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Panic attacks that are actually seizures

Tue, 04/03/2012 - 04:26

Hi all!

 Wow, to say I've been on a journey is an understatement.  I've suffered from what I thought was panic/anxiety attacks for coming on 7 years.  I'm 27 years old and this has without a doubt partially taken over my life from the sheer fear of it all. Problem I have is I don't really remember what happens during them only that I swallow a lot, cant recall the finer details (sort of memory loss), It can feel like de javu (especially if Im listen to someone talk, or watching TV) I'm petrified from them and I freeze and cant talk properly.  I cant seem to get any normal words out.. such as "Hang on I'm having a funny turn!" but I cant and if I do manage to talk it makes absolutely no sense. 

Now for years I've gone to doctors who hand me print outs of GAD or panic attack sheets, they've tried to put me on anti-depressants.  Which i've refused as I'm not depressed just bloody confused. Often doctors sat there with a blank expression thinking I was tapped... which as many of you will know that makes you feel so much worse.  Being honest I can feel pretty shook up after an attack (which tend to happen in the morning or when i'm partially awake) so I'm probably quite anxious from it all.

 Now finally after finding a good doctor, who also discovered I had PCOS (polycystic ovaries), she said she'd get a 24 hours heart rate check and also send me to a neurologist.  Purely to clear in my mind and that way I could stop worrying.  so, I went for my neurologist appointment on Friday.  There was the neurologist and a nurse present, I was asked to explain exactly what happens during my attacks.  I firstly said it was probably panic attacks and that this was just to confirm with myself it was that.  I explain exactly what happens during an attack... de javu, swallowing, cant remember, etc etc.  I then had to go through to the other room and my reflexes were tested, he watched me walk, and looked into my eyes with a torch.  

After this I went through and sat down waiting for his verdict... by how he acted with me I was totally expecting him to say I was just having anxiety/panic attacks.  he didnt.  "You're experiencing complex partial seizures'  - my reaction was "Pardon?!"  

There and then was a bit of a blur as I was baffled... why hadnt this been sorted before? was my first thoughts.  He said there and then I needed to inform DVLA and also did I want medication there and then.  That was the most confusing part... how did he know for sure?  would his reflex tests etc have shown him? I did say no and that I wanted the brain scan he was refering me for.  My sheets had ASAP all over them. 

 Part of me wants to be confirmed with seizures as I can finally get on with my life, the other part doesn't because I will have this for life.   Also if it isn't that if im just having panic attacks/ anxiety attacks then what the hell is it? 

 

Anyone else had a similar experience?  Any advice? 

 xx

 

 

Comments

Re: Panic attacks that are actually seizures

Submitted by tcameron on Fri, 2012-04-06 - 19:02

Complex partial seizures are temporal lobe epilepsy.  It's extremely common.  Over 2/3 of patients with epilepsy have their seizures completely controlled with medication.  It might take a few drugs to find out which ones work.  The only ones who know for 100% sure are the epileptologists, but from the symptoms you described, it looks like epilepsy.  It's nothing to worry about.  If this is the cause of your 'panic attacks', then they might be solved.  You could be getting your life under control again. 

If you still disagree, see another neurologist.

Complex partial seizures are temporal lobe epilepsy.  It's extremely common.  Over 2/3 of patients with epilepsy have their seizures completely controlled with medication.  It might take a few drugs to find out which ones work.  The only ones who know for 100% sure are the epileptologists, but from the symptoms you described, it looks like epilepsy.  It's nothing to worry about.  If this is the cause of your 'panic attacks', then they might be solved.  You could be getting your life under control again. 

If you still disagree, see another neurologist.

Re: Panic attacks that are actually seizures

Submitted by wd123 on Fri, 2012-04-06 - 20:24
You could have described what I have been through exactly. I did nto go to drs though until it got really bad and I ended up in hospitals. At times, I still believe they are panic attacks and I have had EEG and VEEG with no luck on result. I have brain injury as well. I have always thought them physcological issues however, last one really I cannot understand what I was actually doing to achieve these things. I am now on med and also watching certain things I do and also sleep patterns. I am glad someone sent you to a neurologist. Maybe you need MRI and further testing to?

Re: Panic attacks that are actually seizures

Submitted by Bronwen on Mon, 2012-04-09 - 16:01
Hi there I went through exactly the same thing and Your description of what happens is exactly the same as me and what it turned out to be was partial seizures. Years ago I started to get dizzy spells that started off with a few a day then escalated to up to 9 a day and then dropped away over the next couple of days. I was told it was anxiety which I had already been put on Prozac for. When I upped my Prozac my diZy spells doubled. It took me 4 years to document, research and figure it out for myself in the end. By the time I figured out that it was epilepsy, I had a full seizure one month later and the professionals finally listened. I have catemenial epilepsy that gives me a week of seizures every month. The feeling is a deja vu one, I can hear what someone is saying but can't form the words to talk back. My body feels like it is experiencing physical anxiety but with no mental anxiety thoughts. It passes in about 1 minute and takes about another 2 or 3 mins to come round properly. Hope that helps in your search for answers :)

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