. I felt like staying home and ended up bowling my 1st ever 800 series for 3 games without a 300 game and with 2 open frames. 276, 263, 268 were my games as I bowled feeling sore yet I was relaxed and calm knowing my body was in better shape than it was a week ago. I went to that massage therapist for sevral visits and he kept on massaging those areas that I did not know pain ever existed as the calf area, thighs, shoulders, and neck needed to have massageing for the blood to circulate as he made my body feel 110% as it never did in 50 years past. One year later I have not had any seizure acitivity worth worrying overor grand mals .  You may watch those food additives that may be causing your seizures as well as keeping the brain hyper and stressed 24/7. MSG, Nitrates, Carrageenan, Yeast Extract & Aspartame are just a few that can fire uop the brain. www.truthinlabeling.org  www.msgtruth.org  www.sellingsalesmanship.com.msginfo/html  Check them out and tell other people if you believe you see a pattern in your seizures relating to the information you read on these sites. Doctors should hear it every day 24/7.     

Re: How long do YOU feel strange after a seizure?

Submitted by ademaris on Sun, 2012-04-22 - 16:24

     It is really nice to hear others feel the same way I do.  I started having seizures out of no where in 2009 in my early 30s.  I have found I either experience dejvu, extreme anxiety, or both right before a clonic tonic seizure hits and will usually end up talking nonsens no matter what I believe I am saying.  I have come to recognize that look in my husband's face when I am coming out of a clonic tonic seizure so try to just relax instead of talk more nonsense.  I usually average 72 days between my clonic tonic seizures but last weekend I had three within 24hrs of eachother.  This is the hardest time I have had coming back after a clonic tonic seizure; I hungery but nothing sounds good and when I force myself to eat certain foods feel "wrong" in my mouth, emotionally I just feel odd like I belong somewhere else but I don't know where that place is or why I belong there and not here, and I have been so drugged out for the last 2 years I don't know if I even know what my "normal" is.  I try not to jump on the pitty wagon; I really do try to keep my big girl pants pulled up and just find a way to live with this disorder without feeling like I am a complete drag on my friends and family.  I wake up each morning and find a way smile, knowing others are fighting just as hard makes it easier to convince myself I am not alone.

Thank for you words and best of luck to all of you,

Amy

P.S. I have had head pain that has not left my left tempol that started three months before my seizures did and would like to know if anyone else has experience the same, if so have you found anything to help?

     It is really nice to hear others feel the same way I do.  I started having seizures out of no where in 2009 in my early 30s.  I have found I either experience dejvu, extreme anxiety, or both right before a clonic tonic seizure hits and will usually end up talking nonsens no matter what I believe I am saying.  I have come to recognize that look in my husband's face when I am coming out of a clonic tonic seizure so try to just relax instead of talk more nonsense.  I usually average 72 days between my clonic tonic seizures but last weekend I had three within 24hrs of eachother.  This is the hardest time I have had coming back after a clonic tonic seizure; I hungery but nothing sounds good and when I force myself to eat certain foods feel "wrong" in my mouth, emotionally I just feel odd like I belong somewhere else but I don't know where that place is or why I belong there and not here, and I have been so drugged out for the last 2 years I don't know if I even know what my "normal" is.  I try not to jump on the pitty wagon; I really do try to keep my big girl pants pulled up and just find a way to live with this disorder without feeling like I am a complete drag on my friends and family.  I wake up each morning and find a way smile, knowing others are fighting just as hard makes it easier to convince myself I am not alone.

Thank for you words and best of luck to all of you,

Amy

P.S. I have had head pain that has not left my left tempol that started three months before my seizures did and would like to know if anyone else has experience the same, if so have you found anything to help?

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