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How long do YOU feel strange after a seizure?

Tue, 03/27/2012 - 23:32
I figured I would share my situation and how I am feeling with people who hopefully can relate, because I am a bit scared currently. I had my first seizure some 8 years ago and have been dealing with them ever since. I always have felt slightly strange after a seizure maybe 3 or 4 days after as though my head has released all kinds of memories and I am just sifting through them all and regaining my present self. I went seizure free for two years and thought maybe I had tamed this beast. Of course epilepsy wont go away that easily and I recently had two seizures over the course of 3 weeks. It has been about a week since the last one, and that feeling of released memories and vibes from the past has become overwhelming and I cannot seem to get back to feeling normal. I am very anxious, bouts of depression have been frequent, and nothing seems to make me feel normal, and I am getting scared that I never will feel so again. I am not sure what has happened, I just want to share this with you all and hope that somebody else can relate and let me know they have gone through this and come out ok in the end. Or maybe it is a personal demon I must combat. The question is posed for everybody, how long does it take you personally to start feeling normal again? Thank you.

Comments

Re: How long do YOU feel strange after a seizure?

Submitted by peterochs on Fri, 2012-03-30 - 18:17

It's so nice to hear others talking about their seizures as the scariest thing ever, etc.

It's so nice to hear others talking about their seizures as the scariest thing ever, etc.

Re: How long do YOU feel strange after a seizure?

Submitted by peterochs on Fri, 2012-03-30 - 18:13

Hey Z1

I know exactly what you're talking about.  I still have a hard time coming to grips with reality having lived for 38 years without having any seizures (that I know of).  I had a few tonic-clonics starting in 2008 and got diagnosed.

I tend to think that sort of dejavu is kindof like the brain trying to pack memories back away after being strewn around like the pieces of a toy when a kid opens the box.  The kid= the seizure.  The box= the brain/thoughts.  After playing with the toy, the kid tries to put all of the pieces back in the box but doesn't initially know how to do it, because to empty the box he just dumped it upside down without paying attention to the small form-fitted containers etc. which fit specific parts and mold onto certain parts (think the form-fitted plastic pieces containing new computer components, mouse, keyboard, etc.)

so the brain has these thought-pieces floating around in it that aren't quite settled back into their PETE2 plastics place...

AND then on top of that, during a tonic-clonic, the brain (or at least mine has been) is blacked out - which in the case of this simple comparison, would be like adding another form-fitted PETE2 container part INSIDE of the box, without any accompanying PIECE.  So the brain takes additional time trying to make coherence between the time before and the time after the seizure.

When I'm having a bad postictal span it seems like memories try to form-fit incongruous sequences together, which it can't do, because there's no memory piece that fits in the span during the TC.

This has zero scientific merit, but at times (when I'm not maybe freaking out on a simple/partial) it helps me to just calm my mind and chill (it's harder to put the pieces away when the box keeps moving around) and keep faith pieces will nestle.

Hey Z1

I know exactly what you're talking about.  I still have a hard time coming to grips with reality having lived for 38 years without having any seizures (that I know of).  I had a few tonic-clonics starting in 2008 and got diagnosed.

I tend to think that sort of dejavu is kindof like the brain trying to pack memories back away after being strewn around like the pieces of a toy when a kid opens the box.  The kid= the seizure.  The box= the brain/thoughts.  After playing with the toy, the kid tries to put all of the pieces back in the box but doesn't initially know how to do it, because to empty the box he just dumped it upside down without paying attention to the small form-fitted containers etc. which fit specific parts and mold onto certain parts (think the form-fitted plastic pieces containing new computer components, mouse, keyboard, etc.)

so the brain has these thought-pieces floating around in it that aren't quite settled back into their PETE2 plastics place...

AND then on top of that, during a tonic-clonic, the brain (or at least mine has been) is blacked out - which in the case of this simple comparison, would be like adding another form-fitted PETE2 container part INSIDE of the box, without any accompanying PIECE.  So the brain takes additional time trying to make coherence between the time before and the time after the seizure.

When I'm having a bad postictal span it seems like memories try to form-fit incongruous sequences together, which it can't do, because there's no memory piece that fits in the span during the TC.

This has zero scientific merit, but at times (when I'm not maybe freaking out on a simple/partial) it helps me to just calm my mind and chill (it's harder to put the pieces away when the box keeps moving around) and keep faith pieces will nestle.

Re: How long do YOU feel strange after a seizure?

Submitted by peterochs on Fri, 2012-03-30 - 18:36

to answer the question

a few days up to a couple weeks, up to I still do

to answer the question

a few days up to a couple weeks, up to I still do

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